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Author Topic: Nxsatge husband from Massachusetts  (Read 2012 times)
robla64
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« on: June 04, 2009, 07:32:47 PM »
After lurking on the board for 3 months, I finally decided to register and become a part of the community. 
My wife is a nxstage home hemo patient and has been at home for about 5 weeks after about 3 weeks of training.
We have a 10 and 11 year old boys who are now adjusted to the fact that mom is doing home hemo.
We live in Rehoboth MA which is in about 50 miles from Boston and 10 miles from Providence.

I just wanted to thank all the people in the nxstage users forum for their useful posts.  It has given us a great boost learning from other nxstage users.
So far she is feeling much better and has much more energy.  We have had a few bumps in the road, but things are getting to be more routine.
Thanks
Rob
« Last Edit: June 05, 2009, 05:12:33 AM by robla64 » Logged
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #1 on: June 04, 2009, 07:45:38 PM »
Hey, Rob,
When my husband started NxStage last year he said he felt 10 years younger. The trick is to find something (legal) that will help us care-givers feel that great!  :rofl;

Welcome to IHD, but if you've been lurking, you probably know us already. Now give us a chance to get ot know you better. Post often,

Visit for support, friendship and even some great humor.

 :welcomesign;

Aleta
PS, My daughter lives in Lenox on the other end of your state.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
rocker
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« Reply #2 on: June 04, 2009, 09:15:49 PM »
Welcome...

We got our date last week, we start hubby's home hemo training on July 13.  We would have started earlier, but the techs only used his new fistula twice before tearing it.  (Tech untaped the needle, then dropped the tube.  Yanked the needle through the vein.)

We have vowed that no tech will ever stick him again.
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Joe Paul
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« Reply #3 on: June 04, 2009, 10:53:10 PM »
Welcome Rob, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #4 on: June 05, 2009, 12:34:06 AM »
Welcome Rob.  Look forward to getting to know you better.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
monrein
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Might as well smile
« Reply #5 on: June 05, 2009, 04:04:11 AM »
 :welcomesign;  Glad you decided to join.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #6 on: June 05, 2009, 03:56:40 PM »
 :welcomesign;
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willieandwinnie
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« Reply #7 on: June 05, 2009, 04:48:20 PM »
 :welcomesign; Rob. Glad you came out of lurking. We are a great group. Hope you post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Rerun
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Going through life tied to a chair!
« Reply #8 on: June 05, 2009, 05:06:56 PM »
Rob, you are a good husband for coming on here and learning with your wife.  It is team work.  Best of luck to both of you and stay tuned to this site.

                                      :welcomesign;
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