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Author Topic: 2nd week using fistula  (Read 4466 times)
TwistedKitten
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I refuse to let the kidney disease define who I am
« on: February 12, 2009, 12:53:43 AM »
I'm finally using my fistula....(hopefully they start the buttonhole soon) but it's been good so far. First time they used 2 needles it was access flow week so I found that out. Greater than 2000 :bandance; So that's good and my clearances are SOOO much better compared with my crappy line. kT/v went from about 1-1.2 all the time (and a lot lower at times) to almost 2  ;D  ;D So now I'm just waiting for them to take my line out...Can't wait to go swimming this year. LOL. |It's been ages...and I miss it. My mom always said I shoulda been a fish...lol. But yeah, just thought I'd share my good news.   :waving;
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Chris
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« Reply #1 on: February 12, 2009, 01:23:42 AM »
That's good news.
I remember having trouble with the catheter on clearance and flow and on a few occasions the lines had to be moved slightly because the blood flow started to gurgle. What an odd feeling that was.
Good Luck on next treatment
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Diabetes -  age 7

Neuropathy in legs age 10

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Joe Paul
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« Reply #2 on: February 12, 2009, 01:37:40 AM »
Thats great news  :thumbup;  Back when I first started, my fistula was only 3 weeks and 1 day old. Its always good when things work as they should.
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RichardMEL
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« Reply #3 on: February 12, 2009, 03:39:44 AM »
great news TK!!! Hope you can get to go swimming soon too. We (ok me) want to see you in a bikini!!!!  :shy; :grouphug; :rofl; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

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Rerun
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« Reply #4 on: February 12, 2009, 08:47:12 AM »
That is great.  Do you use the lidocaine shots or just have them jab them in?

                  :yahoo;
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TwistedKitten
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« Reply #5 on: February 12, 2009, 04:30:23 PM »
Richard: I doubt I`ll be in a bikini...lol... :P but it`ll be so nice in any case..

and Rerun. They just jab it in..lol...the freezing always hurts more for me than the needle stick so I do without.

AND huge surprise today my line actually got taken out..I don`t think I`ve ever been so happy to be in pain. :cheer: lol. not that it`s alot but still. I`m just so HAPPY that it`s GONE!!!  whooopeee!!!!!!!!!!

usually it takes longer to get them out. but the doc that takes them out was taking out 2 others today and had time to take mine out...2 minutes and it was gone.  ;D
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~I'm staring out into the night Trying to hide the pain~ Home by Chris Daughtry

~Life has it's ups and downs, its twists and turns. It's how we look at it and turn those things around, now that's the key thing~ Kevin Sharp

~Life isn't about the amount of breaths you take, but the moments that take your breath away~

~Think of each day as a special gift, and unwrap it gratefully~

~My meow is just too unorthodox for these kittens~
monrein
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« Reply #6 on: February 12, 2009, 07:14:18 PM »
Getting rid of a permacath is the best feeling.   
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
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New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
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kitkatz
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« Reply #7 on: February 12, 2009, 07:30:00 PM »
Oh yeah! Getting the line out is great feeling.  Go stand in the shower for about a week when you can!  :2thumbsup;
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« Reply #8 on: February 13, 2009, 12:11:39 PM »
twistedkitten  hope everything goes ok for you. It sounds like you are on the right road.  :thumbup;
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« Reply #9 on: February 13, 2009, 02:30:41 PM »
Great news mate
 :clap;
Enjoy swimming
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thegrammalady
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« Reply #10 on: February 13, 2009, 02:37:30 PM »
 :bandance; :bandance; :bandance; :bandance;
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« Reply #11 on: February 13, 2009, 05:58:15 PM »
That's great to hear!   :clap; :clap; :clap;

You said in 2 minutes. Do they just yank them out without sedation?  :o  If so, I'm not so sure I'm going to look forward to having mine taken out!
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TheBluePhantom
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« Reply #12 on: February 13, 2009, 06:23:34 PM »
Quote from: paddbear0000 on February 13, 2009, 05:58:15 PM
That's great to hear!   :clap; :clap; :clap;

You said in 2 minutes. Do they just yank them out without sedation?  :o  If so, I'm not so sure I'm going to look forward to having mine taken out!

When they took out my tunneled cath he used a small lidocaine shot, then broke up the scar tissue at the base.  The lidocaine hadn't really taken effect, so it was 30 seconds that hurt a lot.  To remove it he grabbed the cathater and yanked.  I opened my mouth to yell, and realized that it didn't hurt.  After that it was just pressure at the vein to prevent internal bleeding and I was out the door...
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paddbear0000
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« Reply #13 on: February 13, 2009, 08:06:09 PM »
They don't suture the vein? They cut a hole in it to put the tube in. A hole that size will self-seal back up after weeks or months of use? Now I'm freaked out!
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

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TwistedKitten
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« Reply #14 on: February 14, 2009, 12:33:16 AM »
yeah it's like BluePhantom said. They just freeze it locally. My doc left the freezing for about a minute before he took it out. Cut the scar tissue..and once that was cut....just pulled it out. Then a nurses aide came and put pressure on it for 15 minutes....and it was done. No bleeding after that...and no stitches usually. I have one...but that'll come out next treatment. but the actual site where the catheter was isn't sutured up because they don't wanna trap any bacteria that could be there inside.

No need to freak out. Really quite simple. Hurts for a bit but extra strength tylenol takes care of that. You'll feel better once it's gone. I know for me...I feel like a normal person again. And it only been 2 days that it's gone. lol

It amazed me how much just getting the catheter out made me feel so much better about myself.
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~I'm staring out into the night Trying to hide the pain~ Home by Chris Daughtry

~Life has it's ups and downs, its twists and turns. It's how we look at it and turn those things around, now that's the key thing~ Kevin Sharp

~Life isn't about the amount of breaths you take, but the moments that take your breath away~

~Think of each day as a special gift, and unwrap it gratefully~

~My meow is just too unorthodox for these kittens~
kitkatz
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« Reply #15 on: February 14, 2009, 10:52:32 AM »
Getting that catheter out was the most awesome feeling!  :bandance;
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
TwistedKitten
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I refuse to let the kidney disease define who I am
« Reply #16 on: February 14, 2009, 11:29:46 PM »
Quote from: kitkatz on February 14, 2009, 10:52:32 AM
Getting that catheter out was the most awesome feeling!  :bandance;

yes it was  :beer1;
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~I'm staring out into the night Trying to hide the pain~ Home by Chris Daughtry

~Life has it's ups and downs, its twists and turns. It's how we look at it and turn those things around, now that's the key thing~ Kevin Sharp

~Life isn't about the amount of breaths you take, but the moments that take your breath away~

~Think of each day as a special gift, and unwrap it gratefully~

~My meow is just too unorthodox for these kittens~
AlasdairUK
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« Reply #17 on: February 17, 2009, 07:30:26 AM »
I noticed a huge difference with the quality of life when I went from my permcath to a fistula. My clearence was so much better and I had a lot more energy, even started to exercise.

For me, it was also the fact that I did not have a plastic tube hanging out my chest and being able to shower and not be worried about getting an infection.

Alasdair
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94 - PD for 3 months
94 - HD Permcath for 3 months
95 - RLD Transplant 10 years
2005 - HD Permcath 6 months
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2008 - 2nd Transplant
RichardMEL
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« Reply #18 on: February 17, 2009, 05:29:33 PM »
I've never had a cath in there and obviously aren't female so can't really relate to how that must be on both counts but I *can* imagine how much of a relief it would be to have it out both from being able to swim/wash properly etc AND the whole body thing.. so glad you got it out and hope the fistula works well for ages!!!! :)

 :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
TwistedKitten
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I refuse to let the kidney disease define who I am
« Reply #19 on: February 17, 2009, 08:13:41 PM »
Quote from: AlasdairUK on February 17, 2009, 07:30:26 AM
I noticed a huge difference with the quality of life when I went from my permcath to a fistula. My clearence was so much better and I had a lot more energy, even started to exercise.

For me, it was also the fact that I did not have a plastic tube hanging out my chest and being able to shower and not be worried about getting an infection.

Alasdair

It's only been like a few weeks of better clearances but already I can feel the difference. Slight as it is. And yeah not having the plastic tube in my chest is real nice.  :cheer: Thank-fully no infections but yeah it's nice not to have to worry about it all the time. Or worrying about it getting tugged accidentally. Never fun.


and RM I hope it works for ages too. LOL. I don't know how I'd do it if I had to go back to a line 
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~I'm staring out into the night Trying to hide the pain~ Home by Chris Daughtry

~Life has it's ups and downs, its twists and turns. It's how we look at it and turn those things around, now that's the key thing~ Kevin Sharp

~Life isn't about the amount of breaths you take, but the moments that take your breath away~

~Think of each day as a special gift, and unwrap it gratefully~

~My meow is just too unorthodox for these kittens~
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