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Author Topic: Live vs Cadaver kidney  (Read 5437 times)
aintnorock
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« on: April 07, 2009, 08:14:40 AM »

A friend of mine is currently being evaluated as a potential donor.  He's in Colorado, I'm in Louisiana.

The process seems like it is taking forever, just to see if we're a match.  If he is NOT a match, I'm debating whether to try to find another donor and do a swap or try to put together a chain.  But my concern is that if it takes this long just for 1 potential donor, how long is it going to take to put together a swap or a chain?  I'm running out of paid leave, and I'm at the top of the donor list, literally at the top - I've been called 4 times - twice the kidneys were no good, the last 2 because my friend had volunteered to donate.  So, I'm inactive now until our evaluation is finished.

I'm not sure I want to go through all the hassle again and again to try and get a swap or chain, plus, I don't want to put my friend through this again.

What are your thoughts about this?  I'm 61, just had a triple by-pass, and I'm not in the best of health anyway - my failed kidneys just exasperate the situation.  And yes, I'm on homo-dialysis.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: April 07, 2009, 12:52:37 PM »

Why did they put you on inactive? I have heard more than once that a patient was in the process of evaluation for a living donor when a call came in for a deceased donor kidney, and they were able to transplant that one.
« Last Edit: April 07, 2009, 04:55:46 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wallyz
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« Reply #2 on: April 07, 2009, 04:29:54 PM »

  And yes, I'm on homo-dialysis.

Carl, I don't even want to know what that is.


« Last Edit: April 07, 2009, 04:47:08 PM by Wallyz » Logged
MIbarra
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« Reply #3 on: April 07, 2009, 04:37:51 PM »

  And yes, I'm on homo-dialysis.

Carl, I don't even want to know what that us.

LOL LOL LOL      I agree Wallyz...

If it were me, and this is just my opinion, I would take the cadaver kidney if it was a good match for me and the person was pretty much healthy.
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Cadaver transplant April 29, 2007
okarol
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« Reply #4 on: April 07, 2009, 04:56:55 PM »


And to prove my point - here's one on Living Donors Online http://www.livingdonorsonline.org/dcforum/DCForumID7/6210.html  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
petey
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« Reply #5 on: April 07, 2009, 06:01:49 PM »

While I was being evaluated (and, Lord, the tests they run and run and re-run on a potential living donor), the transplant team told us that if Marvin got a call off the UNOS list during that time, that would take precedence over my being his donor -- even if the call came minutes before my surgery began.  We understood that they would rather take a cadaveric donor than a live one, and we were okay with that.  The "call" didn't come, and I was Marvin's living donor.  However, Marvin was NOT placed on "inactive" during my evaluation.
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paris
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« Reply #6 on: April 09, 2009, 06:43:10 PM »

I have stayed on the active list when my potential donors were being tested.  Talk to your transplant co-ordinator and see what your status is.  The transplant team wants you to get a kidney and would tell you to take the cadaver if it is available first.  Could you be inactive because of recent triple bypass?  Sounds like there is more going on than just waiting for the evaluations to be finished.  Hope you find an answer.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
aintnorock
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« Reply #7 on: June 23, 2009, 09:17:54 AM »

I requested that I be placed on the inactive list, as I wanted the live donor, if possible.  But, as you have seen elsewhere, that didn't happen, so I'm back on the cadver list.


Homo-dialysis is when, {oh never mind} :-*
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Romona
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« Reply #8 on: June 23, 2009, 01:29:57 PM »

I got called while I was testing donors.
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Sunny
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Sunny

« Reply #9 on: June 23, 2009, 03:15:13 PM »

I recommend staying on the cadaver list even while testing live donors. I see no harm in keeping activated on the cadaver list as you never know when a perfect match might come along.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
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