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Author Topic: AWAK  (Read 3321 times)
LightLizard
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« on: October 27, 2008, 09:18:12 AM »
http://www.sciencedaily.com/releases/2008/07/080710153015.htm



Edited: Moved to proper section: News Articles - okarol/admin

Story also here: http://ihatedialysis.com/forum/index.php?topic=8997.0
« Last Edit: October 27, 2008, 09:57:03 AM by okarol » Logged
paris
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« Reply #1 on: October 27, 2008, 10:05:13 AM »
I haven't read the article yet----just wanted to say "HI LL"  Good to see you  :cuddle;   Ok, now I will go back and read what the article is all about.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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« Reply #2 on: October 27, 2008, 02:31:11 PM »
Welcome back LL.  Hope both you and The Wife are doing well.  :waving;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #3 on: October 27, 2008, 02:54:56 PM »
So if I'm already NOT a candadiate for PD then this wouldn't work for me.  It said it would reuse the fluid.  Does that mean you would be really limited on fluid intake?  Just wondering......
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Zach
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"Still crazy after all these years."
« Reply #4 on: October 27, 2008, 03:02:34 PM »
Quote from: Rerun on October 27, 2008, 02:54:56 PM

So if I'm already NOT a candadiate for PD then this wouldn't work for me.  It said it would reuse the fluid.  Does that mean you would be really limited on fluid intake?  Just wondering......


No soup for you!

 >:D
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
LightLizard
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« Reply #5 on: October 28, 2008, 08:25:02 AM »
well, i've been in contact with the researchers recently thru email and they tell me that 'clinical trials' begin next year and the product will be available by 2010, if all goes well. normally, i would dismiss this type of article as a scam of some kind, but i showed it to my nephrologist and he was actually impressed with the idea.
thanks for the 'welcome backs'...
 :guitar:
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monrein
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« Reply #6 on: October 28, 2008, 08:25:58 AM »
How've you been feeling LL?
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
LightLizard
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« Reply #7 on: October 28, 2008, 09:35:51 AM »
thanks for asking, monrein. i've been better, but today, my energy is not too bad atall. i've had a bit of a cold/infection for the past week, coughing a lot and i was feeling pretty weak for the past while. my heart rate dropped last week to half of what it has normally been, so i'm a bit concerned about that. my dialysis team suggested that i half my heart medication (metoprolol) for awile. i did that, but my heart rate has not changed, so a few days ago i stopped taking it altogether. still no change. maybe when this cold passes it will change. or maybe my heart has been damaged permanently by all the meds and such. its riding at around 46 49 beats per minute, now, and the frustrating thing about the medical establishment is that they just say, 'well, you know there are healthy, active people out there with that kind of heart rate...'
yeah, right, and they're on dialysis too, hm? i guess they figure big hairy deal if i die. i would have been dead three years ago if not for their treatments, so i'm supposed to be happy about the three years of so-called 'life' i've had on dialysis? ok. i'll smile now... :)
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Sluff
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« Reply #8 on: October 28, 2008, 09:47:38 AM »
 :welcomesign; back LL.
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paris
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« Reply #9 on: October 28, 2008, 10:14:25 AM »
Looking forward to hearing more from you and The Wife. You have both been missed.  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
LightLizard
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« Reply #10 on: October 28, 2008, 12:09:59 PM »
thanks paris, and sluff. i'll try to be a good boy so i don't get banned again.... maybe.  >:D
personally, i am more hopeful of this artificial kidney than i am about a transplant. it appeals to me and i think that it could make things better for a lot of people. plus, i would just LOVE to finally realise my dream of being an bonafide CYBORG.  :cheer:


from what i have read, i understand that the unit is simply worn, probably on the hip, and provides 24-hour dialysis for the patient, which means greater removal of toxins and more energy. at least, this is the hope. we'll see. in the meantime, i'm not going to alienate the transplant team i'm waiting to hear from...

 :guitar:
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The Wife
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« Reply #11 on: October 28, 2008, 06:42:45 PM »
hello again everyone,

LL has been admitted to the hospital.  His heart isn't working right and they're talking about putting in a pacemaker.  I'm really tired as I've been at the hospital and will get back when my brain clears.

Thanks,

Joie
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petey
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« Reply #12 on: October 28, 2008, 06:51:49 PM »
Wife,

First, welcome back.

Sorry to hear about LL's heart problems.  My Marvin had a problem with his heart last Dec-Jan-Feb.  He had MRSA and it settled on his heart valve and damaged the only "good" organ Marvin had (the heart).  A pacemaker was put in in Dec. (didn't work), and another was implanted in late Jan.  They put Marvin's pacer in his abdomen with epicardial leads (because so much scar tissue from perm caths in the neck, chest).  His heart rate dropped to 36 one time, and then hovered around 48 for a while.  The pacemaker has greatly improved his health, and his rate stays steady at 70 beats per minute now.  Those were three tough months for us, but since then, everything has been great.  I'm hoping the same will happen for LL.

Let us know.
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pelagia
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« Reply #13 on: October 28, 2008, 06:52:25 PM »
oh no.  hope they get it straight soon.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #14 on: October 28, 2008, 06:56:28 PM »
Joie, we were all so excited to see LL back and now this.  Get some sleep.  Please let us now tomorrow how he is doing.  Tell him we are all worried about him and need him back with us.   :cuddle; :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
The Wife
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« Reply #15 on: October 28, 2008, 07:44:05 PM »
Thank you so much for your support.  And thanks Petey.  To know someone else went through this and is doing well brings hope. 

His heart rate got down to 33.  His potassium and calcium levels are perfect....a blockage they said.  A blockage of what? 

I'll keep you posted as I know more and I'll try to get some sleep.  It's so strange without him here.  He sent me home from the hospital and I'm walking around in circles not knowing what to do.  It's like when his kidney's failed and we had to go to the hospital for emergency dialysis. 

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monrein
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« Reply #16 on: October 28, 2008, 08:07:44 PM »
Sending you hugs.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #17 on: October 29, 2008, 03:05:44 AM »
Glad to see you back Joie.  :cuddle; Please know that you and LL are in our thoughts and prayers. Keep us posted.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
The Wife
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« Reply #18 on: October 29, 2008, 08:23:55 AM »
Thank you again.  I'll be posting in the caregiver section. 
 :grouphug;
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