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Author Topic: Thanks to all of you, I think I'm prepared.  (Read 4403 times)
Pam
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« on: December 17, 2008, 10:19:41 PM »

 I've been a member for a long time and I am probably the the biggest lurker around! In Nov when the Dr told me it was time to get a fistula I froze. Everything I had read and learned, was  just gone! Took me a few days of reading and rereading to get my head together. I had the fistula placed yesterday . I will have to have another surgery to lift the vein. I just  wanted to give a  big THANK YOU! To ll of you. All of your posts have not only educated me they have helped to  keep me sane.
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Rerun
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Going through life tied to a chair!

« Reply #1 on: December 17, 2008, 10:24:54 PM »

Stick around!  You may need more encouragement!   AND you can encourage others.  Best of luck.

                                         :flower;
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Run8
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308-850-5711

« Reply #2 on: December 17, 2008, 10:39:28 PM »

hello Pam, nice to meet you. this place is awesome.
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Joe Paul
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« Reply #3 on: December 17, 2008, 11:10:09 PM »

Hi again Pam  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile

« Reply #4 on: December 18, 2008, 05:37:41 AM »

Hey Pam, nice to see you posting.  I'm glad you got your fistula surgery done.  Please keep letting us know how you're doing.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
2_DallasCowboys
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« Reply #5 on: December 18, 2008, 05:40:49 AM »

Hi, Pam,

You are so right, this is the very best site
to learn everything about dialysis!

You will find not only knowledge here, but tons
of support! 

Anne
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Sluff
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« Reply #6 on: December 18, 2008, 06:36:31 AM »

You are welcome Pam that is what IHD is about. Sure we sometimes get involved with current events and fun threads and even politics for awhile but our real and intended focus is ESRD, and Dialysis. Please come back often and post as often as you want.
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paul.karen
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« Reply #7 on: December 18, 2008, 06:42:38 AM »

 :waving; Pam.

Im with you.  As a newbie to this dreaded disease this place has been a godsend.
May your continued journey go smoothly for you.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Zach
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"Still crazy after all these years."

« Reply #8 on: December 18, 2008, 09:01:39 AM »

You'll always have us, Pam!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
boxman55
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« Reply #9 on: December 18, 2008, 09:09:12 AM »

Were here for you Pam. Keep posting we want to know how you are doing...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
paris
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« Reply #10 on: December 18, 2008, 10:28:45 AM »

Pam,  we are glad IHD helped prepare you.  And we are glad you posted.  Everyone here is ready and willing to help anytime you need it.  Keep us updated.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Pam
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« Reply #11 on: December 18, 2008, 11:11:29 AM »

Thanks again. My fistula is now 2 days old. No pain but there is alot of itching. I can feel it and hear it.Is that normal so soon? The only other question I have is this.....Will I eventually be able to use those fingers to test my BS  ? I'm testing 5 times a day and that is going to make for some pretty sore fingers on my right hand.
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kellyt
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« Reply #12 on: December 18, 2008, 11:18:45 AM »

I wouldn't use my fistula arm at all.  That's what I was told, anyway.  But then again, I'm not diabetic and don't have to do BS testing.

And, yes, you should be able to hear and/or feel your fistula right away!  It will get stronger and bigger over the next few months.  Congratulations!  Glad you're back and posting!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
aharris2
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Volcan Pacaya, Guatemala

« Reply #13 on: December 18, 2008, 02:16:49 PM »

Rolando uses a Freestyle meter and tests in his forearm. The meter requires very little blood. You could alternate between your fingers and the forearm on the nonfistula arm.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
nursewratchet
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"Either do it, or don't do it, don't try"

« Reply #14 on: December 18, 2008, 03:27:05 PM »

WOO HOO!!!  Another Fistula :cheer:  Never use the fistula arm.  get in the habit of telling everyone not to use it.  It's for dialysis only and is to be protected.  Always listen for it, if you stop hearing and feeling it, call immediately, either the surgeon or the nephrologist.  You should also be neurologist it, did the surgeon give you a squeeze ball?  If not, get one.  Good Luck!!!!
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
kellyt
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« Reply #15 on: December 18, 2008, 03:36:09 PM »

Be sure not to fall asleep on that arm, either!  It can block the fistula, right Nursewratchet?    I woke up a few times with numb fingers, but that promptly went away when I moved my arm.  Scared me though.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
nursewratchet
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"Either do it, or don't do it, don't try"

« Reply #16 on: December 18, 2008, 03:45:20 PM »

Be sure not to fall asleep on that arm, either!  It can block the fistula, right Nursewratchet?    I woke up a few times with numb fingers, but that promptly went away when I moved my arm.  Scared me though.
  Right, don't carry anything heavy over the arm either.  Good call KellyT, where are our pic's???
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
circleNthedrain
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« Reply #17 on: December 18, 2008, 05:35:48 PM »

Welcome Pam!  Hard to improve on the answers you have received but I think itching is normal during healing after surgery.  Don't use your fistula arm for BS sticks or any other sticks, only for dialysis.  Best of luck and post often!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
monrein
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Might as well smile

« Reply #18 on: December 18, 2008, 05:36:23 PM »

Be sure not to fall asleep on that arm, either!  It can block the fistula, right Nursewratchet?    I woke up a few times with numb fingers, but that promptly went away when I moved my arm.  Scared me though.

 Twice I've woken up scared to death because my arm was cold and numb to the elbow...freaky.  No feeling at all, and to the touch, felt like picking up a dead person's arm.  That never happened to my last fistula which was in my forearm.  I jumped out of bed and slapped my hands together til the feeling returned.  Now I'm very careful about how I sleep.  Nothing worse than feeling for the fistula bruit in a big panic.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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Posts: 6154


« Reply #19 on: December 18, 2008, 06:26:54 PM »

Pam - glad we can help you feel a little better about where you are at, and hopefully a little more educated and calmed. That makes it all worthwhile to be involved here to help others even just a little bit!!

Yes, you SHOULD hear and feel that sucker.. remember if you stop hearing it or feeling the thrill you need to get to the ER ASAP because that's serious!!!

 :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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