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Author Topic: Somewhat new....  (Read 3843 times)
gotalife
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« on: April 13, 2009, 12:05:24 AM »
I hadn't done this as of yet...here is a short version of an introduction...about time I got to this.

Diagnosed at age 11, 1974, possible cause, strep.  Glomerulonephritis.
Hemodialysis at age 15, 1978, unexpectedly.
Living donor transplant (father's), 1978, failed after six weeks, transplant removed, returned to hemo.
Deceased donor transplant, 1981, lasted 18 years to the day, returned to treatment, hemodialysis, 1999 transplant removed.
Home Nocturnal Hemodialysis, 2000, then to In-center Nocturnal Hemodialysis to present.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: April 13, 2009, 12:17:46 AM »

Hey getlife - I was hoping you'd give us an introduction - good to hear from you (better late than never!)  :waving;

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #2 on: April 13, 2009, 04:47:29 AM »
 :welcomesign;  I'm sorry you've had so much experience with ESRD and transplants but I'm glad you're here so we can benefit from some of those experiences.  Hopefully you'll get support and information from us also.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #3 on: April 13, 2009, 04:53:21 AM »
 :welcomesign; getlife. You have been through a lot. We are so glad that you found us and we are sure you have lots to contribute. This is a great group for support and information and we hope you post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Sluff
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« Reply #4 on: April 13, 2009, 05:57:23 AM »
Welcome to ihatedialysis.com getlife,

Good to see you here, what took you so long? We don't bite, not too hard anyway.. :) Feel free to post as often as you want, ask questions or give advice.

Sluff/Admin
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Zach
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"Still crazy after all these years."
« Reply #5 on: April 13, 2009, 06:29:07 AM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
paul.karen
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« Reply #6 on: April 13, 2009, 06:36:07 AM »
Getlife

Glad to have you here.  Hope to see you post on many of the threads.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
G-Ma
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« Reply #7 on: April 13, 2009, 06:50:48 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pklipe57
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« Reply #8 on: April 13, 2009, 06:56:27 AM »
 :welcomesign; to IHD.
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peleroja
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I have 16 hats, all the same style!
« Reply #9 on: April 13, 2009, 08:04:25 AM »
Hey, a late intro is better than not ever getting to know you at all!  Welcome.
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paris
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« Reply #10 on: April 13, 2009, 08:21:01 AM »
 :welcomesign;  Good to read your introduction.  But, I am sorry for your lifelong experiences with kidney failure.  I think you will have lots so share with us.  We are glad you are here and glad you joined Ihatedialysis.com.   :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
TeenHatesDialysis
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« Reply #11 on: April 13, 2009, 11:14:30 AM »
 :welcomesign; GetLife,

It must have been very difficult being 15 and being on dialysis and then having your dad's kidney fail within 6 weeks.  You must be a very strong person with a positive outlook to get through that! My daughter will be 15 this month and has been on dialysis for 16 months, but has felt crappy for about 6 years.  Her dad and Aunt and several others have been rejected as donors.  I am blood type A and she is B so I can't donate, but my daughter is also a very strong person and we are hoping to find her a kidney this year.  Any advice on staying positive throughout those terrible teens years while dealing with a chronic illness is greatly appreciated. 

I hope that you get a lifetime kidney soon. Thanks for joining the group. :grouphug;

I look forward to hearing more from you.

Susan, mom of Jaclyn
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Joe Paul
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« Reply #12 on: April 13, 2009, 11:37:55 AM »
Welcome getlife, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kellyt
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« Reply #13 on: April 13, 2009, 12:58:27 PM »
 :waving;


Looks like you have lots to offer this fabulous site!  I look forward to hearing more about you and your experiences.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
rookiegirl
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« Reply #14 on: April 13, 2009, 02:24:17 PM »
Getlife  :welcomesign; to the forum.  I can't wait to hear more of your experiences with dialysis and transplantation.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Romona
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« Reply #15 on: April 13, 2009, 04:38:43 PM »
 :welcomesign;
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