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Author Topic: not now dammit  (Read 6010 times)
draven
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« on: July 22, 2009, 09:10:51 AM »
Had bloods today creatinine went up quite a bit from 136 to 158, the highest its ever been. i have been haveing weird water blisters on my legs and maybe the cause of the creatinine going up.

anyways doc says it maybe a "very mild" form of rejection....

i was due to start working soon, and get my life in order and now this happens.

Scheduled a ultrasound tommorow and a possible biopsy after that!!

i dunno what to say.... i just want to sit and cry  :'(
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paul.karen
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« Reply #1 on: July 22, 2009, 09:28:24 AM »
Understand your concern.
Hope that it turns out to be something very simple.
Good luck on the 23rd.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
breezysummerday
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« Reply #2 on: July 22, 2009, 09:37:06 AM »
Gentle hugs for you draven   :cuddle;

Tell the  doc you want to be tested for
CMV too.
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
okarol
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« Reply #3 on: July 22, 2009, 09:54:25 AM »

Awww I hope it's not serious, there's so much they can do now. But it must be tough, feeling like this are getting easier - now this. Hang in there draven!  :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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« Reply #4 on: July 22, 2009, 12:28:27 PM »
Sorry to hear this, Draven. That does seem to be a mild elevation, but any rise in creatinine is alarming. Rejection of some type is extremely common in the first year. I had it six months post-transplant, and my kidney lasted 30+ years. My two rejection episodes only took a week or so to fix in each instance. I hope you can continue with your plans to get back to work soon.

Best of luck. Let us know how you're getting on.

 :flower;
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rose1999
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« Reply #5 on: July 22, 2009, 12:47:34 PM »
Just adding my best wishes.  :cuddle;
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Darthvadar
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« Reply #6 on: July 22, 2009, 01:15:07 PM »
Wishing you al the very best, Draven...

Hope it all works out...

I'll be thinking of, and praying for you...

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Romona
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« Reply #7 on: July 22, 2009, 01:39:56 PM »
 :grouphug; Sorry you are going through this Draven.
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kellyt
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« Reply #8 on: July 22, 2009, 02:14:48 PM »
It's scary when your labs change.  Let's just pray there isn't an underlying reason for the rejection.  Hopefully it's just a medication thing.   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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« Reply #9 on: July 22, 2009, 03:32:51 PM »
I'll be thinking about you Draven.  Hoping everything gets sorted out very soon.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
chris73
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« Reply #10 on: July 22, 2009, 04:23:25 PM »
Hope everything gonna be ok.Keep you in my prayers.Keep us posted. God Bless!!...Chris
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
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« Reply #11 on: July 22, 2009, 05:13:29 PM »
 :grouphug;

Thinking about you. And hoping this is just a little bump in the road to a long lasting kidney.
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Wife to Carl, who has PKD.
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Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #12 on: July 22, 2009, 05:15:09 PM »
Thinking of you.  Hopefully it's just a minor glitch.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
MandaMe1986
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« Reply #13 on: July 22, 2009, 05:37:57 PM »
Im sorry, I hope it isn't anything big and it can be taken care of fast...Take care  :cuddle;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

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jbeany
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Cattitude
« Reply #14 on: July 22, 2009, 08:56:39 PM »
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Des
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« Reply #15 on: July 22, 2009, 11:20:42 PM »
Draven....

I don't know what to say but... I am going to say hang in there... I am thinking of you and I really hope that it is just something small that they can quickly take care of.

Keep us posted.

Huggss
« Last Edit: July 22, 2009, 11:23:16 PM by Des » Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Jean
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« Reply #16 on: July 22, 2009, 11:23:52 PM »
 :grouphug;
Lots of good thoughts coming your way draven.
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One day at a time, thats all I can do.
draven
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« Reply #17 on: July 23, 2009, 05:34:12 AM »
Thanks for the support guys, was really down yesterday.

OK just got back from doc, had a ultrasound done on kidney
and doc says kidney "looks and is doing fantastic" there are no signs of rejection at all!!!!!!  :yahoo;
He spoke about blood flow is perfect and the graft looking excellent, doc believes the creatinine levels are abit
high because of this rash/blisters on my leg. the cream i was taking is also know to raise creatinine levels. so had to stop taking it immediately.

So the plan is to drink a ton of water and take another blood test tomorrow. i then have an appointment to
see the dermatologist on Monday. hopefully this will solve the problem. otherwise doc says a biopsy will be needed!!!

will keep you guys posted on the results
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paul.karen
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« Reply #18 on: July 23, 2009, 05:48:34 AM »
 :rofl;

Drink a ton of water.

Dialysis patients arnt use to hearing that one.

Glad the kidney is doing its job as it should be.  You must be very relieved.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
RichardMEL
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« Reply #19 on: July 23, 2009, 07:20:19 AM »
drink half that ton for me, then another half :)

I'm glad draven all seems well with your "little bean"!!!! I think it's important to remember also that lots of people get mild rejections from time to time and the meds these days are usually good enough to deal with it so even if you ARE told you'd get some sort of rejection it's certainly not the end of the world.

Anyway drink up!!! plenty of ice in the water... yum!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paris
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« Reply #20 on: July 23, 2009, 04:47:16 PM »
So glad the news was good.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Jean
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« Reply #21 on: July 23, 2009, 11:26:35 PM »
What a relief!!!!!
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One day at a time, thats all I can do.
Chris
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« Reply #22 on: July 23, 2009, 11:46:05 PM »
Just saw the thread.
Sorry to hear Draven and hope dermatologist can give you answers to cause and a treatment.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
draven
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« Reply #23 on: July 24, 2009, 08:02:34 AM »
Took bloods again today, and..... my creatinine is down  :yahoo; its now 135 from 158.

going to see dermatologist on monday and taking more bloods on wednesday,

but things are looking better  ;D
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David13
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« Reply #24 on: July 24, 2009, 08:04:49 AM »
Great news, Draven!   :yahoo;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
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