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Author Topic: Will This Ever End  (Read 30999 times)
monrein
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Might as well smile
« Reply #150 on: January 22, 2009, 03:31:26 PM »
That's very welcome news that Len is getting some sleep.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
2_DallasCowboys
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« Reply #151 on: January 22, 2009, 03:45:17 PM »
Glad to read the good news, W/W!!!

Will pray that it will continue, boy do you
two guys need and deserve it.

Sending  :grouphug;  and good thoughts,

Anne
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jessup
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Gemma - the tucker monster
« Reply #152 on: January 22, 2009, 06:37:43 PM »
Great news mate
Lots of love and prayers for you and Len
 :grouphug;
 :flower; :flower;
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willieandwinnie
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« Reply #153 on: January 28, 2009, 11:01:30 AM »
Just got off the phone with Neph and Len's prograf levels are still to high. Len has to go get labs taken again in the morning at exactly 12 hours since last dose. Doc said that when he get the results he we decide further action. Len said he has had enough labs drawn in the last week. I am just happy that they seem to be staying on top of this and maybe we will get it sorted out. Thanks for listening to me again. This had been a long journey.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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« Reply #154 on: January 28, 2009, 11:21:52 AM »

I agree, it's comforting that they are trying to sort it out. When Jenna's prograf was a little high they reduced it a little right away, then did labs a week later.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #155 on: January 28, 2009, 06:48:41 PM »
 :grouphug;
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willieandwinnie
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« Reply #156 on: January 29, 2009, 08:45:58 AM »
Quote from: okarol on January 28, 2009, 11:21:52 AM

I agree, it's comforting that they are trying to sort it out. When Jenna's prograf was a little high they reduced it a little right away, then did labs a week later.

The doctor did lower it but labs showed it was still high, took him this morning for repeat to see if it was a lab fluke or what. Neph said he would call and let us know what to do next. Never a dull moment around here.  :waving;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
G-Ma
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« Reply #157 on: January 29, 2009, 09:13:16 AM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
2_DallasCowboys
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« Reply #158 on: January 29, 2009, 12:13:21 PM »
Sending prayers and  :cuddle;

Anne
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petey
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« Reply #159 on: January 29, 2009, 05:46:49 PM »
Love you, Kathy and Len!
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willieandwinnie
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« Reply #160 on: February 03, 2009, 02:50:40 PM »
:yahoo; Well, the doctor called and Len spoke to him. After the 4th blood test and lowering morning and evening doses, the prograf level is where the doctor wants its. Len now takes .5 in the am and pm. More labs in a month. I haven't heard from Washington Hospital Center Transplant Coordinator so I'm guessing they are happy also. Finally.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
petey
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« Reply #161 on: February 03, 2009, 03:14:29 PM »
finally , finally, finally !  Good news, willieandwinnie!  Now, let's work on fattening Len up!  I hope this is the turn-around for him and he's headed on the way up, up, up!
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monrein
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Might as well smile
« Reply #162 on: February 03, 2009, 03:36:33 PM »
So glad to hear this good news about Len.   Sending you both positive thoughts for continued improvement.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #163 on: February 03, 2009, 05:22:25 PM »
 :yahoo;  this is great news  :yahoo;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
2_DallasCowboys
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« Reply #164 on: February 04, 2009, 07:35:22 AM »
Hooray!!!  :clap; :clap; :yahoo; :yahoo; :clap; :clap;

So, so happy to read good news for you both,
W/W!!!!!!

Anne  :flower;
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drinkboy
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« Reply #165 on: February 04, 2009, 09:32:14 AM »
That's great news.  Hope everything continues to go in the right direction   :clap;
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paris
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« Reply #166 on: February 04, 2009, 03:31:57 PM »
 :clap;   Thank goodness.  I am so glad for your good news.   You deserve for good things to start happening.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #167 on: February 04, 2009, 09:51:39 PM »
 :cheer:  :cheer: RELIEF!  :cheer:  :cheer:
Thanks for the good news!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jessup
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Posts: 773


Gemma - the tucker monster
« Reply #168 on: February 06, 2009, 11:08:53 PM »
Yippee mate
 :bandance; :bandance;
Lots of love to you both
Hope things keep improving - stay positive mate
 :grouphug;
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