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Author Topic: Hall-a! From Albuquerque, NM.  (Read 5215 times)
Rivy
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« on: November 07, 2008, 09:36:52 AM »

 :waving;  Hello all on this site,

My name is Johnny from Albuquerque, NM.  I'm 46 years old and have been on dialysis for 2 years and 10months.   I'm having treatment at Fresenius Medical Care which is the other one from UNM dialysis center.    I will be transfer to another closer facility in two weeks.  I have a fistula and doing button holes not on the blunt needles yet.    It's ok, but sometimes I hate going to dialysis for treatment and I've missed several treatments.   It's just tough to get motivated and go to a depressing center where you see other old people hopeless in trying to do better for themselves.    I work as a teacher in an elementary school and somedays it gets triring at times where I have to have a day off.  It's great that my boss understands.   I love to hike, garden, swim, do projects, and see movies.   I really don't talk to anyone at the dialysis center or that is no one that is on the treatment the same time.  I just don't like to hear how depress they are.  I do talk to a tech that we are getting close, but I jsut donlt like getting too close to the techs.   I'll be on and and looking at this site for anwsers to some of question that come up during this time.     I may evening ask some questions as well. 

Thank you for taking time to read my intro.

Sincerely,
Rivy aka Johnny



Edited:  Fixed smiley error - paris, Moderator
« Last Edit: November 07, 2008, 10:00:37 AM by paris » Logged
Zach
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"Still crazy after all these years."

« Reply #1 on: November 07, 2008, 09:39:14 AM »

Great to have you with us!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
xtrememoosetrax
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« Reply #2 on: November 07, 2008, 09:47:02 AM »

 :welcomesign;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
willieandwinnie
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« Reply #3 on: November 07, 2008, 10:14:00 AM »

 :welcomesign; Johnny. Glad you found us. We are a wonderful group with so much information and lots of support. Join in the fun.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paul.karen
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« Reply #4 on: November 07, 2008, 10:46:01 AM »

 :waving;
 :welcomesign;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Razman
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« Reply #5 on: November 07, 2008, 01:42:11 PM »

It's great that you joined and I hope that you will stay in touch.  You were so straight and honest about your feelings and you are no different than many other and that is why we joined IHD and share our concerns and suggestions.   :welcomesign;  :canadaflag;
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monrein
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Might as well smile

« Reply #6 on: November 07, 2008, 01:54:43 PM »

 :welcomesign;  Johnny.  It's definitely a tough road we're on but one thing about this site is it really reinforces that we're not alone and that coping is indeed possible.  I hate hearing the horror stories about some of the units because mine is good and it makes such an enormous difference for us patients. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!

« Reply #7 on: November 07, 2008, 02:05:13 PM »

Johnny I'm so glad you found us.  I hope you like your new center and they treat you well.

                                            :welcomesign;
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jessup
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Gemma - the tucker monster

« Reply #8 on: November 07, 2008, 02:24:10 PM »

G'day and  :welcomesign;
From one "chalkie" to another
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Wattle
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« Reply #9 on: November 07, 2008, 05:19:35 PM »

 :waving;  Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
boxman55
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« Reply #10 on: November 07, 2008, 05:41:29 PM »

Hi Johnny, welcome to IHD we have a number of members that live in Albuquerque also. look forward to your posts

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Ang
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« Reply #11 on: November 07, 2008, 06:27:36 PM »

 :welcomesign; johnny
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live  life  to  the  full  and you won't  die  wondering
pelagia
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« Reply #12 on: November 07, 2008, 06:45:31 PM »

 :welcomesign; Johnny
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #13 on: November 07, 2008, 08:14:16 PM »

 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #14 on: November 07, 2008, 08:54:04 PM »

Welcome to our community!  We are so glad that you joined us.  We are fellow-educators, and I know how that can be.  This website can be a good refuge for all of us facing this renal challenge.  Please take advantage of all it has to offer - information, support, and even some fun.  Remember that you are now part of a caring and sharing family  :grouphug;  So keep reading and keep posting.
Looking forward to hearing from you. :flower;



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Normie
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Ellie

« Reply #15 on: November 08, 2008, 01:24:03 PM »

 :welcomesign;  Johnny

Glad you are here.  Tell us some more about yourself.  Married?  Kids?

Looking forward to hearing from you.

Normie
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Normie

Kidney damage 4/22/07

Predialysis
idahospud
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« Reply #16 on: November 09, 2008, 01:24:15 AM »

 :waving; :welcomesign; Jonny good to have you here
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Katey
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« Reply #17 on: November 09, 2008, 10:50:39 AM »

I am also new to the site as of last night and I have all ready learned MORE from these individuals than I have in 15 yrs from the medical profession.  You will love it.  Everyone here is very welcoming and non judgmental.

Look forward to reading your posts!!
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Diagnosed July 1985
Started CAPD 1995
Changed to Hemo 1996
Cadaver Transplant 1999
Back on Hemo Aug 2008
Found this wonderful site Nov 2008!!
Wallyz
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« Reply #18 on: November 09, 2008, 12:58:44 PM »

Hey- Good to meet another 'Burque Boy  I grew up in Los Alamos, but lived in ABQ after we were married.  My sister and Grand father still live there.
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Joe Paul
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« Reply #19 on: November 09, 2008, 11:45:24 PM »

Welcome Johnny, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paris
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« Reply #20 on: November 10, 2008, 12:08:05 PM »

Hi Johnny!  Glad you are here.  Our name may sound negative, but this is a very postive group of people.  It helps all of us to talk to others who truly know what we are dealing with.  There is tons of information here, lots of support, and even some laughs.   So, I hope you post often and we can learn more about you.   We are here for you  :grouphug;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Rivy
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« Reply #21 on: November 14, 2008, 05:01:19 AM »

Great to have you with us!
 :beer1;

Hello Zach,  Thank you.  You must be amazing to last this long, 26 years. Wow!  Are you doing button holes?  Way is it so long before you get a transplant?  I can't even be on the list due to them saying that I'm prone to infection?  I just don't get it.  how do you keep your spirits up going to the center?  Have you ever thought of home dialysis?
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Rivy
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« Reply #22 on: November 14, 2008, 05:12:29 AM »

:welcomesign;
:waving; Thanks everyone for giving me a warm welcome.  This made me feel better that I'm not the only one out here.   I get really confussed at times when I'm at the center in my treatment.   I'm from a small town up in Clovis, NM.  where I was raised there.  I went to Tucson, AZ.  for my last kidney opreration on hydronerphersis and then that is where it started to have my kidneys start to downgrade slowly.  It took 30years before they told me that my kidneys are doing bad and I would have to start kidney dialysis soon.  It's been  almost 3years since I've been on the hemo- dialysis.   
 I'm not married and no children.  I usually am working on my house and when I feel ok I go to the gym and take a swim.   That is only if I'm up for it.  I travel 4.5 miles to get to the center for my treatment.   

Just some more info for you all and thanks again.
Rivy aka Johnny
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iowakitkat
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« Reply #23 on: November 15, 2008, 02:01:34 PM »

Johnny --
The depression from other patients can seem contagious some times, but if you talk to patients who share your time slot you'll undoubtedly find some who smile and even laugh through their troubles. And sometimes it just helps to talk about the very real reasons we're depressed.
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