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Author Topic: Chris is in the hospital  (Read 28488 times)
pelagia
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« Reply #50 on: November 14, 2008, 04:13:38 AM »


CMV --> :Kit n Stik;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Sluff
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« Reply #51 on: November 14, 2008, 07:12:57 AM »

Just what Chris needed...weight loss  >:D
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willieandwinnie
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« Reply #52 on: November 14, 2008, 12:46:46 PM »

Any more news on Chris?  :waving;
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monrein
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Might as well smile

« Reply #53 on: November 14, 2008, 03:08:04 PM »

I'm wondering if the CMV had something to do with Chris often not feeling very hungry.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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« Reply #54 on: November 14, 2008, 10:31:54 PM »

I was talking with him today and he is worried because he is spilling protein. He will be under going some more tests so he is not going home yet. Lets say some extra prayers for him.   :grouphug;
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Wattle
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« Reply #55 on: November 14, 2008, 10:41:06 PM »

 :grouphug;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
graftgurl
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Does banging your head help one's memory?

« Reply #56 on: November 15, 2008, 12:04:18 AM »

Chris, you're in my circle of prayer   :grouphug;
Hang in there, "this too shall pass..."  It's just not always easy waiting it out. 
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graftgurl
CKD in fall '03
leg graft July 9 '08 (2 days after my birthday)
began hemodialysis August 21 '08
petrified to apply for transplant b/c of other health issues
Type 1 diabetic for 37 years
single mother of teenage daughter
     who was a 29 week preemie due to Mom's short-term
     kidney failure and resulting in emergency c-section
kellyt
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« Reply #57 on: November 15, 2008, 12:22:55 PM »

 :grouphug;   Hang in there, Chris!   You'll be up and at'em soon enough!   Know that we miss you!!!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kimcanada
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« Reply #58 on: November 15, 2008, 03:19:20 PM »

TO send Chris a new e-mail... is it the same room?
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pelagia
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« Reply #59 on: November 15, 2008, 03:22:50 PM »

thinking of you Chris!  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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Stopping to smell the bluebonnets

« Reply #60 on: November 15, 2008, 05:37:09 PM »

Still thinking about you Chris and hoping everything turns out okay!
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Cadaver transplant April 29, 2007
rose1999
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« Reply #61 on: November 15, 2008, 11:08:00 PM »

I emailed Chris a few days ago, do you think he'd like another?.........Don't want to pester him but just want him to know we are all wishing him well.
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okarol
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« Reply #62 on: November 15, 2008, 11:50:55 PM »

I emailed Chris a few days ago, do you think he'd like another?.........Don't want to pester him but just want him to know we are all wishing him well.

Rose, I think he would appreciate emails. I have been texting back and forth on my phone. He says he might get out Sunday. I think he's waiting to get an endoscopy.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rose1999
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« Reply #63 on: November 16, 2008, 01:18:55 AM »

Thanks Karol.  Have just sent another - hope he's home soon.
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okarol
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« Reply #64 on: November 16, 2008, 09:42:40 AM »

That's great. Thanks Rose.


FYI To email Chris at the hospital please note his room number has changed to 802 - www.provena.org/stjoes/patientemail


Chrs is still in room 802. He just let me know he will be there until Tuesday. Keep those emails coming!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #65 on: November 16, 2008, 07:34:48 PM »

thanks for the update.  I just sent another note.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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« Reply #66 on: November 17, 2008, 04:19:36 AM »

 :birthday; Chris git well soon  :grouphug; Carol
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okarol
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« Reply #67 on: November 17, 2008, 02:56:35 PM »


Chris has been receiving the emails from our members - and happy to get them!
He has to get "scoped" tomorrow so is on liquid diet only - which is not much different from what he's been eating due to to difficulty digestion problems anyway.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kimcanada
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« Reply #68 on: November 18, 2008, 02:06:25 PM »

I just emailed Chris again, I am SURE he is getting bored stiff...   I hate hospitals  :banghead;
« Last Edit: November 18, 2008, 02:10:32 PM by kimcanada » Logged

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okarol
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« Reply #69 on: November 18, 2008, 02:23:50 PM »



They did an endoscopy - I think - took tissue samples. He's still not feeling great so he will be in at least until tomorrow.

I sent another email - the hospital staff probably thinks I have nothing else to do!  :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #70 on: November 18, 2008, 02:41:53 PM »

I confess I only sent one email but I have been texting daily. ( is texting a word?)
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Jess21
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« Reply #71 on: November 19, 2008, 08:52:12 AM »

I confess I only sent one email but I have been texting daily. ( is texting a word?)
yes it is, according to dictionary.reference.com!
tr.v.   text·ed, text·ing, texts

1.  To send a text message to: She texted me when she arrived.
2.  To communicate by text message: He texted that he would be late.
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
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« Reply #72 on: November 19, 2008, 08:53:52 AM »

And an update:
I text (or texted according to the Sluff vocabulary) Chris, and he said he's being set free today, but still waiting on tissue test results.
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
willieandwinnie
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« Reply #73 on: November 19, 2008, 09:08:29 AM »

:thx; for the update Jess21. I hope Chris is doing better. We have been dealing with stomach issues since transplant last Sept. Hope they figure out whats going on.  :grouphug; to you Chris.  :cuddle;
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twirl
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« Reply #74 on: November 19, 2008, 12:52:40 PM »

I confess I only sent one email but I have been texting daily. ( is texting a word?)

sluff    text is a four letter word
holy crap---- Sluff, reading your post made me remember the cat/dog food post for free kibbles for pounds
                 I have not done that in months
                          :'(
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