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Author Topic: New Member From Alabama  (Read 3566 times)
joyfulmother
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Becky

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« on: January 24, 2009, 01:20:18 PM »
Hello all!  My name is Becky and I am a Christian, homeschooling mom from Alabama.  My boys, William and Jonathan, are ages 8 and 6.  I first learned I had PKD in 2005.  My mom has PKD and is on dialysis also (hemo).  I have had other cousins and an aunt with PKD.

In October 2008 I learned that my kidney function was to the point that dialysis was imminent.  Those fiirst couple of months were rough as I figured out what I needed to do in order to continue to homeschooling the boys.  PD seemed like a great option for me.  I had the catheter placement surgery on Dec 10th of 08 and started my training the last day of the year.  My first day of PD at home was January 13th - not quite two weeks ago.

I am beginning to get in a routine  but it is still all very new to me.  I'm still learning how to get my bags heated at the right temperature (and not too hot) with a heating pad and trying to get a good routine going so that I'm not up all hours of the night (I go to bed early!).  I am looking forward to getting to know you guys.
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
G-Ma
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« Reply #1 on: January 24, 2009, 01:22:45 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #2 on: January 24, 2009, 01:38:19 PM »
Welcome to our community, Becky!  I am very impressed with homeschooling mothers.  I would love to do it, but I don't think I have the discipline it would require. [Can't believe a highschool teacher is saying that, right!]  anyway, you made a good choice when you decided to join us.  this is a great place for information, support and even fun.  Keep reading and keep posting, letting us know how things are going with you.  Let us get to know you and your family.  We have a thread where you can post pictures.   Remember, this is more than a website, it is a genuine family :grouphug;
Looking forward to hearing from you.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willieandwinnie
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« Reply #3 on: January 24, 2009, 01:57:10 PM »
 :welcomesign; Becky. We are so happy you found us. Please post often and we look forward to reading more about you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Rerun
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Going through life tied to a chair!
« Reply #4 on: January 24, 2009, 02:01:20 PM »
Hi Becky, I'm a fellow Christian and am so glad you found us.  Are you doing manual exchanges?  Look into the night time cycler. 

                                                    :welcomesign;
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TynyWonder
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Calvin
« Reply #5 on: January 24, 2009, 02:53:35 PM »
 :welcomesign;  Becky!    I am from Huntsville, Alabama but just recently moved to TN but I was wondering what part of AL do you live in?  I hope you make lots of friends here at IHD, it has become like a family to me!   :cuddle;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
monrein
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Might as well smile
« Reply #6 on: January 24, 2009, 03:00:18 PM »
 :welcomesign;  Becky.  I look forward to getting to know you here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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Gemma - the tucker monster
« Reply #7 on: January 24, 2009, 03:21:00 PM »
G'day and  :welcomesign;
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Wenchie58
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Always carrying the big silly grin!
« Reply #8 on: January 24, 2009, 04:07:02 PM »
 :welcomesign; Becky!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Normie
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Ellie
« Reply #9 on: January 24, 2009, 04:38:27 PM »
 :welcomesign; Becky.

Glad you found this site.  You must have your hands full with doing PD and trying to do homeschooling.

Hope you get that routine worked out soon and things go smoothly for you.

 :bestwishes; from another mom.

Normie
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Normie

Kidney damage 4/22/07

Predialysis
Joe Paul
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« Reply #10 on: January 25, 2009, 09:14:06 AM »
Welcome  Becky, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Romona
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« Reply #11 on: January 25, 2009, 10:07:32 AM »
 :welcomesign;
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joyfulmother
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Becky

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« Reply #12 on: January 25, 2009, 11:38:21 AM »
Quote from: TynyWonder on January 24, 2009, 02:53:35 PM
:welcomesign;  Becky!    I am from Huntsville, Alabama but just recently moved to TN but I was wondering what part of AL do you live in?  I hope you make lots of friends here at IHD, it has become like a family to me!   :cuddle;

I live in the Shoals Area (Florence) - not too far from Hunstsville at all.
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
Zach
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"Still crazy after all these years."
« Reply #13 on: January 25, 2009, 01:13:17 PM »
Good to have you with us!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Wallyz
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« Reply #14 on: January 25, 2009, 09:24:27 PM »
Welcome! My kids are 7&9, so right about the same age. 
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circleNthedrain
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« Reply #15 on: January 26, 2009, 12:21:39 AM »
Welcome Becky!  I hope PD goes real well for you.  I did it for 9+ years with very few problems.
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
paul.karen
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« Reply #16 on: January 26, 2009, 06:50:27 AM »
 :waving; Becky

Glad you found IHD.   :clap;
Hope to see you around on all the boards.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
ahamner
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My Tibetan Spaniel "Bud"
« Reply #17 on: January 26, 2009, 11:58:52 AM »
 :welcomesign;

I am an IHD member, also from Alabama, who has PKD, been on dialysis, and now have a kidney transplant.  Have you considered getting on the transplant list at the University of Alabama in Birmingham?
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Things turn out best for the people who make the best out of the way things turn out - Art Linkletter
Razman
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« Reply #18 on: January 26, 2009, 04:57:07 PM »
Hello from another Christian.  Its great that you joined and hope that we hear from you often.
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petey
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« Reply #19 on: January 26, 2009, 05:19:50 PM »
Welcome, Becky!  Glad you found us.
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idahospud
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« Reply #20 on: January 27, 2009, 04:10:15 AM »
 :welcomesign;
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