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Author Topic: introduction  (Read 2194 times)
kennube
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« on: January 03, 2009, 06:44:49 AM »
I'm not an ESRD patient, but I have a family member who is.  I'm trying to do some research on calciphylaxis for her.  My google search results included one post from this site ("Is your PCP/HMO trying to kill you? Beware! Be aware!!!"), so I joined in the hopes that I could find out more.
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willieandwinnie
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« Reply #1 on: January 03, 2009, 07:04:14 AM »
:welcomesign; kennube. Bless you for you helping your family member. We are a great group with loads of information and support. Have your family member join us. Hope to hear more from you and now I will go read the thread that lead you here.  :cuddle;

I just read the thread and went to do a search. There is loads of information on calciphylaxis. Somebody else with more information will be along shortly to help you out, I'm sure.

http://en.wikipedia.org/wiki/Calciphylaxis
« Last Edit: January 03, 2009, 07:10:13 AM by willieandwinnie » Logged
"I know there's nothing to it, but I want to know what it is there's nothing to"
nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #2 on: January 03, 2009, 07:05:48 AM »
What do you want to know?   Welcome, ask anything here, you'll get answers.
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
kennube
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« Reply #3 on: January 03, 2009, 07:13:25 AM »
Hi; thanks for the welcome!  I'll post my questions in the general discussion forum.
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Razman
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« Reply #4 on: January 03, 2009, 07:23:01 AM »
It's great that you joined and I hope that you will find the answers that you are looking for.  Please stay in touch and let us know how things work out.
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boxman55
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« Reply #5 on: January 03, 2009, 07:27:10 AM »
great to have you here, kennube, As you are finding out there is a ton of info and support on this site. Please post all your questions and we all will try and help

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
cookie2008
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« Reply #6 on: January 03, 2009, 07:46:58 AM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
monrein
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« Reply #7 on: January 03, 2009, 02:31:32 PM »
 :welcomesign; Thanks for trying to get as much information as possible in order to help your family member.  That's a huge form of support and I'm sure it's greatly appreciated.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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« Reply #8 on: January 03, 2009, 04:03:17 PM »
G'day and  :welcomesign;
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Romona
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« Reply #9 on: January 03, 2009, 06:57:53 PM »
 :welcomesign;
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Joe Paul
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« Reply #10 on: January 03, 2009, 10:56:28 PM »
Welcome kennube, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
G-Ma
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« Reply #11 on: January 04, 2009, 12:59:19 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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