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Author Topic: new guy says hi!!  (Read 3966 times)
sumodidit
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gotta do it!!
« on: March 30, 2009, 07:42:37 PM »
Hello my name is kerwin and I am a dialysis patient now for about a year and a half and i was googling and found this site. This site has made such an impact for me because I am 34 and still single and no kids. My family and friends really don't understand the dialysis procedure or what it does. I wouldn't dialysis on my worst enemy. I am very grateful for founding this site and seeing that other people on dialysis feel like me and give knowledge and comfort at a time where i feel truly by myself.
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Zach
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"Still crazy after all these years."
« Reply #1 on: March 30, 2009, 08:02:00 PM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
G-Ma
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« Reply #2 on: March 30, 2009, 08:21:49 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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« Reply #3 on: March 30, 2009, 09:28:44 PM »
Welcome kerwin, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
TeenHatesDialysis
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WWW
« Reply #4 on: March 30, 2009, 09:54:45 PM »
 :welcomesign; Kerwin,

You are no longer alone! Someone is here 24/7. Whether you need to vent, as I did yesterday, or just looking for some answers, you have come to a great place!

 :cuddle;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
monrein
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Might as well smile
« Reply #5 on: March 31, 2009, 04:04:21 AM »
  :welcomesign;  You're definitely not alone since you found us.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #6 on: March 31, 2009, 04:07:15 AM »
 :welcomesign; to IHD. Please don't feel alone.  Someone is always here and we have a chat room too.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
David13
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A meow massages the heart.
« Reply #7 on: March 31, 2009, 04:18:20 AM »
Welcome, Kerwin!   :welcomesign;

You will find a lot of great information and support here.  I'm glad you found us.

I hope to see you posting often.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
willieandwinnie
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« Reply #8 on: March 31, 2009, 06:28:06 AM »
 :welcomesign; kerwin. You have landed at the right place. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
peleroja
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I have 16 hats, all the same style!
« Reply #9 on: March 31, 2009, 11:24:50 AM »
Welcome, Kerwin.  Lots of good information here.  If your friends and family don't understand what you're going through, perhaps you could invite them to this site.  Just a thought.
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boxman55
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« Reply #10 on: March 31, 2009, 04:16:30 PM »
Hi and welcome to IHD. Glad you found us. Stick around and post often we look forward to staying in touch


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Romona
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« Reply #11 on: April 01, 2009, 08:54:25 AM »
 :welcomesign;
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MandaMe1986
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« Reply #12 on: April 01, 2009, 11:31:23 AM »
Hi there,  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Brightsky69
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« Reply #13 on: April 06, 2009, 05:26:43 PM »
Hi    :flower;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
paris
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« Reply #14 on: April 09, 2009, 07:50:30 PM »
Hi Kerwin, Glad you found us--we've been waiting for you!   :2thumbsup;   There is a lot of information here, but we are also a marvelous support group.  We care about each other and this is the one place where people really understand.   It is a great place to rant, vent, laugh or just chat.  Keep posting and let us get to know you better.  Welcome to IHD.   :grouphug;



paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #15 on: April 09, 2009, 08:18:17 PM »
If you felt you were alone before, you are not alone anymore!   :cuddle;     When I found this site I was truly amazed and so grateful!

Welcome!  We look forward to hearing more from you and about you.    :waving;
« Last Edit: April 16, 2009, 04:57:34 PM by kellyt » Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
sumodidit
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gotta do it!!
« Reply #16 on: April 16, 2009, 03:26:12 PM »
thank you all for welcoming me!! I just got home from dialysis and I am so thirsty. I will be going through the post for thirsty. I went and visited my doctor not to long ago and he was recommending me to sign up for transplant. I told him that I didnt want it because of my situation. I have an auto immune disease called light chain deposition, long story short my white blood cells attack and destroyed my kidneys and that is why I am in dialysis. The doctor has asked me to call the medical center to speak to the experts but I think I know the answer. go ahead and try it be our guinea pig. Since there is not alot of info about lcd I really dont want to be the one to test on. I also dont want to do 30-40 of dialysis either ???
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kellyt
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« Reply #17 on: April 16, 2009, 04:59:11 PM »
It wouldn't hurt to just talk to an expert and see.  That would be wonderful if you could transplant!   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
cherpep
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« Reply #18 on: April 16, 2009, 05:17:05 PM »
Hi!  Glad to have you here.  Pull up a keyboard and make yourself at home - you're right - we do understand. 
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twirl
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« Reply #19 on: April 30, 2009, 05:51:39 PM »
come here when you need us
we understand
please check with the experts
things might have changed  :cheer:
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sumodidit
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gotta do it!!
« Reply #20 on: May 16, 2009, 09:41:33 AM »
i would like to thank everyone for being so kind and welcoming me? i did some research online and read a few journals and discovered some bad news. all of the doctor's recommend no transplant.
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monrein
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Might as well smile
« Reply #21 on: May 16, 2009, 12:02:13 PM »
And why is that sumodidit?  Is it because of the underlying disease or what?  Some people here might have suggestions for further questions or other things to explore before accepting that as the final verdict.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #22 on: May 16, 2009, 12:19:31 PM »
 :cuddle; sumodidit. Get some other opinions.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #23 on: May 16, 2009, 06:41:01 PM »
Welcome and good luck.  I cannot consider a transplant at the moment either because my kidney failure is due to cancer.  However, if I can get into remission and stay there for 2 years, they'll look at the possibility.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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