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Author Topic: Intro from Buffalogal  (Read 3608 times)
buffalogal
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« on: March 30, 2009, 03:44:07 PM »
Hey all, I'm Julie from Minnesota and in my mid-thirites.  I'm so glad to find this forum; the great info and camraderie!

My husband went into the hospital a week ago last Saturday with kidney failure.  His creatinin was 15-16 (he has a high tolerance to pain but this is ridiculous), they did an emergency neck catheter and dialyzed him on Sunday.  After his 6 day stay in the "hospital hotel" and a few dialysis treatments later, they let him out.  He's now on dialysis, we will be talking to a doctor later this month about transplant.  This was a sudden lifestyle change and we've been busy just figuring out how to give him a shower, what to eat and how to feel.  I always said that I married an older man (6 months older) but didn't know that THIS is what would become of it!

I look forward to hanging around the forums and getting to know you all better. 
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Zach
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"Still crazy after all these years."
« Reply #1 on: March 30, 2009, 03:51:51 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
G-Ma
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« Reply #2 on: March 30, 2009, 03:59:03 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
willieandwinnie
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« Reply #3 on: March 30, 2009, 04:00:47 PM »
 :welcomesign; Julie. I'm so sorry that your husband's health brought you to our group but we are glad you found us. Tons of information and all kinds of support here. Please post often and we look forward to hearing more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Joe Paul
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« Reply #4 on: March 30, 2009, 04:02:57 PM »
Welcome Julie, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
lola
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I can fly!!!
« Reply #5 on: March 30, 2009, 04:57:55 PM »
Hi Julie, I am also from MN in my 30's and my husband is on Dialysis. :welcomesign;
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www.caringbridge.org/visit/ottomachado
kellyt
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« Reply #6 on: March 30, 2009, 05:18:13 PM »
Welcome to the Family!  Get your husband here fast!

I'm sure both your heads are spinning.  You'll learn a lot here, but you will also find the bestest of friends!  I look forward to hearing more from you, and hopefuly your husband!   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
TeenHatesDialysis
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« Reply #7 on: March 30, 2009, 10:15:11 PM »
 :welcomesign; Julie,


Wow! Creatinine of 15-16...that is the highest that I've heard.  Lots of information and support here.  Try to get your hubby to sign on during dialysis. I am glad you joined the group.   :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
monrein
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Might as well smile
« Reply #8 on: March 31, 2009, 03:57:08 AM »
 :welcomesign; Julie.  You'll find lots of info and support here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #9 on: March 31, 2009, 04:14:25 AM »
 :welcomesign; to IHD.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
boxman55
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« Reply #10 on: March 31, 2009, 04:20:15 PM »
Hi Julie, welcome to IHD you will be able to find a lot of answers to your questions here. We hace a great search engine also you can post all you want


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Wattle
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« Reply #11 on: April 01, 2009, 04:38:26 AM »
 :waving;  Welcome.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
paul.karen
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« Reply #12 on: April 01, 2009, 05:21:51 AM »
Glad to have you both here.
This is the Number one site for information and support for people dealing with Kidney malfunctions.
Hope to see you post often.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
buffalogal
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« Reply #13 on: April 01, 2009, 07:40:36 AM »
Thank you for the warm welcome!  I do hope my hubby will join sometime, he's never been one for online forums though. 

lola - nice to know there's someone in the same situation "close by!"

His creatinin was very high, the Dr said he had maybe 1-3 days before permanent damage to other organs.  We're very lucky he got in when he did.

Off to explore the rest of the forums...or what I can absorb without making my head spin!
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Zach
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"Still crazy after all these years."
« Reply #14 on: April 01, 2009, 09:18:18 AM »
Quote from: buffalogal on April 01, 2009, 07:40:36 AM

Off to explore the rest of the forums...or what I can absorb without making my head spin!


Buffalogal, won't you come out tonight ... and join us in the chat room (if anyone shows up).

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
MandaMe1986
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« Reply #15 on: April 01, 2009, 11:28:29 AM »
 :welcomesign; :waving;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Wallyz
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« Reply #16 on: April 02, 2009, 01:01:40 AM »
Quote from: Zach on April 01, 2009, 09:18:18 AM
Quote from: buffalogal on April 01, 2009, 07:40:36 AM

Off to explore the rest of the forums...or what I can absorb without making my head spin!


Buffalogal, won't you come out tonight ... and join us in the chat room (if anyone shows up).

8)

Dangit Zach, you took it first.  :2thumbsup;
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paris
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« Reply #17 on: April 09, 2009, 08:03:17 PM »
 :welcomesign;   You have had a lot to deal with in a short time.  This is the best site on the internet for information and especially for support.  You are among friends and we are here to help.  There are many caregivers/ spouses here and they can be a great resource for you.  Looking forward to hearing more from you.   :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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