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Author Topic: okarol meets Zach and meinuk in New York!  (Read 9456 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: April 18, 2009, 06:11:38 PM »

What a treat! Dinner with Zach and Anna in New York - what a very special meeting for me with two really great IHD members!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #1 on: April 18, 2009, 06:27:04 PM »
How fun! That is a great picture of you guys too!!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
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www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Romona
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« Reply #2 on: April 18, 2009, 06:27:38 PM »
The picture is great!
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willieandwinnie
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« Reply #3 on: April 18, 2009, 06:51:53 PM »
 :yahoo; That is so great.  :cheer:
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"I know there's nothing to it, but I want to know what it is there's nothing to"
charee
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« Reply #4 on: April 18, 2009, 06:57:54 PM »
Wow thats so cool :clap;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Wenchie58
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Always carrying the big silly grin!
« Reply #5 on: April 18, 2009, 06:58:58 PM »
 :thumbup;  AWESOME!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Sluff
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« Reply #6 on: April 18, 2009, 07:02:28 PM »
Pure awesomeness!!
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Chris
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« Reply #7 on: April 18, 2009, 07:25:11 PM »
And it looks like Zach has the bar going on in that pic too with those drinks  :rofl;

Great photo.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Meinuk
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« Reply #8 on: April 18, 2009, 07:45:50 PM »
Right back at you Karol.  You brought some beautiful weather with you!  So, where are we meeting next month for dinner?  After all, this is becoming a habit!  And Zach - it is always a great thing to speak with the person behind the posts!
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
kitkatz
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« Reply #9 on: April 18, 2009, 07:57:01 PM »
Cool!  You look good!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #10 on: April 18, 2009, 08:43:09 PM »
Great picture!  I bet you three had a marvelous time together.  Thanks for sharing   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Zach
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"Still crazy after all these years."
« Reply #11 on: April 18, 2009, 09:26:23 PM »
More pizza!
 :beer1;

Boy, do I look tired.  :(
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
thegrammalady
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« Reply #12 on: April 18, 2009, 09:27:36 PM »
i love it when members get together.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Wattle
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« Reply #13 on: April 18, 2009, 09:31:04 PM »
 :clap;

I hope you had a great dinner.  :beer1;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
pelagia
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« Reply #14 on: April 19, 2009, 06:14:03 AM »
FANTASTIC!

Quote from: Zach on April 18, 2009, 09:26:23 PM
Boy, do I look tired.  :(

It's the black and white photo after a long winter....
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kimcanada
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« Reply #15 on: April 19, 2009, 07:30:29 AM »
You are supposed to look tired, you have no kidneys!   >:D

I love the picture and its awesome that you all got together!
 :cuddle;
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kellyt
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« Reply #16 on: April 19, 2009, 07:45:35 AM »
 :clap;    What a great looking trio!  :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #17 on: April 19, 2009, 08:21:11 AM »

Zach you look great as always! Yes meinuk - dinner last month in LA and NY this month - how about London next??
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #18 on: April 19, 2009, 08:52:49 AM »
I'm jealous!  I wish I would have been there!  Good food, good company!

You all  look wonderful.  Meinuk doesn't look like she has a transplant!  No moon face at all.  You must be off all the Prednisone.  Looking good!!!

                    :grouphug;
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Meinuk
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« Reply #19 on: April 19, 2009, 09:57:13 AM »
Thanks Rerun.  No moon face, but I have gained 15 lbs, and no matter how much time I do at the gym, it isn't budging.  (the pizza didn't help - but it was GREAT)  We did a rapid taper on the prednisone.  I have to be on it because my boy kidney was CMV positive - but I am only on 5mg daily - so real effects.

Rerun, I quote you all the time about Nocturnal.  From the last picture I saw, you are looking good too!

Now my main goal is to get this weight off.  KitKatz, you have been an inspiration - The three of us were chatting away about what a great example you have been.  (as I was eating my second ok maybe third slice (at least it was thin crust!!))
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Sluff
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« Reply #20 on: April 19, 2009, 11:56:36 AM »
Wish I was there Meinuk you were going to take me for pizza..remember?   ;)
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Meinuk
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« Reply #21 on: April 19, 2009, 12:01:15 PM »
Quote from: Sluff on April 19, 2009, 11:56:36 AM
Wish I was there Meinuk you were going to take me for pizza..remember?   ;)

That offer still stands!
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Sluff
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« Reply #22 on: April 19, 2009, 12:13:07 PM »
yummy yummy  but I like that thick chewy crust.  ;)
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monrein
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Might as well smile
« Reply #23 on: April 19, 2009, 12:47:35 PM »
That looks like a fun get together.  I'd love to meet all three of you...and of course all the other IHDers as well.   :thumbup;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Joe Paul
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« Reply #24 on: April 19, 2009, 02:46:06 PM »
Great picture, glad you all could meet  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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