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bette1
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My dear daughter

« on: March 21, 2009, 11:25:52 AM »

I need to rant!

This past week I've been feeling that all I do is housework and dialysis.  I feel like I need something else in my life.  I have a bunch of hobbies, but I really feel that I am not contributing to the world at large, like I have been so focused on my health and family, that I am not giving to anyone else.  I realize how fortunate I am to even have the opportunity to stay alive through dialysis.  I just don't know what I can do to give back.  It's hard because I'm tired so much.  Any suggestions?
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
kitkatz
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« Reply #1 on: March 21, 2009, 05:03:19 PM »

Write an article for RSNhope.org. 
Post here on IHD.com
Check other sites for your health issues.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
dwcrawford
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Getting the heck out of town.

« Reply #2 on: March 21, 2009, 05:43:50 PM »

Bette, I have no words of wisdom but I wonder if you, and so many other in  IHD, realize what impact your lives have on people like me -- new to the situation and totaly scared.  I can't imagine what other "contribution to the world at large" you could do  that is more powerful.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
petey
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« Reply #3 on: March 21, 2009, 06:09:19 PM »

Bette, I have no words of wisdom but I wonder if you, and so many other in  IHD, realize what impact your lives have on people like me -- new to the situation and totaly scared.  I can't imagine what other "contribution to the world at large" you could do  that is more powerful.

dwcrawford -- What a beautiful thing to say to someone else!  You are so right about Bette's "contribution," and you said it to her so perfectly.
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paris
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« Reply #4 on: March 21, 2009, 06:14:50 PM »

Bette, I have no words of wisdom but I wonder if you, and so many other in  IHD, realize what impact your lives have on people like me -- new to the situation and totaly scared.  I can't imagine what other "contribution to the world at large" you could do  that is more powerful.

Well said, dw.  Bette, helping others here by sharing your experiences is a great way to make a difference.  You can give support to someone who is frightened of the future.  Your first hand knowledge is invaluable.  We are glad you are a part of this great group  :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
The Wife
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« Reply #5 on: March 21, 2009, 06:42:30 PM »

Whenever I need to understand what is going on with my husband, I come and read what other dialysis patients share.   

Thank you.
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RichardMEL
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« Reply #6 on: March 21, 2009, 07:14:24 PM »

you guys took the words out of my keyboard.

You don't have to build houses for the poor or give thousands to charity to contribute. In your own way you're giving back through experience, advice and plain 'ol support!!

If you feel you need to do more though perhaps you could see if the local elementary school could use someone to help with reading or things like that. My motherr did that in the last year or two of her life - once a month she walked down the road and spent a morning reading books to the kids. She got a great kick out of that I think and she gave something back. That sort of activity wouldn't be too taxing on the system (I think) and is positive. Perhaps a local "old folks home" could use a volunteer also. Something like that.

In the meantime though just being here is absolutely giving back to the world.. and IHD *is* truly world wide! You have greater impact than you think!! (just ask the ladies of IHD about me!!!  :rofl;)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
kellyt
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« Reply #7 on: March 21, 2009, 07:51:29 PM »

This thread has helped me see things differently.   We all contribute in our own ways, both obvious and not so obvious.


:thx;    :2thumbsup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
dwcrawford
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Getting the heck out of town.

« Reply #8 on: March 21, 2009, 08:04:22 PM »

If I may add just one more thing, Bette.... don't spend too much t ime on the housework.  I find that it will wait for you.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
RightSide
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« Reply #9 on: March 21, 2009, 08:13:53 PM »

One thing you might consider, is to get more involved in improving your community.  Is there anything that might improve your community?  Even something as simple as having a traffic light installed at a busy intersection?  If so, then get involved with community organizing.  Talk it over with your neighbors.  Attend your local town council meetings and raise the issue.
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bette1
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My dear daughter

« Reply #10 on: March 22, 2009, 03:55:32 PM »

I am so glad that you guys are out there for me.  Your support really means so much to me.  I am tearing up as I type this.  Thanks.
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
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