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Amanda From OZ
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« on: August 23, 2006, 03:02:43 AM » |
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Hello All...
I am not sure if this is the right section to post this in but i wanted to ask the people who are on a waiting list what blood group they are and how long they have been waiting on the list for.
I myself am- 0 Rh Positive and have been waiting 2 and half years.
Topic moved to appropriate section - Bajanne2000\Moderator
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« Last Edit: August 23, 2006, 09:48:41 PM by bajanne2000 »
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MelissaJean
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it's better to find peace than understanding
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« Reply #1 on: August 23, 2006, 04:59:13 AM » |
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I am A positive, although I have only been on the transplant list one month.  In Northern California the waiting list for A blood type (as I was told by my center) is 4-6 years and for 0 it is 5-7 on average. |
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~Melissa~
"just run with me through rows of speeding cars"
- Born with Cystic Fibrosis
- Received double lung transplant 11/9/2001
- Complications from transplant: Diabetes, Kidney Failure
- Started dialysis 6/6/06
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Amanda From OZ
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« Reply #2 on: August 23, 2006, 05:31:49 AM » |
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Thanks! what a long time  |
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scyankee
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« Reply #3 on: August 23, 2006, 07:59:51 AM » |
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Hi Amanda,
I am O+ and have been on the transplant list in Georgia for 16 months. They keep calling to ask if I have a
living donor and I say the same thing "NO". Expect to be 5 years or more on the list.
SCYankee
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BigSky
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« Reply #4 on: August 23, 2006, 09:20:40 AM » |
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I'm type O. Not on the list at the moment. Waiting a bit for something better than the steroid therapy. However the first time on dialysis once I was on the list it was only 6 months before a transplant.
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charee
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« Reply #5 on: August 23, 2006, 04:45:25 PM » |
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Iam b positive and am half way through the tests to get me on the list. Been told it will be at least 5 years waiting list.
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
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Amanda From OZ
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« Reply #6 on: August 23, 2006, 04:47:08 PM » |
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i guess it would be different in every country. In Australia the average waiting time is 3 years.
where are you all frrom??
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charee
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« Reply #7 on: August 23, 2006, 04:50:51 PM » |
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Hey Amanda I 'm from aus also and have been told 5 years. I have a 25 years old friend also on the list and she has been on it for 4 years and has never had a call up. What hospital are you under ? I am under the Dr at Royal prince Alfred in Sydney.
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
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Rerun
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« Reply #8 on: August 24, 2006, 12:30:41 AM » |
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I'm from Northern California too and have been waiting 6 months with a A type blood. I don't think the + or - matter. But hey, Labor Day is coming up!!  |
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angieskidney
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« Reply #9 on: August 24, 2006, 05:38:23 AM » |
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I am O+ and have been waiting now for 5 years and counting ..
I am from Ontario Canada only minutes away from the American border.
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ahamner
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My Tibetan Spaniel "Bud"
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« Reply #10 on: August 24, 2006, 12:52:28 PM » |
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I am from Alabama and my blood type is AB. I have been on the list for three months and was told to expect 4-5 years. People with A or B or O have a slightly longer wait time.
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Things turn out best for the people who make the best out of the way things turn out - Art Linkletter
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livecam
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« Reply #11 on: August 24, 2006, 06:06:46 PM » |
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I'm a blood group A person and waited a total of about 2 years and 3 months on the list until transplant. Total time on dialysis was 2 years and 9 months. Total time so far with the transplant is almost 4 years and 10 months. I live in southern California and was multiple listed at two transplant centers. It is a strategy everyone should consider for a faster transplant.
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kitkatz
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« Reply #12 on: August 24, 2006, 10:02:25 PM » |
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O+ Not listed yet....Seven and a half years and counting...
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 lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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Amanda From OZ
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« Reply #13 on: August 25, 2006, 08:10:19 PM » |
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damnit that list is long |
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Mike
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« Reply #14 on: August 29, 2006, 07:25:54 AM » |
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Hi, I'm O and had my transplant just over 6 months ago. I'm in the UK and was on the list for 16 months. Mike  |
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omapat
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« Reply #15 on: September 02, 2006, 11:44:46 PM » |
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I'm an O+ I started all my blood workup 6 years ago and in 20 days I go to UCSF for the eval. Don't even know if I quailify yet but I have really good insurance does that count?
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OmaPat
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Amanda From OZ
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« Reply #16 on: September 03, 2006, 01:06:30 AM » |
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I'm not to sure if insurance counts, well not in OZ anyway |
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omapat
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« Reply #17 on: September 03, 2006, 01:15:56 AM » |
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Oh in California??? maybe?? but still not real sure I want a transplant of someone else's body parts??
It makes me queezy to think someone has to die so I can live.... Just don't know how I feel about this... and did'nt have to think about it until I got the call last week for the eval.
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OmaPat
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Amanda From OZ
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« Reply #18 on: September 03, 2006, 01:24:44 AM » |
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Well i only know about Australian Patients, and if your health is good, then ANYONE can get on the list. My father has had a transplant for 26 years my sister 10... i am still waiting. I know its hard to think that someone has to die for you to live, but i guess there dead ... they don't need there organs in heaven Everyone is different............ i myself couldn't live on dialysis... transplant all the way Amanda |
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Sara
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« Reply #19 on: September 03, 2006, 07:10:12 AM » |
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Oh in California??? maybe?? but still not real sure I want a transplant of someone else's body parts??
It makes me queezy to think someone has to die so I can live.... Just don't know how I feel about this... and did'nt have to think about it until I got the call last week for the eval.
They don't have to die for you to get the transplant. They're dying anyway. Their organs would just 'go to waste' if you or someone else didn't receive the transplant. |
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Sara, wife to Joe (he's the one on dialysis)
Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
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kevno
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« Reply #20 on: September 08, 2006, 09:02:44 AM » |
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Don't ask what it means I have just been reading my "National Blood Service Antibody Card" We all get them in the UK, that is if you ASK  . When I asked the Doctors they are very hazy with the answer. Blood Group: A RhD Positive Antibodies : Anti-K Been on and off the list this time for over 19 years. Was on the list 1 Year before my Transplant failed. So been waiting for another Transplant for 18 years. |
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But this little saying keeps me going!!
"RENAL PATIENTS NEVER GIVE UP!!!!!!"
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goofynina
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« Reply #21 on: September 08, 2006, 10:19:27 AM » |
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Hey Kevno, long time no see, where ya been buddy? is everything ok? glad to see your ok  |
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kevno
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« Reply #22 on: September 08, 2006, 01:42:22 PM » |
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A long story. A bit of a disagreement with Epoman, we have both made up now   |
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But this little saying keeps me going!!
"RENAL PATIENTS NEVER GIVE UP!!!!!!"
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goofynina
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« Reply #23 on: September 08, 2006, 02:05:07 PM » |
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Well, i am glad to see you are back and doing good, DONT SCARE ME LIKE THAT AGAIN!!! |
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tamara
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« Reply #24 on: September 08, 2006, 07:26:08 PM » |
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Don't ask what it means I have just been reading my "National Blood Service Antibody Card" We all get them in the UK, that is if you ASK . When I asked the Doctors they are very hazy with the answer.
Blood Group: A RhD Positive
Antibodies : Anti-K
Been on and off the list this time for over 19 years. Was on the list 1 Year before my Transplant failed. So been waiting for another Transplant for 18 years.
Kevno, that is just wrong being on the waiting list for so long. I would be writing to everyone under the sun to get this noticed. This is the problem, how do you know you are actually on the list, its just trusting the health system that you are . It's not like we get a letter " Congratulations you are now on the list " There's always that doubt in the back of my mind, is everything cool with my info and being on the list. |
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« Last Edit: September 08, 2006, 07:28:27 PM by tamara »
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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