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Author Topic: Hello  (Read 2182 times)
jessiesgirl
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« on: December 05, 2008, 11:37:07 AM »

Hello everyone.  I am new to this website.  I heard about it from one of my customers and think it's a much needed site.  I do not have CKD but I have been working in the dialysis community for about 5 years now.  I am amazed at how little is known about CKD and dialysis by the general population.  Everyone in the world has heard of Mad Cow disease when there were just a few cases ever reported and yet we have over 400,000 dialysis patients in the US and very few people understand what dialysis is, what impact it has on the lives of our patients and what can be done to help educate everyone about the risk factors for developing CKD.  How can we translate a site like this that targets the dialysis community into an effort to educate the masses?  For now, we can all talk to everyone we know to get them thinking about CKD and it's most prominent precursors, hypertension and diabetes.
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jessup
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Gemma - the tucker monster

« Reply #1 on: December 05, 2008, 12:42:58 PM »

G'day and  :welcomesign;
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rookiegirl
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« Reply #2 on: December 05, 2008, 01:01:57 PM »

 :welcomesign; aboard.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
cookie2008
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« Reply #3 on: December 05, 2008, 02:33:31 PM »

 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
boxman55
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« Reply #4 on: December 05, 2008, 02:36:20 PM »

Welcome to IHD. so glad you joined us. We try every day to let people know about CKD one way is to let them know about IHD. Hope you tell everybody and welcome again


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
monrein
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Might as well smile

« Reply #5 on: December 05, 2008, 04:32:35 PM »

 :welcomesign;  and thanks in advance for helping to spread the word about ESRD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #6 on: December 06, 2008, 01:35:37 AM »

Welcome to our community!  We do share your feelings here - there is lots of misinformation concerning this very serious problem of renal failure.  We like to think that we are doing our bit by our promotion of this website where the buzz word is "Information is Power!" 
You told us that you work in the dialysis community, but you didn't specify.  We like it when workers join us, in fact when anyone joins us, because then we feel they get to see somethings from the perspective of the patients.
The site has become a real family  :grouphug; and we welcome you among us.  There is lots to read here, lots of information, lots of questions to be answered.  So keep posting.
Looking forward to hearing from you.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Joe Paul
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« Reply #7 on: December 06, 2008, 02:24:39 AM »

Welcome jessiesgirl, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #8 on: December 07, 2008, 04:13:20 AM »

  :welcomesign; jessiesgirl. Please pass the word about is.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
annabanana
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« Reply #9 on: December 07, 2008, 02:34:13 PM »

 :welcomesign;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
pelagia
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« Reply #10 on: December 07, 2008, 04:46:03 PM »

 :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Ang
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« Reply #11 on: December 07, 2008, 05:02:25 PM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
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