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Author Topic: I'm on standby  (Read 10390 times)
Chris
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« Reply #25 on: January 19, 2009, 05:08:04 PM »
I wanted to reply last night/early this morning after getting bounced from chat, but then lost internet connection.

I'm sure this one is a match for you, but at the same time it is sad that a person somewhere close to your location has passed away. Just try to not think about that and work on healing and enjoying life.

Good Luck  Wallyz
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #26 on: January 19, 2009, 07:29:49 PM »
Hopefully, not hearing anything is good news.   All our thoughts and prayers are with you and the donors family   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Wallyz
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« Reply #27 on: January 19, 2009, 09:11:53 PM »
Donor's procedure was put off until morning, so I have another night of waiting.  Arrgh.

I will keep everyone updated.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #28 on: January 19, 2009, 09:13:53 PM »
Did they let you eat? Man, that's a long wait. I hope you can rest some - it must be very tough on you! Keeping good thoughts :2thumbsup;!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wenchie58
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Always carrying the big silly grin!
« Reply #29 on: January 19, 2009, 09:20:02 PM »
Stay positive, I have my fingers crossed for you here!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Chris
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« Reply #30 on: January 19, 2009, 09:37:38 PM »
The ying and yang effect or Catch 22 on the donor. I take it by the information given that the person is on life support, yet you want them to hurry up and die, but at the sametime you do not wish for that or want that. It is frustrating that they make you wait so long. Hopefuly your transplant will go without a hitch and that the donor passes peacefully.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
thegrammalady
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« Reply #31 on: January 19, 2009, 09:47:30 PM »
i am thinking nothing but good thoughts. chin up and alll that..........
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Joe Paul
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« Reply #32 on: January 19, 2009, 10:03:41 PM »
Good luck Wallyz  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #33 on: January 19, 2009, 10:09:19 PM »
 :cuddle; :cuddle; :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
gabby70
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« Reply #34 on: January 19, 2009, 10:21:42 PM »
 :bestwishes; I hope you get the new kidneys real soon! Good Luck! :2thumbsup;
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Wallyz
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« Reply #35 on: January 20, 2009, 06:48:30 AM »
Just got pushed back again.  I wonder if they jumped the gun, getting verbal but not signed consent, and now they are having to cover themselves.
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willieandwinnie
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« Reply #36 on: January 20, 2009, 06:53:39 AM »
:cuddle; Wallyz, something to remember is the kidneys are the last thing to be harvested. Len waited from 2:30am Thursday to almost 1:00pm Friday for the kidney to arrive. If it is the right one for you then it will happen. Please know we are thinking about you and the donor family.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #37 on: January 20, 2009, 07:38:36 AM »
They're not sending you home, so that sounds like a good sign.  Hopefully the wait will bring you to a happy ending.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Wallyz
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« Reply #38 on: January 20, 2009, 09:51:01 AM »
I'm at home- I live 40 mins from the Hospital.
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paul.karen
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« Reply #39 on: January 20, 2009, 09:56:12 AM »
Sorry WallyZ.

I wish you a fast return with a better outcome.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Wallyz
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« Reply #40 on: January 20, 2009, 01:22:52 PM »
Pancreas and Kidney went to guy who needs them, I'm still healthy, and we go back to waiting.
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paddbear0000
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« Reply #41 on: January 20, 2009, 01:55:50 PM »
I'm so sorry!  :grouphug; 
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
jessup
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Gemma - the tucker monster
« Reply #42 on: January 20, 2009, 02:32:19 PM »
Bugger
so sorry mate
 :cuddle;
 :flower; :flower;
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kitkatz
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« Reply #43 on: January 20, 2009, 02:33:47 PM »
Well Rat Caca!   At least you made the list and a call!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
G-Ma
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« Reply #44 on: January 20, 2009, 02:44:15 PM »
So sorry....am I correct in understanding if you got a call you are pretty much at the top of the list now??
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
willieandwinnie
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« Reply #45 on: January 20, 2009, 02:45:41 PM »
I'm so sorry Wallyz  :grouphug; You know you are right up there on the list. We will keep the prayers coming.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!
« Reply #46 on: January 20, 2009, 03:01:17 PM »
Bummer :grouphug;
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www.caringbridge.org/visit/ottomachado
KT0930
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« Reply #47 on: January 20, 2009, 03:46:58 PM »
Sorry this one didn't work out, Wally. The right one can't be too far away now.
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Wallyz
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« Reply #48 on: January 20, 2009, 05:10:52 PM »
I'm good. Thanks for all the well-wishes.  I am near the top of the list.  I just have to run a few more bicyclists off the road.  I wish thier jerseys had their blood types printed on them. ;D
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #49 on: January 21, 2009, 08:26:04 AM »
 :rofl; :rofl; :rofl;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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