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Author Topic: Got my transplant surgery date today  (Read 73974 times)
charee
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« Reply #325 on: April 21, 2009, 06:11:33 PM »

Sending  good thoughts your way hope all goes well :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
okarol
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« Reply #326 on: April 22, 2009, 09:50:17 AM »

UPDATE FROM GAIL'S CARINGBRIDGE PAGE:

 Monday, April 20, 2009 8:08 PM, EDT
Hi guys. You all know what this means. Gail went from feeling great on Sat to feeling somewhat bum on Sun to going to the emerg at 1.30 am on Mon. Its the same problem as before ie. a worsening pain over her old transplant. Gail was really in agony this time. They gave her morphine for the pain and she had another ultra sound at 10.30am. Dr Cole came to visit and said as before there was nothing of note on the scan.He did say however that they were going to schedule an operation to remove the old kidney. He cant understand why this old kidney which hadnt caused any problem for over 24 years would act up now. To be safe he will have another cat scan done to see if any thing pops up but it appears as of now that the operation will go ahead. I sure hope this fixes the infection as it is getting Gail down as you can imagine. I will keep every one updated on tomorrows blog. Of course the good news is that the new kidney is working better than we could have ever hoped for. This fact is important to keep in mind during these set backs. I am exhausted as getting up at 1.30 am. does not seem to agree with me and therefore am going to bed. Take care and thanks for the support.   Lee

Wednesday, April 22, 2009 12:17 AM, EDT
Hi guys. Gail was in some discomfort today and as a result it was decided to operate and remove her old transplant. They had to fit her in on a emergency basis and it didnt happen untill 9.30 pm. I didnt get to talk to Dr Robinette probably because he was operating all day but did talk to his resident at around midnight. He said the old kidney had really no substantial blood supply but had no sign of any infection either. He said Dr Robinette felt this was however the source of Gails problem. I guess time will tell. Gail is alert and in good spirits although how much of the good spirits is related to the morphine pump is any ones guess. I should have more detailed news about Gails prognosis by Wed pm. See you then.    Lee

 :grouphug;  :grouphug;  :grouphug;
« Last Edit: April 22, 2009, 09:53:02 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Cattitude

« Reply #327 on: April 22, 2009, 09:59:13 AM »

 :grouphug;
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« Reply #328 on: April 22, 2009, 10:39:47 AM »

Hang in there smiley.  :)  Best of luck.   :grouphug;
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Wattle
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« Reply #329 on: April 22, 2009, 03:55:31 PM »

 :grouphug; :grouphug; 
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
kitkatz
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« Reply #330 on: April 22, 2009, 04:45:06 PM »

Keep your chin up girl and when it gets you down, know we are cheering you on.   :grouphug;
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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paris
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« Reply #331 on: April 22, 2009, 05:10:26 PM »

Prayers are being said around the world for your full recovery   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
charee
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« Reply #332 on: April 22, 2009, 06:21:41 PM »

 :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
kellyt
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« Reply #333 on: April 22, 2009, 06:22:09 PM »

I hope you're back to your old self really soon, Gail!  We love you!   :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
pelagia
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« Reply #334 on: April 22, 2009, 07:51:16 PM »

Here's another update from Lee at 9:20 tonight:

Gail had a very good day and all the mover and shakers agree that the old kidney had to go.Her temp is back to normal after hitting 39C[102.1F] and Gail did 10 laps of the ward corridor.On the down side she has a large tube in her neck ,numerous IV lines and of course the dreaded catheter.Also Gail is on prednison{I know,I cant spell]which makes her all swell up.Of course Gail is complaining about all this and hopes to have most of this stuff removed tomorrow.I have to laugh when Gail tells me this operation was a snap as the old kidney was close to the surface and of course there was the old incision as a guide.I told her it was a shame they couldnt do it in the back seat of my car while we parked in the hospital drive way.Why we could have been home in time for lunch.There is actually a chance Gail will be discharged by Friday.I of course will keep you all up to date.I may have to go up to our lake cabin and move our dock before it is cut loose.If I do I will be away on Thurs night but will be back by Fri morning.Things are looking up.Take care and thanke again for the support.   Lee
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
rose1999
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« Reply #335 on: April 22, 2009, 10:54:52 PM »

Gail I've only just caught up with this, I hope by now you are on the road to recovery - please hurry back, we all love you and miss that beautiful smile  :cuddle;
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David13
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A meow massages the heart.

« Reply #336 on: April 23, 2009, 07:10:56 AM »

Gail, I am hoping for a very quick recovery so you can get home to some real food!   :cuddle;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
okarol
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« Reply #337 on: April 23, 2009, 07:31:09 AM »

 :cheer: You keep those laps going and you'll be home soon!  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Tinah1968
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ME

« Reply #338 on: April 23, 2009, 07:38:31 AM »

Thinking and Praying for you Gail and hoping for a quick Recovery :grouphug;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
paul.karen
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« Reply #339 on: April 23, 2009, 07:48:39 AM »

Positive thoughts floating your way.
May you be yourself soon :2thumbsup;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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Jill D.
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« Reply #340 on: April 23, 2009, 06:09:52 PM »

Gail, I hope you are feeling better...sorry you have to be on the prednisone. Must be your old kidney did not like her new healthy, sexy neighbor!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #341 on: April 23, 2009, 07:57:48 PM »

I'm so glad to hear things are going better!   :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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« Reply #342 on: April 25, 2009, 12:45:04 AM »


Latest Caringbridge post:

Friday, April 24, 2009 7:34 PM, EDT

Hi guys. I went up to our cabin on Thurs pm and moved my dock. It was freezing but it is done. Visited Gail this aft and discovered she had a slight fever this morning. The powers that be are going to give her what is called a "broad spectrum antibiotic" by IV and keep Gail in the hospital until she is fever free for 48 hrs. I know this sounds familiar but what can you do. The old kidney had to come out and Gails new kidney is working great so we just have to hope this will be the last stay in the hospital for a while, a very long while. All the tubes that were in place post op are gone which is a good thing. I will see Gail tomorrow and keep you up to date.     Lee
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rose1999
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« Reply #343 on: April 25, 2009, 11:40:32 AM »

Thanks for keeping us updated Karol

Gail please know we are all sending loads of love and good wishes your way, hope you will be back soon  :cuddle;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #344 on: April 25, 2009, 02:02:58 PM »

 :thumbup;


 Saturday, April 25, 2009 11:30 AM, EDT


Hi guys. I just talked to Gail and am happy to say she is fever free and feeling much better. Of course this has happened before but lets hope these antibiotics finish off whatever bugs are left. Gail is the toughest person I know and even she gets down with this rollercoaster ride she has been on. But as of this moment she is up, even to the point of telling me how to water the orchids. It seems that the few skills I have do not include taking watering instructions well. I told Gail that the knowledge that all her plants are dying while she is in the hospital will force her to get better. Surprisingly Gail seems not to appreciate this strategy. I want to tell Gails friends from IHD that knowing of their concern motivates me to keep this journal updated and I know Gail appreciates all her friends from IHD even though she has never met any of them. I also want to say that over the years dealing with Gails health problems I just thank God for the Canadian health system. No matter what you have heard I think it is fabulous, not perfect but life saving never the less. Take care      Lee

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MandaMe1986
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« Reply #345 on: April 25, 2009, 02:45:29 PM »

I am so happy to hear this.  She will up and about in no time. Wait and see.  ;)
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
charee
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« Reply #346 on: April 25, 2009, 02:51:45 PM »

Great news thinking of you Gail xx
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
rose1999
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« Reply #347 on: April 26, 2009, 12:00:49 AM »

That's beter news, thanks Karol and Lee for keeping us up to date.
Love to Gail as always  :cuddle;
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rookiegirl
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« Reply #348 on: April 26, 2009, 05:18:02 AM »

I'm so Gail is getting better.  Will continue to keep her in my thoughts and prayers.  Thanks for the update.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
willieandwinnie
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« Reply #349 on: April 26, 2009, 05:55:42 AM »

 :cuddle; Thinking about you Gail.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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