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Author Topic: Got Len Home From Hospital  (Read 5906 times)
willieandwinnie
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« on: March 26, 2009, 11:08:17 AM »
As some of you know, Len has had a bumpy ride since he's transplant 18 months ago. Yesterday morning he started with the horrible stomach pains. I started giving him pain shots every 4 hours and in between was giving him fental tablets. Last night about midnight he finally  :puke; and felt a little better. At 3 am he got me up and I gave him a pain shot and took his temperature, it was 99.9 so I sat in the chair the rest of the night and this morning I took him to the Emergency room. He was really dehydrated and they hooked him up to an IV (took 2 hours) and then they sent him home. I am suppose to watch him closely for the fever and hopefully get some fluids in him or he is to go back to the ER and get more IV fluid. He seems to be going through this every 3 months no matter what we do. I am so thankful that the GI doctor at least lets me give him pain shots as that does seem to help. Len was suppose to get labs done today but all the doctors involved said to wait until Monday because all his numbers will be messed up. I can't tell you how impressed I was this morning when 3 doctors personally called me. I'm so happy that they take an active role in Len's care. Well, I think I am going to try and take a nap because I might have another long night. Thanks for being here for me when I need to talk.  :cuddle;
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thegrammalady
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« Reply #1 on: March 26, 2009, 11:25:42 AM »
hopefully he will be feeling better soon and you will get some sleep   :grouphug;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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MandaMe1986
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« Reply #2 on: March 26, 2009, 11:33:40 AM »
I am so sorry about Len.  I hope he feels better soon. And I agree you do need to get some sleep.  I know how worried you are.  I am so sorry you are going through this. I hope it all gets better soon.  :cuddle; :grouphug; :cuddle; :grouphug;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
rose1999
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« Reply #3 on: March 26, 2009, 11:43:19 AM »
Sorry to hear what you've both been through, Len is lucky to have you ......and I guess you're lucky to have him too  :cuddle;
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Romona
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« Reply #4 on: March 26, 2009, 01:16:06 PM »
 :grouphug;
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kellyt
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« Reply #5 on: March 26, 2009, 02:24:09 PM »
You deserve a nice long, peaceful nap.  I'm glad Len's home.  I hope he's feeling better.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
del
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del and willowtreewren meet
« Reply #6 on: March 26, 2009, 02:37:35 PM »
 :cuddle; Hope he starts to feel better soon.





EDITED: Fixed smiley error - Sluff/Admin
« Last Edit: March 26, 2009, 02:51:51 PM by Sluff » Logged
Don't take your organs to heaven.  Heaven knows we need them here.
charee
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« Reply #7 on: March 26, 2009, 02:47:35 PM »
 :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Sluff
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« Reply #8 on: March 26, 2009, 02:52:21 PM »
Glad Len is home.  :2thumbsup;
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Mizar
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« Reply #9 on: March 26, 2009, 03:12:25 PM »
Do take care of Yourself also. It's so Important. Have a Restful Evening.
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twirl
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« Reply #10 on: March 26, 2009, 03:14:35 PM »
kiss w&w for me    two times each
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TeenHatesDialysis
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« Reply #11 on: March 26, 2009, 07:36:14 PM »
I hope that you were able to get some much needed rest. I hope that Len is feeling better soon and that the good feelings last a long time! :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
MIbarra
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Stopping to smell the bluebonnets
« Reply #12 on: March 26, 2009, 07:59:46 PM »
I hope he gets better soon! I'm so sorry he's having a hard time after the transplant. It must be frustrating. I'll keep Len in my prayers.  :cuddle;
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Cadaver transplant April 29, 2007
G-Ma
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« Reply #13 on: March 26, 2009, 08:48:14 PM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Wattle
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« Reply #14 on: March 26, 2009, 11:05:57 PM »
 :grouphug;  I hope he is feeling better.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
monrein
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Might as well smile
« Reply #15 on: March 27, 2009, 12:19:57 PM »
 :grouphug; :grouphug; :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #16 on: March 27, 2009, 01:07:49 PM »
That sweet man has had way too much going on.  I just want you both to have a break.  Give Len a gentle hug from us.  We love you both.  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
2_DallasCowboys
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« Reply #17 on: March 28, 2009, 05:41:21 AM »
Dear W/W,

I do so hope that Len is feeling much better.   Sending
 :grouphug; to both of you,

Anne
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pelagia
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« Reply #18 on: March 29, 2009, 09:53:29 AM »
W&W - I missed this somehow.  I'm hoping that by the time I am writing this everything has settled down.  I am sending you and Len love and hugs.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willieandwinnie
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« Reply #19 on: March 29, 2009, 10:21:50 AM »
 :thx; everyone for you thoughts. We are taking one day at a time.

 :waving; Linda, it seems to take about 5 days for him to start feeling better. He's weight is down to 135 and that has me worried. We go for labs tomorrow and they might have him go get more IV fluids. We shall see.  :cuddle;
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pelagia
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« Reply #20 on: March 29, 2009, 01:02:20 PM »
Oh the weight thing doesn't sound so good.  I forget, can he drink the liquid protein drinks?  He needs some high quality protein somehow.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willieandwinnie
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« Reply #21 on: March 29, 2009, 01:08:14 PM »
pelagia, the problem is, he can't seem to drink much of anything before the stomach problems start. That's why the GI doctor keeps pushing the feeding tube. I'll know more tomorrow I hope.  :cuddle;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #22 on: March 29, 2009, 11:17:50 PM »

Can Len eat eggs? Or small amounts of fish?
Hope things improve and he can gain some weight, poor guy.
Take care Kathy.  :cuddle;  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #23 on: March 30, 2009, 01:27:22 PM »
 :grouphug;
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Joe Paul
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« Reply #24 on: March 30, 2009, 02:05:20 PM »
Sorry to hear this about Len  :grouphug;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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