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Author Topic: Got my transplant surgery date today  (Read 73973 times)
kellyt
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« Reply #350 on: April 26, 2009, 06:11:14 AM »

Hurry home Gail.  We miss you.  But more than anything we want you well!   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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« Reply #351 on: April 26, 2009, 08:59:57 AM »

 
Hahah Lee is funny!  :rofl;


Saturday, April 25, 2009 6:21 PM, EDT

I just got back from seeing Gail and she continues to improve. The plan is to put a IV connector in by her elbow and then thread a line through her vein ,up her arm and then down into her heart. They will do all this on Mon and then discharge her. This apperatus will allow Gail to give herself 10 days of IV antibiotics while being at home. I asked Gail if a homecare nurse would come over to assist. Gail said one could but why be a burden on the system. Next thing Gail will probably be operating on herself. She figures she will be able to go for walks and eat in restaurants. Gail said it will be like the bionic woman. I was going to respond with "or the bride of Frankenstein"but decided not to push my luck. At any rate things seem good.     Lee


 :yahoo; Best wishes to the bionic woman!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #352 on: April 26, 2009, 01:57:54 PM »

What a good post to read!   I love Lee's sense of humor.  And of course, Gail will do her own antibiotics!   We'll all be glad when she is home and on the mend.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #353 on: April 27, 2009, 11:25:39 AM »

 :clap;

 Sunday, April 26, 2009 5:27 PM, EDT

Just a brief update. Gail is doing great and the plan is to release her tomorrow as expected. The nurses are calling her Sue 2 because the main nurse is also from Jamaica and apparently doesnt tolerate any nonsense. Gail has always agreed with Nietzsche ie "the purpose of life is to create order out of chaos and impose your will" Her lifes work has been to try this on me. Nice to see the 6th floor of the hospital benefitting also, hopefully with better results.     Lee
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #354 on: April 27, 2009, 11:53:54 AM »

Very good news.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #355 on: April 27, 2009, 09:48:18 PM »

 :bandance; :bandance; :bandance; yay! Gail is coming home!!

I was going to mail her card today, but my husband pointed out a little snafu. Does anyone know what kind of postage you need to mail a card to Canada from the U.S.? I put a 42 cent stamp on it, but now he's got me wondering if I need more or even something else entirely.   ???
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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« Reply #356 on: April 28, 2009, 12:32:36 AM »

One more day and then she'll be home!  :yahoo;

Monday, April 27, 2009 5:37 PM, EDT

Hi guys. There been a small change of plans. The powers that be decided that Gails IV should be done by Home Care. I think that"scrupulously clean and Lee" did not seem like a good match to them. Therefore Gail has to spend one more night in the hospital so the supplies can be delivered and Home Care set up. I am supposed to pick her up tomorrow at 10.30am. Really it is just as well since I have to get rid of the dancing girls and naturally they dont want to leave. It is tough being me.      Lee
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #357 on: April 28, 2009, 07:17:50 AM »

Lee is very funny!  Sorry for the days delay, but I'm glad she will finally be coming home.   :2thumbsup;

Paddbear, international postage is different for each country.  Check with the post office.  I know a letter to  France is about 72 cents.  Maybe there is some place online to check rates. Let us know.
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David13
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A meow massages the heart.

« Reply #358 on: April 28, 2009, 07:23:55 AM »

Glad to hear the good news!   :yahoo;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Tinah1968
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ME

« Reply #359 on: April 28, 2009, 07:33:20 AM »

That is WONDERFUL NEWS  :yahoo; :clap;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
rocker
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« Reply #360 on: April 28, 2009, 08:53:39 AM »


Gail said it will be like the bionic woman. I was going to respond with "or the bride of Frankenstein"but decided not to push my luck. At any rate things seem good.     Lee


From the time of the first PD cath ages ago, my geek husband has referred to all such devices as "Borg implants".
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #361 on: April 28, 2009, 09:51:47 AM »


Gail said it will be like the bionic woman. I was going to respond with "or the bride of Frankenstein"but decided not to push my luck. At any rate things seem good.     Lee


From the time of the first PD cath ages ago, my geek husband has referred to all such devices as "Borg implants".

 :rofl; I'm so glad my husband doesn't read this anymore! Otherwise I'd be hearing that as well. Between the chest cath I had, my insulin pump infusion set and my continuous glucose monitor transmitter, I'd never hear rhe end of it.

Paddbear, international postage is different for each country.  Check with the post office.  I know a letter to  France is about 72 cents.  Maybe there is some place online to check rates. Let us know.

I tried using the post office's "calculate postage" feature on their website for international mail. It lets you select a letter, but the prices that come up start at $15. I know that's not right! I was trying to avoid a trip to the post office because it is in the total opposite direction of dialysis or any of my other errands.
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Wenchie58
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Always carrying the big silly grin!

« Reply #362 on: April 28, 2009, 11:17:49 AM »

First class from USA to Canada is .63 cents for the first ounce ( a typical card/letter)

Hope this helps before you run to the Post Office.
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
monrein
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Might as well smile

« Reply #363 on: April 28, 2009, 11:27:01 AM »

Hi everybody, Bride of Frankenstein here.  It's fantastic to be home again, I was wearing out the linoleum in the corridors of the hospital's surgical floor.  I did 40 laps yesterday and would have done even more but they kept tying me down for infusions of antibiotics.  I feel very well and am just waiting for the home care nurse to come in and set up my IV pump system.  I am a hundred percent certain that I could have done it like at the hospital, with a drip and a saline rinse to cap off but they were concerned that I'd be one handed.  LOL.  I figure that if I could  cannulate 2 dialysis needles, tape myself and pull those same needles with one hand then hooking up an IV drip would be a piece of cake.  I think they just want to see where I live...just kidding.
Anyhow, I made a new friend in the hospital...she's Susan, a nurse supervisor there and she's from Jamaica also, really into gardening and we have a ton in common.  She's invited me out to her place in the summer to talk gardening, to see her peony and hosta collection and maybe do a Jamaican meal together.  Cool.  There were so many Jamaican nurses and cleaners on my ward that I barely spoke with my "regular" accent at all while I was there.  We laughed quite a lot and we all know how healing that can be.  I love some of the Jamaican names...like Velora, Delma, Euphenie etc.  and we all reminisced about Jamaica and our favourite foods while lamenting the violence and the changes to the way of life that we grew up with.  I also had the nurse (Jamaican of course) who cared for my donor, Kathy at transplant time and she also met and remembered my brother and Syd.  She commented that she asked Syd how come she kept disappearing up to the 7th floor where I was instead of staying with her Mom and Syd told her that I needed her more right then (that darned catheter requiring constant draining) and that she'd be seeing a lot of Kathy back home but would'nt be seeing me again until June.  Have I ever told you how terrific Syd is??? HaHa. 

I've much catching up to do here and look forward to seeing what I've missed but hope there's no bad news.  Thank you all for your caring comments, both here and on CaringBridge...you know I care about all of you too.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #364 on: April 28, 2009, 12:29:11 PM »

 :welcomesign; back Gail. Hope this antibiotic does the trick. Please take it easy for a few days and catch up IHD threads. We were all worried and Lee was a sweetheart to keep you caringbridge site updated.  :cuddle;
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paul.karen
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« Reply #365 on: April 28, 2009, 12:45:07 PM »

:-)
Glad your back here and back at home :thumbup;

Hopefully this IV treatment will work and you can get back to life 100%+.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
rookiegirl
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« Reply #366 on: April 28, 2009, 12:54:55 PM »

Gail welcome home.  We missed you.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
paris
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« Reply #367 on: April 28, 2009, 02:21:51 PM »

It feels like the world is getting back on track----Gail is home!   :2thumbsup;    You have been missed!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #368 on: April 28, 2009, 02:24:10 PM »

Glad your home Gail.

I hear yah about doing the IV set at home. Spend enough time in the hospital and you learn how to work the machine or do things to get around.

Hopefully you'll be staying out of the hospital for a long time.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MandaMe1986
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« Reply #369 on: April 28, 2009, 05:31:51 PM »

Happy to have you back!  :2thumbsup;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
okarol
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« Reply #370 on: April 28, 2009, 06:04:53 PM »

 :cheer: Oh boy - she's back!!

Gail - tell Lee he cracks me up - and thank him for the updates!

So happy you are better!  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!

« Reply #371 on: April 28, 2009, 06:14:25 PM »

Glad to have u "home" xoxoxox :flower; :cuddle;
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rose1999
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« Reply #372 on: April 29, 2009, 05:09:29 AM »

 :bandance; :yahoo; Gail is well again  :2thumbsup;
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pelagia
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« Reply #373 on: April 29, 2009, 08:10:28 PM »

 :flower; :guitar:  :yahoo;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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« Reply #374 on: April 30, 2009, 02:45:51 AM »

 :flower; :flower; :flower; :flower; :flower;
 :flower; SO glad you are back Gail! :flower;

 :flower; Lee is a hoot, I enjoyed his writing greatly! :flower;

 :flower; Missed You!! :flower;
 :flower; :flower; :flower;
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