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Author Topic: my friend is in need...  (Read 4746 times)
petey
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« on: June 16, 2009, 07:45:30 PM »

I have a friend I've taught with for last 15 or so years.  She's 40 years old and has two small children (ages 10 and 5).  A couple of years ago, she was diagnosed with cirrhosis of the liver (never drank a drop in her life -- got it from a transfusion after gallbladder surgery).  About two months ago, she got very, very sick.  Lots has happened since then; she's now on the liver transplant list and still very, very sick.  She and her husband are staying at an apartment near the hospital (3 hours away from here), but her children are at home with relatives.  They don't want the children to see her so sick.

When I called to check on her today, she had more bad news.  Her kidneys have completely shut down.  She'll start dialysis tomorrow (perm cath surgery in the morning and treatment in the afternoon).  The liver disease was bad enough, but now, there's this, too.  She's the sweetest person I've ever known, and my heart is hurting for her.

My favorite aunt died when I was 19 of cirrhosis (she was a bad alcoholic), and it was a horrible, horrible end.

If you pray, please remember my friend Anna.
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kellyt
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« Reply #1 on: June 16, 2009, 08:46:53 PM »

You got it.   Bless her and her children.  You're a good friend.   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #2 on: June 16, 2009, 09:36:36 PM »

Praying for her and her family.  I know how she feels as I was that sick last year.  However, I'm much better now.  One piece of advice.  I would let the children see her.  Especially the 10 year old.  My daughter was 11 and the things she could make up in her head were way worse the reality of seeing me sick.  If they are open about how sick she is you'll be amazed how well the children cope. 
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Sunny
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Sunny

« Reply #3 on: June 16, 2009, 09:57:48 PM »

I feel so sorry for your friend and pray things will get better for her soon. What a scary situation for them.
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Sunny, 49 year old female
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kristina
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« Reply #4 on: June 17, 2009, 02:14:37 AM »

I feel so sorry for your friend,
and hope, things get better soon.
please give her my kind regards,
and best wishes from Kristina.
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« Reply #5 on: June 17, 2009, 02:57:21 AM »

so sorry
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David13
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« Reply #6 on: June 17, 2009, 04:09:07 AM »

I am so sorry to hear about your friend.    :cuddle;

Prayers are being sent out for her and her family.
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monrein
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« Reply #7 on: June 17, 2009, 04:22:21 AM »

 :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #8 on: June 17, 2009, 04:41:57 AM »

 :cuddle; Oh petey. Just when I think things can't get much worse. I am so sorry and I will add Anna to my prayers and her children. Hugs to you and Marvin for always being there for everyone.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
petey
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« Reply #9 on: June 17, 2009, 06:59:26 AM »

I'm so disappointed.  I called Anna's coordinator to see if I could be tested to be a live liver donor for her, but it won't work.  The coordinator said that a live donor's partial liver would not help Anna very much at this stage.  She is so far advanced with the complications and so sick that only a whole liver (cadaveric donor) would even stand a chance of pulling her out of it.  I said, "But isn't half a liver better than none at all?" and the coordinator said, "At this point, that's not enough, and we know that it wouldn't work.  It's not worth putting her body through that if we know it won't work."  That did not sound like good news to me.  I'm also thinking that if a cadaveric donor doesn't come for Anna soon -- and very soon -- that it may be too late for that, too.

Why didn't I make this offer a month ago?  I could  :Kit n Stik; myself now.
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rose1999
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« Reply #10 on: June 17, 2009, 07:27:12 AM »

Marsha don't blame yourself, you were not to know and you've made the offer now which is more than a lot of people would do, you're a special lady.  I will pray for Anna and hope a miracle will happen for her.  Will she join us here at IHD? We would love to welcome her to our family.
You've had such a lot of bad news these last few days, this is for you  :cuddle;
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willowtreewren
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My two beautifull granddaughters

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« Reply #11 on: June 17, 2009, 07:35:44 AM »

This is such sad news, Marsha.

I feel so sorry that you are not able to help. You are a special, special person and your friend is fortunate to have you in her circle of people who care.

My thoughts are with you.

 :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Romona
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« Reply #12 on: June 17, 2009, 09:06:16 AM »

 :grouphug;
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willieandwinnie
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« Reply #13 on: June 22, 2009, 05:49:43 PM »

 :cuddle; Marsha, you have the biggest heart of anyone I know. I will continue to keep Anna in my thoughts and prayers  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MIbarra
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Stopping to smell the bluebonnets

« Reply #14 on: June 22, 2009, 05:54:17 PM »

So sad! I'll keep her in my prayers!
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Cadaver transplant April 29, 2007
Sunny
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Sunny

« Reply #15 on: June 22, 2009, 06:09:16 PM »

Get on the waiting list in Tennessee. Steve Jobs of Apple Computer just got a liver transplant there. The wait is far shorter.
Seriously though, my transplant coordinator tells me the wait for a kidney is so much shorter if you reside in other parts of the country.  Apparantly this hold very true for livers as well. I hold out hope for your friend.
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Sunny, 49 year old female
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pelagia
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« Reply #16 on: June 22, 2009, 06:36:45 PM »

 :grouphug; 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
angellady07
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« Reply #17 on: June 22, 2009, 11:06:35 PM »

 :grouphug;
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petey
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« Reply #18 on: June 23, 2009, 02:41:38 AM »

Last Thursday around noon, Anna got a call that a liver was available; the coordinator had her husband call all the family and friends.  Surgery was tentatively set for 9 p.m. that night.  We were all so excited and started many "Prayer Chains" for Anna and also for the donor.  However, when the liver was harvested, it was determined to be "unsuitable" for transplantation (we're not really sure what all happened to it -- not a lot of straight answers, and bless her husband's heart, he just doesn't know what questions to ask).  It was extremely disappointing.

Anna cannot go anywhere else to get on another list because she's so sick now (in ICU and cannot leave the hospital she's in).  It is a very, very sad situation.
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rose1999
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« Reply #19 on: June 23, 2009, 03:34:42 AM »

Oh Marsha how awful to hear about this latest set back, all we can do is pray for Anna.  Please let her know she is in people's thoughts worldwide.  Bless you and her  :grouphug;
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cherpep
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« Reply #20 on: June 23, 2009, 09:13:11 AM »

So sorry to hear the bad news.  She and her family are in my prayers.  I just said one right now.
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #21 on: June 23, 2009, 11:09:07 PM »

Thinking of her always
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Yvonne
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Yvonne

« Reply #22 on: June 23, 2009, 11:20:26 PM »

 :grouphug; We are thinking of her also
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
petey
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« Reply #23 on: July 07, 2009, 09:22:49 PM »

My friend Anna got her new liver last night/early this morning.  The surgery took almost 10 hours, as they had some problems with uncontrollable bleeding in her abdomen.  She was very, very sick and in ICU for the last couple of weeks.  She had two "almost" transplants in the last two weeks -- I guess because she was in such bad shape (both were determined "unsuitable" for transplantation when harvested).  Her uncle said that the docs had left the incision open because they fear more bleeding.  She is completely sedated and will be for a little while, her uncle said.  I'm so happy for her, and I'm a little scared, too.  I know it's a wonderful thing, but I think she was so extremely sick for the last little bit.  Of all the organs for my Marvin to be waiting for, we're glad it's a kidney.  You don't have to be literally on the verge of death to get a kidney.  Of course, Anna only waited 3 months for her liver, and Marvin's been waiting 14 years for his kidney.  But, if you consider the conditions Anna and Marvin were in while waiting, Marvin definitely comes out on top.
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Chris
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« Reply #24 on: July 07, 2009, 09:36:56 PM »

Just saw this thread tonight. Glad she got her transplant. I wonder if her kidneys will start working again once things settle down since in some circumstances this can occur.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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