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Author Topic: Message from Lucinda  (Read 8944 times)
Lucinda
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Life is great!
« on: February 06, 2009, 11:22:31 PM »
Hello.  My name is Chris.  I am a friend of Cindy. She is here but she asked if I would type this message for her.  She asked me to let you know that she is OK and she is sorry she has not been around much the past week.  She is totally crippled with gout in every joint in all her fingers and she can't type or do anything much at the moment.  I replied to a couple of posts for her but she has had a few messages so she asked me to post that she will be back on deck as soon as the gout eases.  I am helping her with her magazine and we have a big presentation to do next week so it is all go on that front.  Thank you Linda for getting stuck into her about her diet.  She is eating close to nothing and I don't care if she reads this.  One of the worst things for gout (I have read up about it) is going, or being on, a strict diet.  She is still keeping up to date and reading but after she agonised over typing a response to one of the posts the other day she is now banned from using the keyboard.  And from me......I think you are all terrific, brave and amazing people. Thanks for reading.  Cheers, Chris. 
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: February 06, 2009, 11:26:21 PM »

Thank you Chris, for the update and for helping Lucinda. Please hug her and tell her I am sending lots of LOVE and hope she's feeling better soon!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Cattitude
« Reply #2 on: February 06, 2009, 11:39:07 PM »
Hope you feel better soon, Lucinda - take care of yourself!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Chris
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« Reply #3 on: February 06, 2009, 11:55:29 PM »
Get Well ASAP Cindy, do what needs to be done so you get better!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
G-Ma
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« Reply #4 on: February 07, 2009, 12:51:13 AM »
 :grouphug;   from Saul and me.....we hope you are feeling beter.

Love
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Might as well smile
« Reply #5 on: February 07, 2009, 02:15:30 AM »
Hugs Cindy.  Gout is so awfully painful, I hope it eases soon.  Are they giving you colchichine or a course of prednisone to help?   :grouphug; :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #6 on: February 07, 2009, 04:52:43 AM »
Thanks Chris. I was wondering where Cindy was at. Gout is totally horrible and I hope they can get it under control for her soon. I can't imagine how agonizing it is for her (I've only had one attack, 8 years ago) but that was enough so my thoughts are with her - and you both for the presentation next week for the magazine.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #7 on: February 07, 2009, 06:09:59 AM »
 :grouphug;  Aren't freinds the best!  Thanks for taking care of her.
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
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« Reply #8 on: February 07, 2009, 06:13:04 AM »
Thanks Chris for typing for Lucinda.  :2thumbsup; I hope she gets some release soon from the gout.
« Last Edit: February 07, 2009, 06:15:57 AM by Sluff » Logged
Romona
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« Reply #9 on: February 07, 2009, 08:52:33 AM »
 :grouphug;
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pelagia
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« Reply #10 on: February 07, 2009, 09:00:08 AM »
Thanks Chris for sending an update.  Lucinda, we love you and hope you start feeling at least a little better soon.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
lola
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I can fly!!!
« Reply #11 on: February 07, 2009, 09:43:48 AM »
Cindy I just thought you were out enjoying the new baby, I am so sorry to hear your in pain. :grouphug; Thanks Chris for letting us know :flower;
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paris
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« Reply #12 on: February 07, 2009, 10:03:06 AM »
Oh, I am sorry the gout got worse.  She had told us her fingers were in pain, but I hate that it is so bad.  Have the put her on daily medicine for gout?  I take Allopurinal daily and then two others during flair ups.  It really is crippling pain.  Undescripable and one of the worse pains I have ever felt.   Take care of our friend  :cuddle;   Give her our love  :grouphug;   Good luck on the presentation   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #13 on: February 07, 2009, 10:04:32 AM »
I'm sorry to hear you're in such pain.  I can't imagine what you're going through.  Hang in there.  We'll be here for you, now and when you get better!   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
thegrammalady
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« Reply #14 on: February 07, 2009, 10:06:14 AM »
hoping things start getting better soon.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
kitkatz
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« Reply #15 on: February 07, 2009, 10:12:46 AM »
I hope that the gout eases up soon and Lucinda can get going again.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Wenchie58
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Always carrying the big silly grin!
« Reply #16 on: February 07, 2009, 11:10:17 AM »
Hoping Lucinda feels ship shape soon! - :flower;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
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« Reply #17 on: February 07, 2009, 11:54:33 AM »
oh Lucinda I am so sorry to hear that, I hope you are better ASAP, I am also glad that Chris pinch hit for you, Its scary when one of our members fall from sight
 :grouphug;
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jessup
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Gemma - the tucker monster
« Reply #18 on: February 07, 2009, 02:14:55 PM »
Lots of love and best wishes dear Lucinda
Hope the gout eases soon and you are up and at em
What a bloody great mate you are Chris
Good luck with the presentation too.
 :flower; :flower; :flower;
 :grouphug;
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charee
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« Reply #19 on: February 07, 2009, 02:49:10 PM »
 :cuddle; I have missed you , hope things improve soon and  maybe its time to start the big D  thinking of you and thanks Chris for the update
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Bajanne
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« Reply #20 on: February 07, 2009, 02:55:46 PM »
Lucinda girl, I know EXACTLY what you are going through.  I had a gout attack recently in my left hand.  Gout is not pretty.  It is one of the most excruciating and crippling pains.  Thankfully, with medication, it goes away eventually.   Indomethacin works very well for me.   Then, as Paris says, when you are not having an attack, you should use allopurinol to keep away further attacks. Sending you a hug along with caring thoughts and prayers for your swift relief.  :cuddle;
Chris, thanks so much for filling in for Lucinda.  She is very precious to us!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willieandwinnie
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« Reply #21 on: February 07, 2009, 03:04:12 PM »
 :grouphug; Lucinda. We all hope you are feeling better soon.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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« Reply #22 on: February 07, 2009, 08:34:54 PM »
I'm so sorry to hear this Lucinda. I sure hope you start feeling better soon!   :cuddle; :cuddle; :cuddle;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
twirl
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« Reply #23 on: February 08, 2009, 05:58:39 AM »
it is not the same around here without ever single member
so please get better
we miss you :flower;
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del
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del and willowtreewren meet
« Reply #24 on: February 08, 2009, 07:38:03 AM »
 :cuddle;  Hope the pain gets better soon!!!
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Don't take your organs to heaven.  Heaven knows we need them here.
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