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rookiegirl
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« on: July 01, 2009, 06:16:20 PM »

OK.  It's been 3 months & 10 days since my kidney transplant.  I'm still having groin pain on my right side above the transplanted kidney.  Each time I visit the transplant clinic, I mention it to them.  One month post transplant, they did an ultrasound & found nothing wrong.  The clinic thinks is musculatory related & will heal overtime.

This past Monday, I had another clinic visit & I complained again because the pain occurs more often.  So they did a CT scan & still nothing found.  No hernia, no fluid build up, no bleeding, etc...  Again the Dr. thinks is related to musculatory where during the surgery they cut several muscles, ligaments in order to pull back that area to make room for the kidney.  I've noticed in the last 3 weeks, the groin pain occurs more often.  Maybe is because I'm more active now with walking around the block and now started back to work.

To describe the pain...if I lift my right leg a certain way (up, down, out) or any sudden movement, I start to feel a sharp ripping feeling.  I find myself bending down & holding/pressing the area.  Once the sharp pain goes away, the pain subside a little but hovers for a while.  I really can't take pain killers because the sharp pain doesn't last long only for a minute and the hovering pain is more like a dull aching throb.

Does anyone have the same or similar experience after your transplant????  Please let me know I'm not alone in this & that it's not all in my head.

Thanks,
RG
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
okarol
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« Reply #1 on: July 01, 2009, 07:14:03 PM »

I was thinking it sounded like an abdominal hernia. I think it's diagnosed by touching the area and bearing down or coughing to see if you can feel the spot that needs to be repaired.
I found this on the internet, so I guess it's a possibility:

As with any surgery, there are potential complications. These include, but are not limited to:

    * risks of general anesthesia (being put to sleep)
    * needing to return to the operating room to resolve a surgical complication
    * wound infection (< 5%)
    * blood clot in the vessel to the kidney, requiring removal of the transplanted kidney (< 1%)
    * hernia development in the area of the incision (< 3%)
    * minimal numbness around the incision area (nearly 100%)
    * non-function (kidney never works from the start) of the transplant kidney (< 1%)
    * leakage of urine in the area where the ureter is attached to the bladder (< 1%)
    * bleeding
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #2 on: July 01, 2009, 08:28:58 PM »

Groin pain "above" your new kidney?  Where in the world did they put your kidney, rookie?   :rofl;

Seriously, I have no answer for you.  You would think that if they did an ultra sound they would have seen the hernia, right?  Or at least know the syptoms of a hernia.  Maybe they nicked a muscle or something?  I only had pain in the incision area and after about 6-8 weeks I was essentially pain free unless I did crunches or something.

Let us know what you find out.  Good Luck.  I hope you're doing well otherwise, rookie!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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« Reply #3 on: July 02, 2009, 07:12:29 AM »

I still have the numbness over the area of the incision and it feels very odd but I wouldn't say painful.  Odd sensations of twinges though and I think it might be due to nerve endings trying to meet up with the ones they used to be attached to in the first place.  I did have pain when my first transplant was needing to come out but it showed a compromised blood supply so that made sense.

I hope it resolves itself soon rookiegirl.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
rookiegirl
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« Reply #4 on: July 02, 2009, 02:13:27 PM »

I was thinking it sounded like an abdominal hernia. I think it's diagnosed by touching the area and bearing down or coughing to see if you can feel the spot that needs to be repaired.
I found this on the internet, so I guess it's a possibility:

As with any surgery, there are potential complications. These include, but are not limited to:

    * risks of general anesthesia (being put to sleep)
    * needing to return to the operating room to resolve a surgical complication
    * wound infection (< 5%)
    * blood clot in the vessel to the kidney, requiring removal of the transplanted kidney (< 1%)
    * hernia development in the area of the incision (< 3%)
    * minimal numbness around the incision area (nearly 100%)
    * non-function (kidney never works from the start) of the transplant kidney (< 1%)
    * leakage of urine in the area where the ureter is attached to the bladder (< 1%)
    * bleeding



They took an Ultrasound & CT Scan & made me cough while they press against the area.  No hernia, no bleeding, no leakage, nothing.  The doctors think is musculatory related and nerve endings trying to connect & heal.  They suggested for me to take it easy.

By the way,  I made a mistake on the pain location. DAH!!! I meant to say below the transplated kidney.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
chris73
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« Reply #5 on: July 02, 2009, 05:50:30 PM »

I had the same thing here little 1yr post tx and i still get the pain but not like they were in the beginning. I expressed my concern to the  tx clinic  and was told it was normal part of the healing  process if it persisted they would investigate further. On occasion after over doing it, i tend to hurt alittle i know my limits and feel great. Hope this puts your mind at ease!!  God Bless!! Chris
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
rookiegirl
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« Reply #6 on: July 03, 2009, 07:14:53 AM »

I had the same thing here little 1yr post tx and i still get the pain but not like they were in the beginning. I expressed my concern to the  tx clinic  and was told it was normal part of the healing  process if it persisted they would investigate further. On occasion after over doing it, i tend to hurt alittle i know my limits and feel great. Hope this puts your mind at ease!!  God Bless!! Chris

Chris - thanks for sharing.  I feel somewhat better now that I'm not the only person experiencing this pain.  I declare, I started to think it was all in my mind.  I'm hoping/praying overtime it will ease off & I will start to feel a little better.  Thanks.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
willieandwinnie
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« Reply #7 on: July 03, 2009, 09:58:44 AM »

rookiegirl, Len had his transplant 22 months ago and still has the pains in his groin area. I have had him to GP, transplant surgeon, trauma surgeon and they have run every test know to man kind. Can't find anything and have told us it is the healing process and could take up to 2 years. He seems to be mentioning it less often these days, maybe that is a good sign. He still has pains over the transplant site which they also told us was normal since he received a rather large kidney and he is a small guy. I sure hope you get some relief soon. Len did try a heating pad and said it relieved it some, worth a try. Keep us posted.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
rookiegirl
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« Reply #8 on: July 03, 2009, 09:14:35 PM »

rookiegirl, Len had his transplant 22 months ago and still has the pains in his groin area. I have had him to GP, transplant surgeon, trauma surgeon and they have run every test know to man kind. Can't find anything and have told us it is the healing process and could take up to 2 years. He seems to be mentioning it less often these days, maybe that is a good sign. He still has pains over the transplant site which they also told us was normal since he received a rather large kidney and he is a small guy. I sure hope you get some relief soon. Len did try a heating pad and said it relieved it some, worth a try. Keep us posted.  :cuddle;

Thanks for sharing.  Boy, I really hope I don't have to tolerate this pain for that long.  Last night, I did use heating pad on the groin area & it relieved some of the pain.  I couldn't stand it no longer so I took some pain killers that was prescribed.  I haven't taken pain killers in 2 months.  I tried to manage my pain and meditate that it's not there.  Sometimes it works & sometimes NOT.  I'm not always in pain in that area.  The only time I do feel the pain is when I agitate the area by stretching or move a certain way, then the pain hovers for a long while.  I tell you the sharp pain feels like someone is cutting me or ripping my groin apart.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
okarol
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« Reply #9 on: July 03, 2009, 10:04:08 PM »

I was reading more about pain after abdominal surgery. It sounds as though your transplant team has thoroughly attempted to diagnose the cause of your pain, so this may just be a repeat of what you already know:

Pelvic adhesions are bands of fibrous scar tissue that form in the abdomen and pelvis, usually after surgery. Adhesions connect organs and tissue that are normally separate, ovaries, fallopian tubes, bladder or bowel can be affected. Adhesions can also lead to a variety of severe complications including chronic pelvic pain, infertility and bowel obstruction.

Adhesions start forming almost immediately after surgery as part of the normal healing process to repair raw tissue. Unfortunately in the process some organs/tissues become "stuck" to adjacent tissues and thus cause pain.

The first step towards treatment is of course diagnosis, and your doctor will take a history, examine you and possibly conduct some tests, in an attempt to determine if your problems are adhesion related. These tests may include a laparoscopy.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rookiegirl
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« Reply #10 on: July 04, 2009, 04:57:37 AM »

I was reading more about pain after abdominal surgery. It sounds as though your transplant team has thoroughly attempted to diagnose the cause of your pain, so this may just be a repeat of what you already know:

Pelvic adhesions are bands of fibrous scar tissue that form in the abdomen and pelvis, usually after surgery. Adhesions connect organs and tissue that are normally separate, ovaries, fallopian tubes, bladder or bowel can be affected. Adhesions can also lead to a variety of severe complications including chronic pelvic pain, infertility and bowel obstruction.

Adhesions start forming almost immediately after surgery as part of the normal healing process to repair raw tissue. Unfortunately in the process some organs/tissues become "stuck" to adjacent tissues and thus cause pain.

The first step towards treatment is of course diagnosis, and your doctor will take a history, examine you and possibly conduct some tests, in an attempt to determine if your problems are adhesion related. These tests may include a laparoscopy.


okarol - thank you for the researched article.  "Pelvic Adhesion" - I'm going to mention this to my Neph on my next visit this month.  The tx clinic kept mentioning musculatory.  Oh how I wish to have my old Neph back.  I miss him so much.  But, I must give this new Neph a chance.  She did in fact worked under my old Neph, so I pray she is just as could as the old.  Thanks again.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Ringworm3
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« Reply #11 on: September 10, 2009, 08:43:12 AM »

Hi, I had a Transplant Back in Feb 12th 2009, we are now post 6 months, I still have the exact same pain, bending and Dull aches that you have, I have mentioned this to my Consultant and a few tests have brought back nothing.
However heres a Little history, I had The TX and Then needed a Hernia Op 12 weeks after because of a stabbing pain below and around the area, so maybe thats why I'm getting such re occurring pain.
It is annoying thou, I fully sympathize with you as your symptoms sound like mine, what a pain, still Dialysis is an Option!!! Ha Ha.
Don't want anymore of that for a while, lets hope the Kidney keeps going for a longtime. I hope yours continues to work well and that the pain will subside
All the very best to You
Mark Wiseman, Portsmouth UK :bandance;  Love Banana's
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okarol
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« Reply #12 on: September 10, 2009, 10:04:54 AM »


 :waving; Hi Mark,
Please post an intro so can get to know you better. Thanks.

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rookiegirl
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« Reply #13 on: September 12, 2009, 12:37:46 PM »

Upcoming Sept 20th is my 6mos. post transplant.  Groin pain is not has bad now...still there but not bad.  I've heard through too many people who had surgery (transplant, C-section, etc....) that scar tissues are just painful.  I know a girl at work that had a C-section and after 5 yrs. she sometimes feel soreness in the area when she moves a certain way.  Guess, I will learn to live with it.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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