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Author Topic: Hey from Anchorage, Alaska!  (Read 4696 times)
escobarak
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« on: November 26, 2008, 06:09:00 PM »





EDITED: Moved to Proper Section - Sluff/Administrator
« Last Edit: February 12, 2009, 02:24:37 AM by escobarak » Logged
boxman55
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« Reply #1 on: November 26, 2008, 06:38:48 PM »
Hello Joe, Welcome to IHD. When I first started dialysis I felt the same way you are. Most people can't grasp all the problems that occur with kidney failure. No matter how you try and explain what your going thru. We here do and can grasp it all and I want you to get to know our site and interact with our members. When you ask questions you will get straight answers and I can't guarantee that you will feel any differant but you will at least have a feeling of welcome...

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
breezysummerday
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« Reply #2 on: November 26, 2008, 06:59:44 PM »
HEY!!!!
I'm in anchorage too.

Yes,  there is someone to talk to ....... :cheer:

My name is deborah and my s/o is stage 5.  He
started dialysis at the beginning of June.

Ray goes tues, thrus, sat,  usually at nite to the laurel street
center.  How bout you? Oh my gosh, I'm glad you found
IHD.  Everyone is very friendly and has so much experience
to share.  Alright....hope to talk soon.     
                                                                    :cuddle;
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
jessup
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Gemma - the tucker monster
« Reply #3 on: November 26, 2008, 07:01:44 PM »
G'day and  :welcomesign;
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Rerun
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Going through life tied to a chair!
« Reply #4 on: November 26, 2008, 07:07:53 PM »
Hi Joe and welcome to IHD.  You are just starting dialysis so give yourself a break.  It is hard at first but the more you learn about your issue the more at ease you will be.  I guess the good news is you can live without kidney function.  I know you don't want to hear this but people live years on dialysis.  If you have a chance for a transplant that would be the best.  Hang in there and just come on this site and read lots of post.

                            :welcomesign;
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kellyt
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« Reply #5 on: November 26, 2008, 07:41:33 PM »
:waving;  Joe!    You should be happy to know that you have come to the right place!   You NOW have people to talk to who most definitely understand what you're going through.  In time you will feel right at home!  So rant away!!!   :rant;   Cry if you want!   :'(     We aren't going anywhere!!!!     :popcorn;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
G-Ma
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« Reply #6 on: November 26, 2008, 08:46:27 PM »
 :welcomesign;  to the best place, best people...I felt like you when this started but I found this site and started giving my family and friends all the info I got here and that has helped a lot...most people just don't know about kidney failure until it hits them in the face so it's up to us to educate everyone.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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« Reply #7 on: November 26, 2008, 11:48:46 PM »
Welcome escobarak, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #8 on: November 27, 2008, 04:11:51 AM »
:welcomesign; Joe, You have found the support and information you need. We are only a keyboard away. Happy Thanksgiving and please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Ang
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« Reply #9 on: November 27, 2008, 02:28:12 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Zach
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"Still crazy after all these years."
« Reply #10 on: November 27, 2008, 02:44:20 PM »
Good to have you join our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
monrein
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Might as well smile
« Reply #11 on: November 27, 2008, 03:04:41 PM »
Joe, neither your tears nor your pain is invisible to those of us here.  We're very very familiar with both and you are most definitely NOT alone.  I started dialysis at 26 and it's been a long road but I had a transplant for 23 years and am hoping to get another.  You can complain and rant here, we understand.  You can be sad and angry here, we understand.  You can ask any questions you have here, we'll do our best to help you find an answer, we understand what it's like to be confused by all there is to figure out.
 :welcomesign; to IHD.  I hope you'll post often and please know that WE care.
 :cuddle; 

PS You are too young to have to deal with this @#%* but we all know by now that life simply isn't all that fair.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #12 on: November 28, 2008, 09:42:17 AM »
 :welcomesign;
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paris
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« Reply #13 on: November 28, 2008, 10:27:33 AM »
Hi Joe  :cuddle;  We are so glad you are here!   I think all of us have felt similar to you.  My family loves me, but they really can't grasp the whole thing.  "Mom is tired today" "She isn't feeling good"  But on the other hand, they think I can do everything I have always done.  So, I come here for complete acceptance and understanding.   You are dealing with this at a very early time in your life and I am sorry for that.   You will gain many friendships here.  You can rant and complain all you want to; that is why we are here.  We support each other and we also make each other laugh.   We really are happy you joined and look forward to reading more of your posts.  You aren't alone!    :grouphug;



paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Normie
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Ellie
« Reply #14 on: November 28, 2008, 10:56:12 PM »
Hi Joe and   :welcomesign;

Glad you joined.  There are a lot of caring and understanding people here. 

Normie
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Normie

Kidney damage 4/22/07

Predialysis
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #15 on: November 29, 2008, 02:42:56 AM »
Welcome to our community, Joe!  I am so glad that you found us!  This site has been (and still is) a very important weapon in  my dealing with this renal challenge that life has sent my way.  This is the place for information, support (from people who REALLY understand) and even some fun. Really, this is more than a website.  You will find out that you have joined a caring and sharing family.  :grouphug;  So, read at much as you can, and post as much as you can.  Feel free to rant, rave, rage, vent as your need is.  We are here for you.
Looking forward to hearing from you.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
annabanana
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« Reply #16 on: November 29, 2008, 09:33:14 AM »
 :welcomesign; Joe. You're not alone anymore.
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
escobarak
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« Reply #17 on: December 08, 2008, 04:20:16 PM »
thank you to everyone for your kind words. your support is touching and i look forward to sharing my journey with all of you.  :boxing;
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breezysummerday
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« Reply #18 on: December 11, 2008, 10:30:06 AM »
 :2thumbsup;
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
wrandym
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Whatever, dude!
« Reply #19 on: December 11, 2008, 12:55:40 PM »
Hi Joe!

I know how you feel as I am pretty new to all of this, too and it is a lot to get your head around.  This place was described to me in my intro as "a soft place to land" and I can't agree more.  Many good people here.  You have come to the right place.   :)
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Abyssus abyssum invocat

1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
aharris2
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Volcan Pacaya, Guatemala
« Reply #20 on: December 12, 2008, 04:10:55 AM »
Quote from: escobarak on December 08, 2008, 04:20:16 PM
  :boxing;

 :waving;
Good for you Joe.
So tell us, are you and breezysummerday's Ray in the same center? We will want pics of the first (?) IHD Anchorage get-together.

Alene
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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« Reply #21 on: December 12, 2008, 06:22:22 AM »
Welcome Joe,

Glad to see you here at IHD. Ask all the questions and I'm sure you will get answers. Enjoy your stay and visit often and post as often as you like.

Sluff/Admin
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escobarak
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« Reply #22 on: December 12, 2008, 12:43:43 PM »
Quote from: aharris2 on December 12, 2008, 04:10:55 AM
Quote from: escobarak on December 08, 2008, 04:20:16 PM
  :boxing;

 :waving;
Good for you Joe.
So tell us, are you and breezysummerday's Ray in the same center? We will want pics of the first (?) IHD Anchorage get-together.

Alene

we are indeed! we are dialyzing on opposite days, however.  :thumbdown; Hopefully at some point I will run into breezy and her husband. Or maybe we can plan some kind of dinner.   :grouphug; The more support, the merrier I say!
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aharris2
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Volcan Pacaya, Guatemala
« Reply #23 on: December 12, 2008, 09:19:16 PM »
Joe,

Can you see Russia from where you live? :rofl;

Alene
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
escobarak
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« Reply #24 on: December 12, 2008, 09:49:03 PM »
Quote from: aharris2 on December 12, 2008, 09:19:16 PM
Joe,

Can you see Russia from where you live? :rofl;

Alene

LOL, yes, and therefore I have foreign policy experience!  :sarcasm;
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