Nerve Damage after transplant

[draven]

Hi guys

Since i have had the transplant i have noticed that below the cut (where they put the kidney in) my skin is very numb. and i cant feel a thing there.anybody have this, did it come right. its basically near the pelvic area.

[Wenchie58]

Yep  I can totally relate.  I have had multiple surgeries and each one of the "sites" has areas of numbness...sometimes it passes with time, others stay numb.  I had a surgery in 1998 and there is still a 2 inch area that is completely numb.  From my transplant in October I have a spot....in the pelvic area about 4 inches square that is still numb.  Doesn't bother me at all.

[monrein]

I think it's fairly common Draven as it can take quite a while for the nerves to sort themselves out.  It does feel weird but it's better than pain.  I hope it's not interfering in any way besides feeling odd.

[Sluff]

I agree that it is somewhat normal and the feeling may or may not come back.

[okarol]

Hey draven, how are you doing otherwise? What have you been doing?
 

[pelagia]

I had a caesarean when I delivered my son almost 19 years ago and I still don't have the same level of sensation around that scar as I do in nearby areas.  I don't think it's anything to worry about.

[kellyt]

Same here, but it's not bothersome.  It's common (or at least that's what my doctor told me).

I hope you're doing good!

[draven]

thanks for the replies. i have a cut on my stomach from a operation years ago. the feeling is little less on the cut. but not too bad.
I'm sure the feeling will come back. the cut is still a little red there, so we will wait see.

otherwise my health is good. creatinine is coming down to 128. the lowest its been since i left the hospital.
i changed to prograf yesterday. and my feet have started feeling better.

tried to go for a walk on the beach on Thursday but the wind was blowing too much. will go again in the week.
my sister is doing well. and she is back at work.

i cant wait to work again. if i can find a job.

anybody out there change from cyclosporin to prograf? did it make things easier. are there less side effects?

[pelagia]

Draven, I think the drug of choice in the US these days is prograf rather than cyclosporine.  My husband also takes prednisone and cellcept.  Glad to hear that you are feeling better.

[kellyt]

I was started on the Prograf, CellCept and Prednisone the day before surgery.  I've never tried the Cyclosporine.  I've had no issues, really.  I started on 4/4, then went to 4/3 and am currently on 3/3.  I think my last Prograf level was either in the 8's or 9's.

[okarol]

Jenna is also on Prograf and CellCept, no prednisone. They check her immuno levels once a month.

[kellyt]

I'm slowly coming off the Prednisone, but not soon enough!  I'll be at 12.5 mg for one more week and then I'll finally hit 10 mg.  After that I think I taper down 1 mg/month.

[Hilrose]

After my transplant, I noticed nerve damage to the right side of my groin, the feeling has never come back and it also affected my sex life as I don't have an feeling on that side of my body (area).... Well what esle can I say..... Damn!