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Author Topic: Please kindly read :) I'm new here.  (Read 6134 times)
Maxridex
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« on: May 01, 2009, 01:33:34 PM »
Hi all,

My story that I wrote 2 years ago is below if you want to read it. I'm new here and I hope I can know someone and I can also talk and share with them my life and hopefully they will share their life. Is there anyone about the same age as me who is on dialysis ? I'm 16 years old and I live in London. My msn is matthew_as123@hotmail.com, feel free to add me. '' Life is hard but we have to always look on the bright side ;) I'm a optimistic person. Nice to see you all. The story is a bit old but I'm on dialysis four days a week for four hours. I miss alot of school and I got many bad/good days... however I will never give up because I belive I can find a kidney for me to have a transplant. So talk to you all on forum :)

-Matthew


In 22nd September 1992, There was a boy who born in Thailand to a happy family. He grew up with many diseases but he was very happy that his parents were always supporting him. At 4 years old he discovered that he got a heart problems and needed to go to Australia to have an open heart sugery. He wasn't scared and after the surgery he feels much better. At 6 years old he went to England and studied a primary school called Ashburnham Primary School, after year he moved back to Hong Kong. He studied there for 6 years and unlucky discovers that he got another disease called Renal failure. He was put on dialysis for every single day except Sunday for 4 hours. At the age 15 he was admitted to a new local state secondary school called Hurlingham and chelsea and he remembers the first day at school he was organized to a form called 10 DO. He was a very quiet boy and the new students he met in the form were very different to his friends when he were young.
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'' Never give up '' & '' You will never walk alone ! ''

* ARSENAL FC for life *
* AVRIL LAVIGNE FAN *

Feel free to contact me on my msn.
matthew_as123@hotmail.com
cherpep
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« Reply #1 on: May 01, 2009, 01:40:42 PM »
Hi Matthew!  Welcome to this site.  I'm not the same age as you, I actually have a son about the same age.  But, I'm a good listener.  Many of us are on this site.  Feel free to post whenever you like, and you'll be surprised at how many replies you'll receive -- all very willing to listen, chat, help, joke - whatever you need.  You also might want to to check out the Chat room - it's a lot of fun with some great people.  Generally, people start arriving in the room during the evening. 

Welcome!  Welcome!  Welcome!!
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willieandwinnie
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« Reply #2 on: May 01, 2009, 02:01:57 PM »
 :welcomesign; Matthew. It is so hard to hear about someone so young going through so much. Hang around with us. Everyone here understands kidney disease and the effects it has on your life, be it young or older. We are glad you found us and we hope to hear more from you. I'll say a prayer that you get that kidney soon.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Maxridex
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« Reply #3 on: May 01, 2009, 02:15:29 PM »
Thanks alot guys. I really need a place that there is people who understands me. You guys are so welcoming and I'm so grateful for that. Here's a song for all of you I hope you like it :)

http://www.youtube.com/watch?v=DhnxdL_pJhc

People always says I'm different but I don't want to be different just because I have so much disease in my life. I want to be in this community and I believe we can build a big dailysis community from all over the world.

I really good at giving songs to the right time, right place and right situation. I can give you songs to any kind of problem you have. I will make you as joyful as possible.

P.s Listen to my song and you will know what I ment ;)
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'' Never give up '' & '' You will never walk alone ! ''

* ARSENAL FC for life *
* AVRIL LAVIGNE FAN *

Feel free to contact me on my msn.
matthew_as123@hotmail.com
twirl
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« Reply #4 on: May 01, 2009, 02:16:38 PM »
hey from Texas  :2thumbsup;
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twirl
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« Reply #5 on: May 01, 2009, 02:18:14 PM »
p.s.

love the song   :guitar:
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willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: May 01, 2009, 02:22:06 PM »
Hi, Matthew!  :welcomesign;

You have come to a great, compassionate community. Thanks for the song! Loved it.

You will find all sorts of folks here with all kinds of stories. Best of all, we are great listeners.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Zach
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"Still crazy after all these years."
« Reply #7 on: May 01, 2009, 02:30:26 PM »
Welcome to our community!

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
G-Ma
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« Reply #8 on: May 01, 2009, 03:05:35 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kimcanada
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WWW
« Reply #9 on: May 01, 2009, 03:10:15 PM »
 :welcomesign; Matt

I hope you post often, you are among people who will understand you  :)
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paul.karen
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« Reply #10 on: May 01, 2009, 03:18:31 PM »
 :waving;  Matthew

Glad you found us here.
Nice to see your positive outlook.
See you around.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
lola
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I can fly!!!
« Reply #11 on: May 01, 2009, 03:32:39 PM »
 :welcomesign; Matt :grouphug; :grouphug;
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www.caringbridge.org/visit/ottomachado
monrein
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Might as well smile
« Reply #12 on: May 01, 2009, 04:06:37 PM »
Hey Matt.  I'm so glad you found us here and I hope that you'll post often.  I loved the song and hope you'll put us on to many more in the future.  I wish you weren't having to deal with all the illness rubbish but I know that your attitude towards life will make it a bit easier...although any form of the word easy doesn't fit very well in this situation.
Please know that you now have a whole bunch of new friends from all over the world and we are very willing to share this journey with you even though we aren't close to your age.  I myself am 55 although I have had kidney disease since I was a baby.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MandaMe1986
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« Reply #13 on: May 01, 2009, 06:09:38 PM »
Hi Matthew I am gald you found this site. It really is a wonderful site.  I am 22 about to be 23 later this month.  So I am a little older then you but not by much. I have been sick for 9 years so I know what it is like. If you never need to talk I am here. 

And thanks for the song. I love music so much, there is a perfect song for everything.  So thanks.

Hope to see you around Matt

~Amanda Marie
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
glitter
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« Reply #14 on: May 01, 2009, 07:36:06 PM »
 :flower; :flower;  hello....
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
rookiegirl
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« Reply #15 on: May 01, 2009, 07:38:51 PM »
Matthew - Welcome to IHD.  I'm so glad you found us and we look forward to all your posts.  You are an amazing young man to deal with what you do each day.  Continue to be strong and never give up.  There is always Hope and it will happen for you.  Believe me, because it happened to me in less than a year being on the transplant list.  Are you currently on a transplant list?

Take care,
Rookiegirl (aka Mary)
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
paris
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« Reply #16 on: May 01, 2009, 07:46:23 PM »
Matthew, you have found a very welcoming group who understand how you feel.   You have a wonderful attitude and I look forward to reading more of your posts.   You will make many friends here.  We all really care about each other and give each other great support.   I am glad you joined us.  Welcome to our family   :grouphug;





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Joe Paul
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« Reply #17 on: May 02, 2009, 03:03:08 AM »
Welcome Matthew, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kellyt
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« Reply #18 on: May 02, 2009, 08:49:46 AM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
dwcrawford
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Getting the heck out of town.
« Reply #19 on: May 02, 2009, 01:12:56 PM »
Hey Matthes, I'm 68 years old and only have renal failure for a couple of months.  Just started dialysis.  I'm here feeling sorry for myself and your sweet post made me tear up.  I'm so ashamed when I feel sorry for me when there are so many sweet kids like yourself living this with a positive attitude.  Please continue to post (and send songs) as you inspired me.

Dan

PS:  Not many people for you to talk to your age.  Same here, except backwards.  Not many people around this old.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
willowtreewren
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My two beautifull granddaughters

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« Reply #20 on: May 02, 2009, 01:15:46 PM »
Dan, Dan.
You are 68 years YOUNG!!!!! :2thumbsup; And you have a tender heart!  :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
dwcrawford
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Getting the heck out of town.
« Reply #21 on: May 02, 2009, 01:30:54 PM »
its true that I have nothing to talk to the old guys in dialysis about.... besides, they all just sleep.  I end up talking to the young techs...

Matthew just ripped my heart out though.  Makes me feel guilty when I sit here feeling sorry for myself.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
monrein
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Might as well smile
« Reply #22 on: May 02, 2009, 03:34:40 PM »
Old or young, left or right, white or black or anything in between, male or female, experienced or new...what we all have in common is so much greater than any of our differences...that's what makes this board a very special place, for me at any rate.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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Posts: 6928


My two beautifull granddaughters

WWW
« Reply #23 on: May 03, 2009, 06:42:46 AM »
Right on, Monrein! :yahoo;

And I love your new picture! :2thumbsup;
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
TwistedKitten
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I refuse to let the kidney disease define who I am
« Reply #24 on: May 08, 2009, 01:28:18 AM »
Hi Matthew  :welcomesign; to IHD.

Like MandaMe1986 I'm a bit older than u. 24 this july.
I started dialysis when I was 19, but I was diagnosed with a kidney disease when I was 2. It's a tough thing to live with at any age. And we all have good/bad days. That's the great thing about this site. everyone here understands that and all the rants. we've all been there. but welcome to the site and I hope you'll take full advantage of it. i wish i'd found this site years ago. it's a big help. i know for me it makes me feel not so alone. in any case if you ever need to just bitch and otherwise moan.  :rofl; feel free to add me to msn. withered_rose69@hellokitty.com

hope you have more good days than bad.

Sherri
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~I'm staring out into the night Trying to hide the pain~ Home by Chris Daughtry

~Life has it's ups and downs, its twists and turns. It's how we look at it and turn those things around, now that's the key thing~ Kevin Sharp

~Life isn't about the amount of breaths you take, but the moments that take your breath away~

~Think of each day as a special gift, and unwrap it gratefully~

~My meow is just too unorthodox for these kittens~
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