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Author Topic: Bringing back Things to do While on Dialysis Thread  (Read 35283 times)
kitkatz
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« on: September 09, 2006, 09:32:57 PM »

The former thread was locked because the discussion got off topic.   So I am bringing it back! Please stay on topic.

Put IHD.com up on your computer and read the jokes and funny things to the techs, nurses and patients.

Suck your thumb.

Whistle a tune slightly off key throughout the four hours.

Pretend you are sleeping.

Make up a fantasy life while your eyes are closed.  Live there while you dialyze each day.  Call techs and nurses by names you gave them in your fantasy ( I would not put ANY of them in my fantasy personally, but...)

Make the doctor sit down and really talk to you face to face.

Invent something. 

Fill out your tax forms.

Ask a local teacher if you can grade papers for them while you are on dialysis. You got three or four hours to kill.

Be difficult.

Smile. It will drive them nuts.

Put the volume up through your headphones so loud everyone else can hear it.  Then complain about the noise level.

Be a superhero. Act like one when you come in. Wear your blanket on your shoulders as a cape.  Speak in bold terms.  Then assume your mild mannered self as you sit down in your chair.  As you leave the center assume your superhero identity with your cape thrown behind you. Storm out of the center through the door (No windows. Remember you are only a superhero in your own mind now).


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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kevno
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« Reply #1 on: September 10, 2006, 04:06:45 PM »

Sneak over to a patients machine that you do not like and turn the UF from 2kg to 22kg.  :2thumbsup;

Keep clamping your lines so the machine keep alarming, the Techs have no idea what is happening ;D

Play darts with the fistula needles. Then put the needles back in the packets ::)

Sit in Reruns Chair  :o might be something to do, but you will end up in ICU for a couple of weeks :clap;



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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
Sara
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« Reply #2 on: September 10, 2006, 05:57:41 PM »

Take off your shoes and ask the tech for a pedicure.   ;)
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
Rerun
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Going through life tied to a chair!

« Reply #3 on: September 10, 2006, 06:00:57 PM »

Tell Kevno that he has to use 12 gage needles today and forever!   :clap;
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kevno
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« Reply #4 on: September 12, 2006, 01:26:30 PM »

:thumbdown; Got one needle in today. Sister Shirley warned me when she got back off holiday she would try. I did think she would forget, I have been very quiet, but it did not work :-\ The Needle worked Ok, a red needle 17  gage! With a bit of luck on Thursday I will grab another nurse to put me on, so my lines will be used :) Thats one thing to do when on the unit HIDE FROM SISTER SHIRLEY :2thumbsup; Thing is I am so unlucky she would always find me >:(
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
kitkatz
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« Reply #5 on: September 12, 2006, 03:38:24 PM »

Play hide and seek with the nurses before you go an dialysis.  What fun Kevno!

Play peekaboo with the patient across the way from you.

Learn sign language and pretend the patient across from you understand what you are signing.

Announce everytime you arrive in the unit (wearing sunglasses makes this even better.): "Well here I am! Where is my paparazzi?"  Throw kisses to the crowd as you head for your chair.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bajanne
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« Reply #6 on: September 12, 2006, 04:26:45 PM »

Kitkatz, sounds like they would be soon giving us dialysis in a padded room!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kitkatz
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« Reply #7 on: September 12, 2006, 04:34:00 PM »

Some days all I want to do is bounce off of the walls! Hey another thing to do while on dialysis!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kevno
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« Reply #8 on: September 13, 2006, 10:36:05 AM »

I will be playing hide and seek on Thursday. Only trouble is I was never any good at it >:(

Knitting, Sudoku if you are one of Epomans old 45's like Rerun :2thumbsup;

Right I'm off will get in trouble for that my friend, mate, buddy Rerun :grouphug; creep! creep!
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
Panda_9
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« Reply #9 on: September 13, 2006, 03:54:21 PM »

When I go in-centre, which is the 5 bed home training unit, I find talking to the staff makes time go quicker. One of them usually comes over for a chat for a good bit of time. I have also taken up making greeting cards, which you could probably do on the machine. Just take a few things along that are easy to do, even if its just cutting them or putting stickers on.
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MelissaJean
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it's better to find peace than understanding

« Reply #10 on: September 16, 2006, 04:33:14 AM »

Blink wildly and then close your eyes for an interesting light show.

Learn how to use your secret mind power to make things happen.

While watching TV, repeat everything said in an Italian accent.

Throw a foam Frisbee to another awake patient
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~Melissa~

"just run with me through rows of speeding cars"

- Born with Cystic Fibrosis
- Received double lung transplant 11/9/2001
- Complications from transplant:  Diabetes, Kidney Failure
- Started dialysis 6/6/06
kitkatz
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« Reply #11 on: September 16, 2006, 10:31:35 AM »

Close your eyes and pretend to sleep. Whenever someone comes by your chair yell: "Boo!"

Eat a banana, or an orange, or drink orange juice, or eat a tomato. (Not recommended. Bad renal diet ideas.) It will drive the dietitian crazy!

Call the local pizza shop and order up a pizza.  (One guy in our unit did this and got in sooo much trouble for it.) 

Bring donuts or sweets for the patients. Do not share with staff.




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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kitkatz
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« Reply #12 on: September 23, 2006, 10:49:14 PM »

Complain, complain, complain.  Oh did I say complain. About the place, the chair, the weather, your life, whatever.

Tell the tech putting you on they look terrible today, tell the next one they look great.  Keep this up for four hours and change it for everyone who comes over.

Make the doctor sit down and have a conversation with you. (I have not figured out how to do this one yet...)

Wear a halloween mask to dialysis and act the part. A vampire might be fun.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Zach
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"Still crazy after all these years."

« Reply #13 on: September 24, 2006, 09:17:53 AM »

Make the doctor sit down and have a conversation with you. (I have not figured out how to do this one yet...)

A face to face encounter.  That's a novel idea!       ::)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
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« Reply #14 on: September 15, 2007, 01:48:05 AM »

Fart machine http://www.fartmart.com/fartmachine.asp
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #15 on: September 15, 2007, 03:57:06 AM »

drink beer
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Adam_W
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Me with Baron von Fresenius

« Reply #16 on: September 15, 2007, 08:01:23 AM »

toss a beach ball back and forth with the patient across from you.

organize "the wave" with all the patients (and the resulting access movement would set off a lot of alarms and drive the staff crazy, too).
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
kitkatz
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« Reply #17 on: November 11, 2007, 07:20:45 PM »

 :bump; :bump;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
KT0930
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« Reply #18 on: November 13, 2007, 09:29:31 AM »

Complain LOUDLY about all the things you COULD be doing with these twelve hours a week.

Figure out how much you would get paid per day/week/month/year in your old job for the time you now spend on dialysis.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
zekewolfy
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« Reply #19 on: November 15, 2007, 03:10:46 AM »

HA, I now do home dialysis on NXSTAGE. SOOOOO. I play XBOX 360 games. I play pac man with my wife. I watch the NFL Channel on DirecTV. I talk on the phne to my Friends and Parents in New England(I am in NC) amd like to grab a nap! For me doing this at home has made a difference. I was going to cut dialysis and that would have been it.
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thegrammalady
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« Reply #20 on: November 15, 2007, 06:58:39 AM »

Make the doctor sit down and have a conversation with you. (I have not figured out how to do this one yet...)

A face to face encounter.  That's a novel idea!       ::)

both of my doctors do that.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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Aldente
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« Reply #21 on: November 15, 2007, 07:52:19 AM »

I'm a NxStage user so I like to go to IHD, check the forums and chat.  It's a great way to pass the time and enjoy the company of other members of our community.
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KR Cincy
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« Reply #22 on: November 15, 2007, 08:05:10 AM »

I ususally do at least 2 crossword puzzles while I'm on...some studies say puzzles like that help your brain and I figure, with all that's happened, I should try to keep THAT organ functioning.

I do some online stuff, but typing one-handed is a drag. I do read IHD a lot while I'm on.
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Not giving up...thanks to Susan.
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« Reply #23 on: November 27, 2007, 11:03:35 AM »

 ;D
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KR Cincy
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« Reply #24 on: November 27, 2007, 11:10:12 AM »

Carol, that's the nicest (and most family-friendly) one-handed activity that's been suggested to me!!!  :rofl;
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Not giving up...thanks to Susan.
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