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I Hate Dialysis Message Board
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Dialysis: Spouses and Caregivers
What is
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Topic: What is (Read 3324 times)
Yvonne
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Yvonne
What is
«
on:
June 21, 2009, 11:29:43 PM »
Please what is Chronic kidney disease stage four?
??
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
Jean
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Re: What is
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Reply #1 on:
June 21, 2009, 11:59:20 PM »
I am in stage 4. Really it is JUST, the measure of how well your kidneys are working. The next step of course, CKD5 is the dialysis stage. Hope that helps.
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One day at a time, thats all I can do.
okarol
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Photo is Jenna - after Disneyland - 1988
Re: What is
«
Reply #2 on:
June 22, 2009, 12:16:12 AM »
Here is another related thread
What are the Stages of CKD?
http://ihatedialysis.com/forum/index.php?topic=13202.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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Re: What is
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Reply #3 on:
June 22, 2009, 12:16:57 AM »
Stages of chronic kidney disease
Stage Description GFR What this means to you
1 Kidney damage with normal or high GFR 90 or above • Your doctor will try to find the cause of your kidney disease and begin treatment.
• Keep your blood pressure below 130/80 mm Hg. If you have diabetes, control your blood sugar levels.
• See your doctor regularly to monitor your condition.
2 Kidney damage with mildly low GFR 60–89 • Your doctor will estimate how quickly your disease is progressing.
• Control your blood pressure and blood sugar levels.
• Continue regular monitoring.
3 Kidney damage with moderately low GFR 30–59 • Your doctor will check you for complications, such as anemia and bone disease, and begin treatment if needed.
• Continue monitoring.
4 Kidney damage with severely low GFR 15–29 • Decide what type of treatment you want if kidney failure develops.
• Continue treatment and monitoring.
5 Kidney failure Below 15 • Start dialysis or have a kidney transplant
MY GFR IS 20 and I am a stage 4
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Yvonne
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Yvonne
Re: What is
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Reply #4 on:
June 22, 2009, 10:48:23 PM »
Thank you for your replies. John's GFR is 13.1 this weeks test and creatinine is 325 and they do not want to see him again for another 3 months!!!!!!!! I suppose they know what they are doing. Yvonne the wife
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
monrein
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Might as well smile
Re: What is
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Reply #5 on:
June 23, 2009, 04:55:30 AM »
Yvonne, if John starts to be nauseous and feel worse and worse you will need to call and push to have him start D. It only makes sense to go by symptoms rather than any absolute numbers and everyone is different. I started D at a GFR of 16 because I felt perfectly wretched.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
Yvonne
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Yvonne
Re: What is
«
Reply #6 on:
June 23, 2009, 11:37:54 PM »
Thanks momrein, I was ready to call the Dr. Saturday night as John was bad, but he said no it was just interjestion. He went to bed in a lot of pain, slept some of the night and stayed in bed until 11am on Sunday. He is fine now just very sleepy. He does not want to start dialysis as I think he thinks that will be............................ I wish I knew what he is thinking
Yvonne
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
Des
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Re: What is
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Reply #7 on:
June 24, 2009, 12:46:18 AM »
I have to be honest ......
I do not really get him???
Dialysis is going to make him feel MUCH better.... I think he should start soonest..
I have been bitching and moaning because "they" ( the doctors) let us (the sick) wait until we are at deaths door before we are allowed to start dialysis... I would want to start earlier.
Just me venting- not judging or anything.
Please try to convince him to start... I know he will feel better.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
willowtreewren
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My two beautifull granddaughters
Re: What is
«
Reply #8 on:
June 24, 2009, 06:14:11 AM »
I agree with Des.
My husband had no idea how bad he was feeling because it was a gradual decline. Once he started dialysis, he felt immensely better.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
MandaMe1986
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Re: What is
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Reply #9 on:
June 24, 2009, 08:30:26 AM »
My dad did the same thing, he didn't want to start. Until they told him he had no choice. Then just jumped in.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
Yvonne
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Yvonne
Re: What is
«
Reply #10 on:
June 24, 2009, 11:43:16 PM »
I think that will hapen to John, an emergency trip to the hospital again in the middle of the night like all the previous times.
John's surgoen has ordered a CT scan for him and it's booked in for the 1st July, both the hernias have happened again so the repair they did in January did not work. They said they may have to resite the stoma, we are having so much trouble changing the bag twice a a day as it just will not stick and the hernias is now the size of a mellon.
He had another iron infusion yesterday, the nurse said one more and she will do another blood test to see if it's working, then he will not have to have anymore, they may just increase the EPO to 3 times a week. Yvonne the wife
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
Des
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Posts: 2318
Re: What is
«
Reply #11 on:
June 25, 2009, 12:10:14 AM »
I am really thinking of you....
Be strong and know that you do have someone on the other side of the world thinking and praying for you and John.
Hugs
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
ODAT
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Nala - Mom's Cat
Re: What is
«
Reply #12 on:
June 26, 2009, 11:49:18 AM »
I just want to add that my mom also feels and looks a lot better since starting dialysis. You never know how bad you've felt until you feel good. She hasn't had any issues so far and has settled in to the transport and time in dialysis.
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As is your sort of mind, so is your sort of search: you will find what you desire.
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