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Author Topic: Watching my Step.  (Read 4884 times)
Mizar
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« on: February 17, 2009, 04:53:27 PM »

So, Two Days after Christmas, My Husband, who does Dialysis, was admitted to the Hospital with Pneumonia. He was in for 17 Days. He came Home and was Home for exactly Two Weeks. He went to Dialysis, that Day and His Heart rate was so High, they sent Him back to the Pulmonary Specialist, who had Discharged Him from the Hospital. He went right from the Doctors Office, back into the Hospital again. Twenty Days, He was in this time. He just got Home Sunday. He has an Infection in His Lungs, that will not clear up. He was checked for Staph, MRSA, You name it. It's just all from the Pneumonia. Now He is Home on IV Antiobiotics for a Month, ( a Backpack with Tubes, that connects to a Catheter in His Chest, which they put in ) He is also on Oxygen, 24/7. There are Tubes, running all over the Place and this is just at Home, not to Mention His Hookup at Dialysis.  He is very Distressed, about all the Tubes and I am " Watching My Step" so I don't trip over anything. Just letting off a little Steam here Tonight. Keeping the Faith.
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kitkatz
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« Reply #1 on: February 17, 2009, 05:00:36 PM »

Good luck and God Bless!  Take care of both of you!  :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: February 17, 2009, 06:40:37 PM »


Aww Mizar - it's been a tough time - sounds awful for both of you.
I hope things improve soon! HUGS and prayers coming your way!  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #3 on: February 17, 2009, 07:10:08 PM »

Mizar my thoughts are with you both. I know what you are going through and it just is not easy, however you will get through this and better days are ahead. Take care of both of you.   :grouphug;
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monrein
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Might as well smile

« Reply #4 on: February 17, 2009, 08:28:58 PM »

Thinking of you both and hoping things start to improve soon.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
st789
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« Reply #5 on: February 17, 2009, 09:06:40 PM »

Hope things will improve soon.  Take care.
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Yvonne
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Yvonne

« Reply #6 on: February 17, 2009, 11:50:29 PM »

  :ukflag;  I also know the feeling, the tubes going in and out of John I often wondered if every one knew what they were all there for. To wards the end of the first week John was in hospital each time I went to visit another one was either added or taken away, They even had to use his foot for one. I think I would have refused to have John home if had still had the tubes.  It is such a big responsibility looking after them, we carers all turn into nurses at the end of the day, one nurse even said to me "are you an x nurse" you seem to know how to handle a patient, and I've only been looking after John for just over 2 years.  Everyone on this site is always saying to take care of your self and I am saying the same to you.  I think this site has taught me so much, just wish I lived near some of the people so we could give each other a hug now and then I could really do with it. Yvonne the wife.
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
breezysummerday
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« Reply #7 on: February 18, 2009, 12:46:42 AM »

If we look at the body and the important organs, seems as if 'he' needs a bit of help with a couple of them.
The tubing will become familiar in a couple of days, or maybe within 24 hours.  I am praying that you do not
become too overwhelmed....

Mizar's husband:     please relax, sounds like M is gonna take care of you...... :cheer:
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
jessup
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Gemma - the tucker monster

« Reply #8 on: February 21, 2009, 04:30:32 PM »

 :grouphug;
Geez mizar
I know how you feel about the tubes, cords etc
I am very clumsy and there was an incident or three when I did in fact trip over tubes and pulled out a cord accidently F***
Dad and I laugh about it now but at the time I was worried sick
You will get used to working around them
You are amazing
You are strong and capable and knowledgeable
What a wonderful caregiver
Lots of love to you both
Hope everything improves soon
Take some time to smell these beautiful flowers
 :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower;
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Romona
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« Reply #9 on: February 21, 2009, 08:23:10 PM »

 :grouphug;
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pelagia
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« Reply #10 on: February 22, 2009, 07:23:45 AM »

 :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
2_DallasCowboys
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« Reply #11 on: February 22, 2009, 01:53:51 PM »

 :flower; :cuddle; :flower; :grouphug; :flower; :cuddle;


Anne
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The Wife
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« Reply #12 on: February 23, 2009, 06:34:11 AM »

 :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower;
 :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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