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Topic: Hello (Read 4207 times)
iowakitkat
Newbie
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Posts: 10
Hello
«
on:
November 01, 2008, 02:14:16 PM »
My name is Kathy. I'm soon to be 62 (December 29) and I've been on hemodialysis for a little over a year and a half.
My End Stage Renal Disease was due, in large part, to diabetes.
I did manage to full time for about 16 months after I started dialysis but the last year has caused some major changes in my life.
I did make the Mayo transplant list in inactive status (until I lose weight) but In January 2008 started experiencing problems with my right foot and leg which resulted in late August with the amputation of my right leg below the knee.
Also, in June 2008, our apartment and all our belongings were lost in the Cedar River flood in Cedar Rapids, Iowa.
I find myself starting over again, facing physical handicaps and financial concerns (like how am I going to live).
I know dialysis saves my life, but what a burden it is and now that I've lost more independence, dialysis and transportation to and from takes up over 6 hours a day three times a week. I don't know how I did it working full time and doing dialysis, but I had no choice. I still feel like I have no choice.
Though the physical therapy of learning to walk with a prosthesis is going well, I'm afraid I'm starting to cave in to the depression of worrying about day-to-day life.
I have a patient blog, stayinalive.wordpress.com, should you care to read more
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willieandwinnie
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Re: Hello
«
Reply #1 on:
November 01, 2008, 02:19:21 PM »
Kathy. That's my name too. Glad you found us and I'm sure you'll find lots of needed information and even more support from us. We are a great group. Hope to hear more from you.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
Member for Life
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Might as well smile
Re: Hello
«
Reply #2 on:
November 01, 2008, 02:42:40 PM »
Kathy, I'm so sorry about all that you've had to go through and all that you're still worrying about. This is a great place for support from people who can understand some of your struggles and worries. I hope we can be helpful to you and lighten your burden ever so slightly.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
jessup
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Gemma - the tucker monster
Re: Hello
«
Reply #3 on:
November 01, 2008, 03:07:06 PM »
g'day and
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Razman
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Re: Hello
«
Reply #4 on:
November 01, 2008, 06:38:15 PM »
It's great that you found the site and I trust that you will visit often.
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Ang
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Re: Hello
«
Reply #5 on:
November 01, 2008, 11:22:38 PM »
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live life to the full and you won't die wondering
Joe Paul
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Re: Hello
«
Reply #6 on:
November 02, 2008, 01:32:12 AM »
Welcome Kathy, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
iowakitkat
Newbie
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Posts: 10
Re: Hello
«
Reply #7 on:
November 02, 2008, 07:21:45 AM »
Thanks for the welcome.
It's good to know there's some place to vent and talk over common problems.
I know there are situations much worse than mine, and I try to keep that in mind. I also try to keep in mind the fact that I have to keep motivated to keep getting stronger so I can be more independent.
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pelagia
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Re: Hello
«
Reply #8 on:
November 02, 2008, 07:43:15 AM »
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
cookie2008
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Re: Hello
«
Reply #9 on:
November 02, 2008, 07:53:54 AM »
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
petey
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MEMBER BANNED
Re: Hello
«
Reply #10 on:
November 02, 2008, 02:06:53 PM »
Hey, kathy! (you have a special name -- I have two dear friends, both named Kathy with a "K" -- see willieandwinnie's post above -- and my sister-in-law is Cathy with a "C")
Welcome to IHD. We have several members who have had amputations, and I'm sure they'll chime in and answer questions/give tips/offer support because they've been there. As for the dialysis, we've all been there and know where you are now. Yes, yes, yes, try to stay positive and keep your spirits up (as hard as this is sometimes). We're here for you.
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graftgurl
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Does banging your head help one's memory?
Re: Hello
«
Reply #11 on:
November 03, 2008, 12:10:51 AM »
Welcome Kathy! We're so glad you're here.
My kidney disease is partly due to diabetes as well. I have dealt with depression along the way and yes, sometimes it is hard to keep up the fight when it seems everything around you is falling apart. Please know, we will hold you up and help you where we can.
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graftgurl
CKD in fall '03
leg graft July 9 '08 (2 days after my birthday)
began hemodialysis August 21 '08
petrified to apply for transplant b/c of other health issues
Type 1 diabetic for 37 years
single mother of teenage daughter
who was a 29 week preemie due to Mom's short-term
kidney failure and resulting in emergency c-section
Bajanne
Member for Life
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Goofynina and Epoman - Gone But Not Forgotten
Re: Hello
«
Reply #12 on:
November 05, 2008, 09:13:09 PM »
Welcome to our community, Kathy! We are glad that you joined us. So sorry to hear the great challenges which are facing you. Just want to encourage you to keep on keeping on. Here you will find a wonderful group of caring and supportive people, as well as lots of information. In fact, you should consider this as your new family
So keep reading and keep posting and let us know how you are doing.
We have a Kitkatz here, one of our administrators.
Looking forward to hearing from you.
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
boxman55
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Re: Hello
«
Reply #13 on:
November 06, 2008, 07:09:25 PM »
Welcome Kathy, IHD looks forward to getting to know you better. Please post often
Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
iowakitkat
Newbie
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Posts: 10
Re: Hello
«
Reply #14 on:
November 08, 2008, 12:29:29 PM »
Boxman --
I see you're a recent amputee,too. And the same situation (lower right leg). How's your rehab going?
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paris
Member for Life
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Re: Hello
«
Reply #15 on:
November 10, 2008, 12:33:53 PM »
Iowakitkat, we are glad you are here. I really enjoyed your introduction. One thing that touched a note with me was the depression that comes with worrying about day to day life. I think we can all relate to that to some degree. Looking ahead can be hard. Worrying about the "what ifs" can be overwhelming. This site is my safe place. I can dump my worries here. I hope you find this a safe place also. The members are very supportive and truly care for each other. Looking forward to more of your posts.
paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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