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Author Topic: new guy on the block  (Read 5483 times)
Izzy
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« on: December 14, 2008, 07:45:44 PM »

Hi there, Came looking for help. I have diabetes , kidney failure and anemia.
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aharris2
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Volcan Pacaya, Guatemala

« Reply #1 on: December 14, 2008, 07:52:36 PM »

hey how's about telling us more about yourself?????......

cheers

Rolando
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Joe Paul
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« Reply #2 on: December 15, 2008, 12:39:07 AM »

Welcome Izzy, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile

« Reply #3 on: December 15, 2008, 03:34:23 AM »

 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #4 on: December 15, 2008, 05:10:41 AM »

:welcomesign; Izzy. We could use a little more information about you. We are a great group for information and support and love to answer questions when we know what we are answering. Please post more.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
boxman55
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« Reply #5 on: December 15, 2008, 05:43:53 AM »

Welcome to IHD. You have found the right place to get some answers. We are all here to help. Hope you post often, Izzy


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
kellyt
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« Reply #6 on: December 15, 2008, 07:59:43 AM »

I agree that you've come to the right place for answers, questions, rants, raves, etc.  It's all good here!     :welcomesign;

Are you on dialysis yet?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Zach
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"Still crazy after all these years."

« Reply #7 on: December 15, 2008, 08:24:11 AM »

Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
peleroja
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I have 16 hats, all the same style!

« Reply #8 on: December 15, 2008, 08:54:26 AM »

You came to the right place, Izzy.  Lots of good folks with many answers.  Come on back and post lots and tell us more about yourself.  Welcome!
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Romona
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« Reply #9 on: December 15, 2008, 09:15:57 AM »

 :welcomesign;
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jessup
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Gemma - the tucker monster

« Reply #10 on: December 15, 2008, 03:31:43 PM »

G'day and  :welcomesign;
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paris
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« Reply #11 on: December 15, 2008, 04:13:45 PM »

Izzy, welcome to IHD!  This is a great site for information and also for good support.  Members are very willing to answer any questions or help each other through tough times.  Please post more and let us get to know you better.  We are here for you!   :grouphug;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kimcanada
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WWW
« Reply #12 on: December 15, 2008, 06:11:23 PM »

 :welcomesign;
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http://www.kimhoben.com
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G-Ma
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« Reply #13 on: December 15, 2008, 06:40:26 PM »

 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #14 on: December 15, 2008, 10:16:51 PM »

Welcome to our community!  Glad that you found us!  What you are dealing with is common to quite of lot of us here.  Please tell us a bit more about yourself.  You see, we are a family here  :grouphug; and we want you to feel at home with us.  So keep reading and keep posting.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
monrein
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Might as well smile

« Reply #15 on: December 17, 2008, 08:34:21 PM »

This "gentleman" appears to be a salesman in patient's clothing.   Anyone else receive this PM?



Izzy
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rein vivant
« Sent to: monrein on: Today at 09:54:38 PM »
     
We arrange Transplant Surgery in the Philippines with American and British Transplant Surgeons, who have done over 300 Transplants without any rejections or failure. We provide a complete price which includes all the Doctors as well as well as hospital charges for donor and patient services. In countries with no health Insurance for the local population who can not afford a Transplant themselves, earning two dollars a day, there is lots of jealousy and anger over foreigners coming here for a live donor transplant. Therefor to keep the politicians off their backs , the Hospitals and Doctors do not openly advertise and have told me specifically, to not give out their names and address, except in person, within the Philippines. A few years ago an American patient was given the hospital telephone number before he came. He and his family called hundreds of times long distance, always talking to the wrong people, which gave the impression of hoards of foreigners coming for Philippine organs, which are legal to pay for to have a Kidney Transplant from a living donor. The newspapers got wind of the American patients coming for transplants which they printed with the headlines " Wealthy foreigners coming for Philippine organs " With this wave of adverse publicity, the Dept. of Health stepped in and ordered all transplants stopped pending a review of 12 months. This actually happened back in 2001. The cost is $ 70,000. USD of which 37,000 needs to be sent prior to arrival to an American bank. The remaining money is due prior to testing and Surgery. You can meet the donor when you are here and look over his health/ medical record. We can certainly provide you with live donor kidney transplant Surgery within one week of testing to match you with a healthy donor matched to your blood group and a 50 % or better Antigen match according to the HLA test. When you are here you can see the Surgeons credentials and references. Some you can meet in person.
 Sincerely,
 Mitch Michaelson, M.D. and Alberto Gomez
www.liver4you.org

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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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Posts: 43869


« Reply #16 on: December 18, 2008, 06:53:13 AM »

He has been banned for the fourth time.

Mitch Michaelson


-Sluff/Admin
« Last Edit: December 18, 2008, 06:57:02 AM by Sluff » Logged
kidney4traci
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« Reply #17 on: December 18, 2008, 07:27:55 AM »

ah ha... yes I got this too.  What an ass.  Thanks Sluff... this is read after I pm'd you.
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
breezysummerday
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« Reply #18 on: December 18, 2008, 08:35:18 AM »

Hi there, Came looking for help.

Creep...came fishing more like it.

 
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: December 18, 2008, 08:36:36 AM »

I apologize to anyone who received a similar solicitation from Mitch the Organ Broker. He has been determined to weasel his way on to this forum after being banned.

We do our best to screen all new registrations but once in awhile someone slips under the radar.

Thank you to those members who notified admins about the PM's.

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #20 on: December 18, 2008, 10:15:15 AM »

He always finds a new angle.  This time he contacted people who may not have been aware of his history and his discussions here in the past.  You would think he would get the idea!              :Kit n Stik;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #21 on: December 18, 2008, 11:50:55 AM »

I wrote to the organization that he sponsors in hopes that he gets the idea that i will not go away. I'm not sure what the laws on Internet harassment are at this time, but i am investigating it as we speak. I vow to do everything in my power to eliminate this guy from IHD. What he dos not understand is that he is really offensive towards many people here at IHD, and that if he really cared about people he would handle his business appropriately. He has been given plenty of time when Epoman was still with us to speak his mind, and it gave many here a chance to explore his services and or views. No one was interested and we are not interested in exploring his services or exploiting his services on Epomans forum. He is not wanted here at IHD and never will be. There are so many other places on the Internet where he could freely advertise his greed, which only makes me question his motive for making peoples lives miserable here at IHD. Is this the works of a caring person who really wants to help those searching for transplant options? or is this a scam to line his own pockets and his cohorts pockets. The answer is clear.

~ Sluff/Admin
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Zach
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"Still crazy after all these years."

« Reply #22 on: December 18, 2008, 12:26:05 PM »

He's a boil on the butt of humanity!

Thank you Sluff.
 :beer1;
Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
monrein
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Gender: Female
Posts: 8323


Might as well smile

« Reply #23 on: December 18, 2008, 02:07:30 PM »

Thanks Sluff.  And I think that both your and Zach's assessments of what he is, is spot on.   Creepy wingnut.
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
Member for Life
******
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Gender: Female
Posts: 17042


« Reply #24 on: December 18, 2008, 07:22:43 PM »

The big stick is at work   :Kit n Stik; :Kit n Stik; Go admins go!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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