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Author Topic: I'm back on PD!  (Read 4153 times)
Adam_W
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Me with Baron von Fresenius
« on: November 01, 2008, 08:57:00 AM »
My doctor gave me the ok on Thursday to restart PD, and yesterday was my first day back on it. So far there have been no problems, and I hope this time everything goes well.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Zach
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"Still crazy after all these years."
« Reply #1 on: November 01, 2008, 09:12:39 AM »
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
willieandwinnie
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« Reply #2 on: November 01, 2008, 09:20:31 AM »
 :flower; I wish you all the best Adam.  :cheer:
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kidney4traci
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« Reply #3 on: November 01, 2008, 09:55:17 AM »
 :clap; Hope this is a smooth ride for you now...
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
peleroja
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I have 16 hats, all the same style!
« Reply #4 on: November 01, 2008, 10:23:40 AM »
Hooray, hope everything goes perfectly this time!   :clap;
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rose1999
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« Reply #5 on: November 03, 2008, 10:11:24 AM »
 :yahoo;
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paul.karen
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« Reply #6 on: November 03, 2008, 11:37:31 AM »
 :2thumbsup;
Best of luck....................

And  :waving;

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: November 03, 2008, 12:19:05 PM »
 :thumbup; I hope you have a good experience starting over.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Run8
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« Reply #8 on: November 03, 2008, 08:04:48 PM »
Hey Adam, I have a ? for you. Since you know about trains, do you think i could do pd while on a train for 12 hours at a time.  and do manual exchanges.
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Adam_W
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Me with Baron von Fresenius
« Reply #9 on: November 04, 2008, 08:52:01 AM »
Quote from: Run8 on November 03, 2008, 08:04:48 PM
Hey Adam, I have a ? for you. Since you know about trains, do you think i could do pd while on a train for 12 hours at a time.  and do manual exchanges.

The only issue I see that could possibly be a problem is space in the locomotive cab for a day's worth of supplies. You would need at least one box of dialysate bags and tubing, plus things like gloves, masks, caps, etc. Is it just you and the conductor or do you have a brakeman usually? If you don't have anyone else in the cab besides the conductor, you might be able to find a place for your supplies, especially if you are on a wide cab unit. It would have to be a fairly clean environment, and everyone else on the unit would have to wear a mask when you are hooking up or unhooking (or I suppose you could do it in the "bathroom" on the engine if you could cram your supplies in there with you). I'm not sure what the railroad's policy is for crew members that have medical needs while working. Definitely something to look into.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
peleroja
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I have 16 hats, all the same style!
« Reply #10 on: November 04, 2008, 09:03:52 AM »
Run8, I took the Amtrak train back to Branson, MO twice.  Each time my supplies were stored in an area which is used for overflow packages and luggage.  I just went down and got whatever I needed for the exchange I was doing.  Are you going to have sleeping quarters or be out in the general population?
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Run8
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« Reply #11 on: November 04, 2008, 07:24:19 PM »
Thanks Adam , it would be myself and the pencil pushing conductor.  Guess I could do it on the Second unit. The one thingthat would be of concern would be the supplies. I Think anyone that works for the railroad has medical needs or will eventually need  some. I think pd will work for the better in my case. I go Nov. 20th to see the surgeon.
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