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keefbeer
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« on: April 24, 2009, 12:39:45 PM »
Found this site a couple of nights ago will doing one of my 3x5hrs midnight to 5.00am dialysis sessions. My unit is based in the North of England and I have been a patient since the eighties, along with my grandfather, father, brother and niece.A couple of these are no longer around
I am 50 years old and married with children and grandchildren, tried to maintain a career but gave up and retired a couple of years ago. I spend my day sleeping/reading papers/PC and staring out of the window like Grandpa Simpson, all in all not too bad.
While reading through this site it is obvious that regardless of which country we live in the same problems and gripes with Dialysis seem to crop up, but it is still better than being dead.
My unit has 260 patients on HD over 4  shifts 24 hours a days 6 days a week, the Hospital is one of the biggest transplant centres in Europe with and average wait of just less than 3 years. My father waited on the list for 11 years my brother 2 weeks! me 4 years and counting.
I am off to the Unit in a couple of hours but thankfully we have individual flat screen cable TV and the Hospital now allow the use of mobile phones and access to their Wi-Fi network for laptops so time does not drag too much.   
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kimcanada
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WWW
« Reply #1 on: April 24, 2009, 12:42:57 PM »
 :welcomesign; Keefbeer

It will be very interesting to hear about dialysis in such a huge unit, I go to a place that has only 16 patients
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Tinah1968
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ME
« Reply #2 on: April 24, 2009, 12:48:19 PM »
 :welcomesign;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
paris
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« Reply #3 on: April 24, 2009, 12:50:20 PM »
 :welcomesign;  Keefbeer, we are glad you found us!  You are right, we are all united no matter where we live and we all understand. Your family could write a book about kidney disease!  I am sorry so many have dealt with it.  Post often and share more of you adventures with us.  I hope your turn for a kidney comes soon.  Looking forward to hearing more from you.   :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MandaMe1986
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« Reply #4 on: April 24, 2009, 12:50:34 PM »
Hi Keefbeer glad you found us.   :welcomesign;  Hope to see you around.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
paul.karen
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« Reply #5 on: April 24, 2009, 12:56:23 PM »
 :waving;  Hey Keefbeer

Wow that is a pretty big and nice sounding unit/center you have over there.

Glad you found us here at IHD.  Hope to see yuo post often on many threads.
Sorry you had to retire early but you seem ok with it :thumbup;.

See you around
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: April 24, 2009, 01:05:47 PM »
Welcome, welcome! :welcomesign;

My husband's family also has a slew of kidney problems: his dad, sister and our daughter.

Your center sounds very interesting. I hope the care you receive there is as good as the amenities!  :2thumbsup;

Post often.  :waving;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Zach
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"Still crazy after all these years."
« Reply #7 on: April 24, 2009, 01:17:47 PM »
Welcome to our community!
Like you, I've been on hemodialysis for a little while.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Joe Paul
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« Reply #8 on: April 24, 2009, 09:08:00 PM »
Welcome Keefbeer, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
TeenHatesDialysis
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« Reply #9 on: April 24, 2009, 10:10:20 PM »
 :welcomesign; keefbeer

4 years is a long time. I hope that you get your kidney soon!!! Since your brother only had to wait 2 weeks for a kidney, I think that he should have to clean your house and your car every week until you get your kidney! ;D

I am glad that you joined the group.  :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
willieandwinnie
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« Reply #10 on: April 25, 2009, 03:30:10 AM »
 :welcomesign; keefbeer. We are so glad that you found us. This is an amazing group of folks that have tons of information and even more support when you need a good rant. Please post often and check out some of the older threads as they contain all kinds of stuff. Hope to hear from you soon.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Romona
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« Reply #11 on: April 25, 2009, 08:53:23 PM »
 :welcomesign;
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kristina
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« Reply #12 on: April 26, 2009, 01:00:30 AM »
Hallo, keefbeer, what is the name of the centre and where is it? Thanks.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
G-Ma
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« Reply #13 on: April 26, 2009, 01:10:16 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kellyt
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« Reply #14 on: April 26, 2009, 06:36:20 AM »
This disease has brought us all together and at least I can't complain about that.  :)

Welcome to the Family.  It sounds like you're doing well.  I, too, hope you get "the call" soon!  I also look forward to hearing more about you and your experiences on dialysis.    :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Ang
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« Reply #15 on: April 28, 2009, 01:02:31 AM »
 :welcomesign;  KB
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live  life  to  the  full  and you won't  die  wondering
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