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Author Topic: I found a doner  (Read 3518 times)
iketchum
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« on: July 21, 2009, 05:31:45 PM »

I was afraid I was telling too many people about needing a kidney. It seems thats all I talked about. But it seems to have paid off. A customer of mine at work is a blood match and is willing to be my doner. How do you thank someone for that.
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Romona
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« Reply #1 on: July 21, 2009, 05:42:12 PM »

 :clap; Best Wishes to you! I am so happy for you!
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Rerun
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Going through life tied to a chair!

« Reply #2 on: July 21, 2009, 05:44:43 PM »

The thanks comes deep within the soul and you can't describe it.

           Best of luck!       :waving;
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angellady07
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« Reply #3 on: July 21, 2009, 05:59:00 PM »

Wishing you all the best. Congratulations on finding a donor. Keep us posted.  :bestwishes;
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kellyt
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« Reply #4 on: July 21, 2009, 06:33:32 PM »

Thanking someone for just TESTING is hard.  But if he truly gets to be your donor, that's impossible!  My sister-in-law is so laid back about her donating her kidney to me.  Her thoughts are "You needed it and I loved you enough to give you my kidney.  You are my sister."  No matter what I do I can't thank her enough.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: July 21, 2009, 06:37:49 PM »

Even an offer to be tested is a huge gift.

Best wishes for a wonderful outcome.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #6 on: July 22, 2009, 12:38:57 AM »

Wow great news.  Fingers crossed
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Des
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« Reply #7 on: July 22, 2009, 01:13:02 AM »

I have wondered about it myself as I recently found my donor as well.
She is not a close friend but a co-worker. I feel very happy but guilty as well.  What can I give her in return. What am I going to do if something goes wrong with her medically during or after the op? She has 2 small children?

I will be watching this thread for info as well.
 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kellyt
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« Reply #8 on: July 22, 2009, 08:36:29 AM »

The best gift you can give your donor at this point, Des, is this site (IHD).  Make sure that your donor has access to all information about donating - the good, the bad and the ugly.  There are many resources, but hearing from actual donors is the best.  I gave my donor many sites to check out.  She said she looked that them.  I hope she did.  I told her what questions to ask when she went in for testing, because I also didn't want anything to happen to her.  I would have felt unbelievably horrible.  ESPECIALLY, since your donor is not related or family of any kind, you want to be sure she is well informed so she can ease the minds of her loved ones who will be trying to discourage her.

 :cuddle;     Good Luck!  I hope she passes all her testing.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paul.karen
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« Reply #9 on: July 22, 2009, 08:51:01 AM »

This is good news.
I hope everything works out and it is a good match.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
BobN
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« Reply #10 on: July 22, 2009, 10:30:51 AM »

This thread reminded me that I need to call out my incredible family, including my mother and father, two sisters, brother, sister-in-law and wife, all of whom actually went out on their own and got tested as possible donors for me.

Without my even knowing about it.

None were matches, but they are all gifts from God and I can't even concieve of a way to thank them.

That customer of yours is obviously a special person.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
Des
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« Reply #11 on: July 22, 2009, 11:08:29 PM »

Oh yeah!

I am also amazed at my donor's willingness to help.

" I was afraid I was telling too many people about needing a kidney. It seems thats all I talked about. But it seems to have paid off. A customer of mine at work is a blood match and is willing to be my doner. How do you thank someone for that. "

Good for you to find someone as well.... I hope everything works out well for you both.

I will be holding thumbs for you...
 

 
« Last Edit: July 22, 2009, 11:56:23 PM by Des » Logged

Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kellyt
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« Reply #12 on: July 22, 2009, 11:52:54 PM »

Make sure she knows she has to do TWO enemas before surgery.  My donor did them the night before.  She was not too happy, being that I didn't have to do any.  Plus, she was on a clear liquid diet the night before.  I could eat anything I wanted up until midnight.  oops!   ;)    :rofl;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Des
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« Reply #13 on: July 22, 2009, 11:58:30 PM »

That's so funny...

But I think enemas is the least of their worries ?!

hehe
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
iketchum
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« Reply #14 on: July 23, 2009, 05:39:51 PM »

The lady who wants to donate has had alot of medical hardships herself. She is in need of another hip replacement and also has an auto immune disease of some kind. I really have mixed feelings about having her go through with all thats involved. She really is special. I have only talked to her a couple of times and she offers me this.
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Des
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« Reply #15 on: July 23, 2009, 11:36:57 PM »

The lady who wants to donate has had alot of medical hardships herself. She is in need of another hip replacement and also has an auto immune disease of some kind. I really have mixed feelings about having her go through with all thats involved. She really is special. I have only talked to her a couple of times and she offers me this.

Has she seen the transplant team yet?

My team was so strict when selecting a donor.....
The person must be
 not over weight
 not take any chronic medication
 not have any heart/lung problems

and LOTS more.........

I am holding thumbs for you both.


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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kellyt
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« Reply #16 on: July 24, 2009, 10:58:42 AM »

I think that the autoimmune disease might make her ineligible.   Can anyone else confirm this?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Everlasting
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our community

« Reply #17 on: July 30, 2009, 07:07:09 AM »

Hello:  I am new to this site so am gradually absorbing all that I read.  I was compelled to respond to your notice of receiving a donor and especially so on this site.  CONGRATULATIONS and never loose sight that you deserve this and all the joy that you have shared.  Not only has your life changed in a postive sense but the lives of those whom you have touched were changed (also in a positive manner).  It is contagious and thank you for sharing it with me.
Everlasting
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Wayne
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Martin (the snorer) & Mack (cat w/renal failure)

« Reply #18 on: August 03, 2009, 10:55:48 PM »

When my friend came up to test, he lives in Houston, I am in Dallas, we were sitting around and I told him I didn't know what to say because to me "Thank You" didn't cut it.  He said he knew and I didn't have to say anything.  I told him even if it didn't work out, just the fact that he wanted to donate was so meaningful.
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Happily Married for 11 Wonderful Years!!! :-)
3/01 diagnosed with fsgs
7/07 listed
4/08 fistula surgery
10/08 pd catheter placed
12/08 started pd
2/09 started hemo
TiffanyJean
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We live in paradise - if only we could enjoy it!

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« Reply #19 on: August 03, 2009, 11:08:41 PM »

The lady who wants to donate has had alot of medical hardships herself. She is in need of another hip replacement and also has an auto immune disease of some kind. I really have mixed feelings about having her go through with all thats involved. She really is special. I have only talked to her a couple of times and she offers me this.


Unfortunately she may not be eligible; our first donor was counted out because of the various pain meds she had been on in the last year or so, and the conclusion was she needed both her kidney's. our team has been very careful with selecting people. our second donor had as a child some sort of immune problems - and as a young adult had no problems, but was not eligible. our third donor (his mom) is just starting the process, she is healthy and has had no major health anythigns... only the thing with her is that she is not blood type O - so we are going for the long shot of 'incompatible blood type donor' so we will see what happens.. we've passed the first round of testing.. waiting on the next few....

GOOD LUCK!!! Just being willing to donate is such an awesome thing! I admire anyone who does!!

TJ
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"Just think people have no problem having only one kidney, so we have to ask, why
did God give us two kidneys?  Perhaps it is so you would have an extra one to
donate and save a life!"
                        - Dr. Stuart Greenstein, Kidney Transplant Surgeon,
                        Professor of Surgery, Montefiore Medical Center, Bronx, NY   
                        Source of quote:   www.ourjerusalem.com
iketchum
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« Reply #20 on: August 06, 2009, 03:02:40 PM »

Well, my friend is unable to donate because she has had chemo and the auto immune trouble is too severe. My dr said she took it really hard. I havent seen or spoken to her since she made the offer. I guess its off to the va in pittsburg for the transplant team. I live in Maine but will need to go to pa. for the operation. Thats the va for you.
« Last Edit: August 06, 2009, 03:04:34 PM by iketchum » Logged
Des
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« Reply #21 on: August 06, 2009, 10:29:50 PM »

So sorry .... the transplant thing takes alot of twists and turns and can sometimes be a bumpy ride.

Good luck with it all.

Holding thumbs for you....
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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