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Author Topic: Waiting for another one  (Read 5383 times)
Wallyz
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« on: February 12, 2009, 07:35:32 AM »
I am primary for a SKP transplant.  Still waiting on report on viability.
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paul.karen
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« Reply #1 on: February 12, 2009, 07:42:19 AM »
Best of luck to you. :thumbup;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
okarol
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« Reply #2 on: February 12, 2009, 08:25:43 AM »

Wow - hope it comes through - best of luck to you!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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« Reply #3 on: February 12, 2009, 08:38:47 AM »
I hope you are a perfect match and you will be in and out of surgery and on your way!

                                                              :waving;
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kellyt
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« Reply #4 on: February 12, 2009, 08:46:29 AM »
Congratulations, Wallyz.  I have my fingers crossed for you!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #5 on: February 12, 2009, 08:54:52 AM »
Please let this one be Wallyz!   Lots of prayers and good thoughts   :cuddle;
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willieandwinnie
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« Reply #6 on: February 12, 2009, 09:25:17 AM »
 :grouphug; Wallyz. We pray this is the one.  :cuddle;
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Run8
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« Reply #7 on: February 12, 2009, 09:32:23 AM »
Hope this one is for you. Praying that everything works out.
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kimcanada
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« Reply #8 on: February 12, 2009, 09:35:22 AM »
Quote from: Wallyz on February 12, 2009, 07:35:32 AM
I am primary for a SKP transplant.  Still waiting on report on viability.

<-- Confused, what is SKP?
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Run8
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« Reply #9 on: February 12, 2009, 09:38:42 AM »
It is a Simultaneous kidney pancreas transplant
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MandaMe1986
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« Reply #10 on: February 12, 2009, 09:39:36 AM »
Good luck let us know how it goes
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Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

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openboat
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« Reply #11 on: February 12, 2009, 11:29:24 AM »
Hoping for the best for you!   :bestwishes;
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kimcanada
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« Reply #12 on: February 12, 2009, 12:23:19 PM »
wow, I didn't know that, Best of luck Wally!
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Chris
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« Reply #13 on: February 12, 2009, 12:30:09 PM »
Hope this is the one Wallyz.
Good Luck and if you do get it today, I hope you feel a difference when you wake up.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
RichardMEL
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« Reply #14 on: February 12, 2009, 06:36:40 PM »
I have a good feeling that this is the one (well, two!) for Wallyz!!!

best of luck to you! :bandance;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
okarol
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« Reply #15 on: February 12, 2009, 06:39:06 PM »
 :cheer: Hoping for the best!  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #16 on: February 12, 2009, 06:44:45 PM »
 :2thumbsup; Best Wishes!








EDITED:Fixed smiley tag error-kitkatz,Moderator
« Last Edit: February 12, 2009, 07:50:46 PM by kitkatz » Logged
Wallyz
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« Reply #17 on: February 12, 2009, 07:47:50 PM »
Pancreas wasn't viable.  Back to waiting. Thanks for all the support, folks. 
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kitkatz
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« Reply #18 on: February 12, 2009, 07:51:17 PM »
Too bad. Sorry for the disappointment.   :grouphug;
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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« Reply #19 on: February 12, 2009, 07:54:00 PM »

Shoot - I was hoping enough time had passed that perhaps it was a "go" - sorry Wallyz - I pray your time comes soon.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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« Reply #20 on: February 13, 2009, 04:58:17 AM »
I am sorry it didn't work out wally.   :cuddle;

I don't understand all the false alarms. Why don't they check the organs BEFORE they call the patients??

I think I would start to get a little testy if I was called so often with no outcome. Or I would drop dead from the stress. on/off/on/off    :stressed; :stressed;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Wallyz
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« Reply #21 on: February 13, 2009, 07:51:59 AM »
Be casue they want to make sure we are ready when the organs come out.  The reason it went on so long this time was that the donor was is Boise, Idaho, and they ha to wait to do the surgery because the airspace around Boise was closed because Joe Biden was visiting.
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paul.karen
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« Reply #22 on: February 13, 2009, 07:55:27 AM »
Wally
Since you are waiting for a pancreas and kidneys will they not give you just one or the other?
Is it both or neither?
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Wallyz
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« Reply #23 on: February 13, 2009, 08:54:56 AM »
That's ideal.  A kidney without a pancreas is at risk from super high blood glucose from the prednisone et al after transplant.  Just  apancreas would require dialysis, which would dialyse away the antirejection drugs.  A kidney panc pair would recognize each other, and create less immune response.
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Run8
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« Reply #24 on: February 13, 2009, 11:45:18 AM »
Wallyz sorry it didn't happen. Your day will come when you least expect it.I too waited for a skp and for me that was my gold medal. It is going to happen and when it does you will be glad you waited for both. For 27 years I had to take insulin shots now I don't know what to do with myself. I forgot what it was like to be normal.
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