15yearstolong
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« on: September 10, 2006, 04:17:15 PM » |
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Hi all, Like you all I have my own story to tell so here goes. Last night I was talking to my partner about how dialysis sucks and I wish there was somewhere I could go to vent which led me to here (My partner takes it personally when I complain as he is unable to donate me a kidney as he is an A- and I am an O+ slight problem. He seem s to think I blame him for not being a match) Anyway sorry about the rant. Back to me and my beginning......  Yay you shout I have been a dialysis patient since I was 5 I am now 24 (almost 25). They new when I was born I was going to have stuffed kidneys due to congenital nuphrotic syndrome. I was on CAPD from 1986 till 1989 then I got a transplant which lasted for 3 years. Then I was back on CAPD From 1991 till 1998 (During which time I became a teenager who decided she didn't want to be a dialysis patient and bags interfered with my life, so I stopped doing the lunch time one)So from there I started doing in centre Heamo which suited me better and meant I got at least a 24 hour break from being a dialysis person. I now am doing Home care Heamo in Christchurch. My partner is well trained in setting up my machine and helping if my BP drops to low and it has only taken me 5 years to train him....not bad really. Anyway thats me in a nutshell  |
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kevno
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« Reply #1 on: September 10, 2006, 04:49:19 PM » |
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Hi Karla, You have found the right place to have a rant  You go for it, will are all here to help each other or just to see what you have to say. If you need any shoulder to lean on, this site will always be here to listen  |
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But this little saying keeps me going!!
"RENAL PATIENTS NEVER GIVE UP!!!!!!"
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Sluff
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« Reply #2 on: September 10, 2006, 05:15:39 PM » |
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Welcome Karla
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Rerun
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« Reply #3 on: September 10, 2006, 06:16:52 PM » |
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Karla, welcome to the site. I read one of your other posts and was confused about your term "partner" but this clears things up (Thank GOD). Okay - Wheeww Sorry, in California it means something else. (hmmm I don't see an appropriate smiley) I hope you like this site. There is a lot to read. I'm glad you got a 3 year break and I hope you get another one soon if that is what you want. Tell your "partner" to join. What a guy......  |
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15yearstolong
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« Reply #4 on: September 10, 2006, 06:19:08 PM » |
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Karla, welcome to the site. I read one of your other posts and was confused about your term "partner" but this clears things up (Thank GOD). Okay - Wheeww Sorry, in California it means something else. (hmmm I don't see an appropriate smiley)
I hope you like this site. There is a lot to read. I'm glad you got a 3 year break and I hope you get another one soon if that is what you want. Tell your "partner" to join. What a guy......
Sorry this may not be the appropriate question for this string but what does Partner mean to you? I told him to join but is more intrested in reading the latest Linux upgrade than talking more about renal failure |
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Rerun
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« Reply #5 on: September 10, 2006, 06:27:04 PM » |
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Here "Partner" usually means Gay.
My friend, we'll call her Sally, just moved here. When she was moving down she needed a hotel, so she called one and asked if the beds were firm because her partner had a bad back. The manager asked if her partner "was a larger woman..." Her partner's name is FRED.
Not that there's anything wrong with that~
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goofynina
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« Reply #6 on: September 10, 2006, 06:32:35 PM » |
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Hellooooo Karla, Welcome to what i consider to be not only the best website regarding this matter, we are an awesome support group as well. Please do not hesitate to ask questions and post comments and concerns of your own. We look forward to hearing more from you.
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Zach
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« Reply #7 on: September 10, 2006, 08:50:10 PM » |
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Hi Karla. Glad to have you here. We look forward to your posts. |
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment. I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology." |
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Fox_nc
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« Reply #8 on: September 10, 2006, 09:28:44 PM » |
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I'm fairly new too, so welcome may not be right coming from me, but definitely HELLO! I'm 28 and have also had kidney problems since I was very young, so I understand fully being a teenager and wanting to be someone other than "the girl with the kidney problems" Hope to see many posts from us both
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
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15yearstolong
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Posts: 29
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« Reply #9 on: September 10, 2006, 09:31:08 PM » |
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Hey if you have any questions from me personally just ask anytime. Its just nice to have people who have growen up with kidney failure who understand |
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Fox_nc
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« Reply #10 on: September 10, 2006, 10:26:03 PM » |
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Nevermind
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« Last Edit: September 10, 2006, 11:05:59 PM by Fox_nc »
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
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Rerun
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« Reply #11 on: September 10, 2006, 10:39:12 PM » |
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FOX - This is "Introduction" so right now you are OFF Topic. Please click on her name and you can then send her a PM (Personal Message). Or go to "Off Topic" and start a new topic called something like "Don't Look My Age".
Rerun - Moderator
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Fox_nc
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« Reply #12 on: September 10, 2006, 11:05:12 PM » |
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I'm sorry.
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
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Epoman
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« Reply #13 on: September 10, 2006, 11:17:46 PM » |
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I'm sorry.
No reason to be sorry Fox, Rerun is just trying to keep order. You didn't have to delete your thread. We just try to keep this section limited to a members "Introduction" and the other members welcoming them. You are welcome to create a new thread in the proper section, or you are welcome to send a PM to a member. - Epoman Owner/Admin |
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- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.
Please help us advertise, post our link to other dialysis message boards. You
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Joe Paul
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« Reply #14 on: September 11, 2006, 01:48:10 AM » |
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Welcome Karla, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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mallory
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« Reply #16 on: September 12, 2006, 09:57:57 AM » |
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Welcome, Karla, glad to have you here. I hope everything goes well for you, you've found a great site for support and help. And it sounds like you'll have a lot to add, also. Keep posting and again, welcome!
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
- Jerry Garcia
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