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Author Topic: Got my chest catheter out today!  (Read 3268 times)
bette1
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« on: May 21, 2009, 02:32:32 PM »
I am so excited.   :yahoo; I went out and bought a new top to celebrate.  We are on the countdown to taking a shower and going swimming!  I can't believe I had that thing in for over a year!  Now I just need to buy some scar stuff to fade the spots on my chest.







EDITED:Fixed smiley tag error-kitkatz,Moderator
« Last Edit: May 22, 2009, 03:31:14 PM by kitkatz » Logged
Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
willowtreewren
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« Reply #1 on: May 21, 2009, 03:02:14 PM »
Yay!  :bandance; :cheer:

Congrats!  :clap;
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
maritza0486
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"Pple cant do evrythin but every1 can do somethin"
« Reply #2 on: May 21, 2009, 03:07:01 PM »
A MILLION CONGRATULATIONS TO YOU!!!  :clap;

I have a question about it though. I had a catheter placed for emergency dialysis 2 weeks ago and its not coming out for another month or so until my fistula matures but...how does it feel when it is removed? is it uncomfortable? painful? slightly weird? do the doctors numb you? put you to sleep? or is it really quick? Please let me know. Thanks.
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~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
RightSide
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« Reply #3 on: May 21, 2009, 05:14:09 PM »
Congratulations, Bette1!

Showers, swimming, you're really going to be living large now!
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mikey07840
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« Reply #4 on: May 21, 2009, 09:06:50 PM »
Quote from: maritza0486 on May 21, 2009, 03:07:01 PM
A MILLION CONGRATULATIONS TO YOU!!!  :clap;

I have a question about it though. I had a catheter placed for emergency dialysis 2 weeks ago and its not coming out for another month or so until my fistula matures but...how does it feel when it is removed? is it uncomfortable? painful? slightly weird? do the doctors numb you? put you to sleep? or is it really quick? Please let me know. Thanks.

When the doctor pulled my catheter, it felt weird, but there was no pain. I was awake for the procedure that was done in the hospital (In case of complications, of which there were none.)
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

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daybyday
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« Reply #5 on: May 21, 2009, 09:49:43 PM »
I got mine out also today after 4 long years! Shower here I come!!

As for it coming out, the lidocaine to numb the area was like beestings, the needle, but after that painless. Felt some tugging, as they needed to snip that velcro like cuff out of the skin, but didn't feel the tubing coming out at all.

A small bandage and no bleeding, and he said can shower in 24 hours. No pain after the numbness wore off either.

Good luck with yours  :2thumbsup;
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daybyday
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« Reply #6 on: May 21, 2009, 09:51:25 PM »
Oh, it was done in the doc's office, took less than 5 minutes.   :yahoo;
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bette1
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« Reply #7 on: May 22, 2009, 06:26:17 AM »
Don't worry.  The worse thing about the chest catheter coming out was the shots of numbing medicatiion.  Little pin pricks.  You can feel the doctor tugging on the catheter, but it doesn't hurt.  After I got my catheter out, I went shopping and cleaned my house.
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
maritza0486
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"Pple cant do evrythin but every1 can do somethin"
« Reply #8 on: May 22, 2009, 10:16:03 AM »
THANKS GUYS. THAT IS A TRUE RELIEF TO KNOW. MINE SHOULD COME OUT IN A MONTH OR SO BUT WHEN IT DOES, I WILL BE READY AND WILL BE IN THE SHOWER FOR AN HOUR! LOL...
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~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
Stacy Without An E
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« Reply #9 on: May 22, 2009, 11:54:13 AM »
Since my Fistulatoma (I invented a new word!) blew up my new access two weeks ago, we're finally back on 17 gauge needles on the new fistula, so I'll probably have my catheter out in roughly three weeks.

I've been taking showers regularly (I feel oogey if I don't) by using Ziploc bags cut in half with plastic tape around the edges.  The Tegaderm was costing too much, so sometimes you have to improvise.

I will be happy to wash that area fully again (I have tape rash from the daily gauze replacement) and swim this summer.

Thanks to everyone for the heads up on the catheter removal.  I'm not so fearful of the procedure now.
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

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Dialysis.  Two needles.  One machine.  No compassion.
kitkatz
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« Reply #10 on: May 22, 2009, 03:31:57 PM »
SHOWERS!  :yahoo;
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willieandwinnie
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« Reply #11 on: May 22, 2009, 03:34:29 PM »
 :yahoo; bette. You'll use up all the hot water. Enjoy.  :cuddle;
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hurlock1
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« Reply #12 on: May 23, 2009, 08:59:14 AM »
Quote from: bette1 on May 21, 2009, 02:32:32 PM
I am so excited.   :yahoo; I went out and bought a new top to celebrate.  We are on the countdown to taking a shower and going swimming!  I can't believe I had that thing in for over a year!  Now I just need to buy some scar stuff to fade the spots on my chest.
EDITED:Fixed smiley tag error-kitkatz,Moderator

I waited all summer for them to take mine out, (last year) Couldn't wait! So I could take my grand kids swimming, But Alas, the pool was closed before mine was out. I don't think that it left a scar big enough to worry about special creams or anything. BUT! The pool opens on Memorial Day, which is this  Monday. It may even be memorial day weekend, which is great because that means it's open today! I hated my catheter(s). The first one, I pulled out in my sleep, probably put my arm on it and turned over. I woke up and there it was laying on my bed. The second one they put just sticking out of the side of my neck! (It was temporary. or more temporary) There I was, walking around with this thing sticking out of my neck. ("Hey mister, what's that thing sticking out of your neck?) It only lasted a week and a half. The third one was below the neckline. All three were painful, sort of a constant dull ache. I remember seeing the other's fistulas, all blown up and thinking that I wanted just to keep my catheter rather than risk having an anurism (sp?) But now that the catheter is gone and I'm using the fistula, I'm happy snappy! It's a great life we live. Thank God for everything. . . even the bad stuff. There's somebody out out there, (Maybe in the next house over) that's got a whole lot worse than I do. NO CATHETER, let's go swimmin'!
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dwcrawford
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Getting the heck out of town.
« Reply #13 on: May 23, 2009, 09:22:00 AM »
I want a tub bath... a long, luxurious tub bath maybe even with bubbles and a geisha to attend to my every need.
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MandaMe1986
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« Reply #14 on: May 23, 2009, 10:51:41 AM »
Haha Wow dan, is that what you dream of?

And yey for the cath comming out!  :yahoo;
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