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Author Topic: My second transplant eval was today..plus potential living donor..  (Read 3914 times)
Jess21
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« on: June 19, 2009, 04:14:40 PM »
So today I went to University of Wisconsin in Madison to get on WI's list.  After all, Illinois has a 3-5 year wait average, while Wisconsins was 6-12 month average for me!  It turns out the wait will probably be less than 3 months!!  There is only 5 people with my blood type on the list, 2 of which are on hold, and the other 3 have very high antibodies, which I do not have!  Plus, I should get listed on Monday!!  :yahoo;  :bandance;
AND THEN, a few weeks ago, I got a text message from my boyfiend's mom that her co-worker wanted to get tested to see if she is a match!  I sent the info to her, and I got a text message today that she filled out the info, so I said to fax it!
Now excuse me while I  :waiting; :waiting; :waiting; :waiting; :waiting;
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Romona
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« Reply #1 on: June 19, 2009, 07:37:38 PM »
Wonderful news! :bandance;
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willowtreewren
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« Reply #2 on: June 19, 2009, 07:50:09 PM »
Looking good, Jess!  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #3 on: June 19, 2009, 10:54:00 PM »
That's good news and odd news all at once. Odd news because I remember how the boyfriends mom was when he wished to be tested, but she'll let someone else go thru the process..

Either way I hope it works out Jess.
Good Luck
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #4 on: June 20, 2009, 08:55:15 AM »
 :2thumbsup; Great! I hope all progresses smoothly!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MIbarra
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« Reply #5 on: June 20, 2009, 09:06:49 AM »
 :yahoo; Best of luck!
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Cadaver transplant April 29, 2007
Wenchie58
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« Reply #6 on: June 20, 2009, 11:51:48 AM »
Here's hoping everything goes your way Jess!!   :clap;
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Right nephrectomy 1963
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"Listed" summer 2007
Transplant 3/6 match  10/24/08
monrein
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« Reply #7 on: June 21, 2009, 01:49:08 PM »
Keeping everything crossed for you and the transplant Jess.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #8 on: June 23, 2009, 04:10:16 PM »
Jess, this makes me so happy!  I am very excited that things are progressing. I bet your Mom is thrilled. This is great news.   :cuddle;
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Jess21
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« Reply #9 on: July 03, 2009, 10:02:39 PM »
I'm active on the list!  :2thumbsup;
And also, the potential donor turned in the form, and is being evaluated July 6th!!!!!!!
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
okarol
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« Reply #10 on: July 03, 2009, 10:04:58 PM »
 :yahoo; Jess - that's great - I hope all goes well!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #11 on: July 04, 2009, 04:33:32 AM »
 :2thumbsup; this is great.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Chris
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« Reply #12 on: July 07, 2009, 07:15:53 PM »
And in this short time she now has a transplant. Just not sure which center called her.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Romona
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« Reply #13 on: July 07, 2009, 07:28:11 PM »
I hope others read this and try not to think about the waiting times. When you match you match. Jess was on a very short time. So was I. I can image the people waiting long past the average time can get very, very, discouraged.
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Sluff
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« Reply #14 on: July 07, 2009, 07:44:03 PM »
Good Luck Jess!
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