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Author Topic: Hello everyone  (Read 3315 times)
wirralgirl
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« on: October 23, 2008, 03:16:14 AM »
My name is Lindsay and I am a 48. I have been on dialysis coming up to 4 years now, but was diagnosed with kidney failure about 18 months before that . Although I have never been told as to why I got this I put it down to have an eating disorder for the past 20+ years. The kidney problem came to light when I got gout which is one of the most painful ailments I had ever experienced. Anyway I have dialysis now three times a week for only 3hrs so I am pretty lucky. I line and prime the machine and take myself off - I did try cannulation and although I didn't have trouble with it, I was very stressed each time it came to it, so I've taken timeout for now.

I am looking forward to being part of this community and hope I can be of help to anyone if needed and share experiences. I don't find dialysis a problem really because it's my time to put the stress of the world away and just give in to being alone and by myself  - to indulge in the many books I love to read and forget what is happening 'out there'  I have a 20 year old son who is at Uni in London enjoying  his life  but still finds time to ring his Mum. I live on my own (no job) and look after my 90 year old Mum at weekends. Life is bleak at times but I take one day at a time.
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RichardMEL
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« Reply #1 on: October 23, 2008, 03:22:43 AM »
G'day Lindsay!! Welcome to IHD!!

i totally agree with you about the gout being so painful. Interesting that you rate it above childbirth in terms of pain (something I'll never experience) !!

So glad you are joining our community and want to help others with the benefit of your experience :) Great to have you with us!!!

 :cuddle;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Joe Paul
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« Reply #2 on: October 23, 2008, 03:40:37 AM »
Welcome  Lindsay, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #3 on: October 23, 2008, 04:50:26 AM »
:welcomesign; Lindsay. Glad you joined IHD, we are a wonderful group with so much information to share and support to give. We're sure you can add your experiences to the mix. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #4 on: October 23, 2008, 05:10:53 AM »
Welcome to our community, Lindsay!  So glad you decided to join us.  You have much to add to our group.  I particularly like the way you have taken on much of your own dialysis setup.  I wish I could.  don't think I could ever self-cannulate, though!  This is a great  place for lots of information, loads of support and barrels of fun.  We have indeed become a family, caring and sharing.  :grouphug;   So please keep posting, letting us know how you are doing.
Looking forward to hearing lots from you.  :flower;




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
monrein
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Might as well smile
« Reply #5 on: October 23, 2008, 06:13:58 AM »
 :welcomesign; Lindsay.  Glad you found us and decided to join with us to support each other and share what we know about ESRD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cookie2008
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« Reply #6 on: October 23, 2008, 07:35:28 AM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
paris
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« Reply #7 on: October 23, 2008, 11:36:23 AM »
Welcome, Lindsey.  We are you joined us.  I agree with the gout pain.  It is unbelievable.   You seem to have a lot of things going on in your life.  I hope we can be of some help and support.   I am sure we can learn from your experiences, too.   Looking forward to learning more about your journey.   Glad you are part of this family. :grouphug;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Zach
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"Still crazy after all these years."
« Reply #8 on: October 23, 2008, 11:48:15 AM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jwaynebo
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« Reply #9 on: October 23, 2008, 05:24:48 PM »
 :welcomesign;
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Peace,

Jeffrey

"I'm pullin' for ya, We're all in this together." - Red Green
devon
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« Reply #10 on: October 24, 2008, 06:19:32 AM »
Welcome Lindsay!

-Devon
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Sluff
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« Reply #11 on: October 24, 2008, 07:01:55 AM »
Welcome wirralgirl (Lindsay) to ihatedialysis.com,

Glad you are making the best of your situation with your dialysis time. Thanks for becoming part of the family here and I hope you have much to share and much to learn. IHD is full of information for all those affected by ESRD. Hope to see you around, ask questions and post often.

Sluff/Admin
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paul.karen
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« Reply #12 on: October 24, 2008, 09:12:22 AM »
 :waving; :welcomesign;

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Ang
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« Reply #13 on: October 24, 2008, 08:51:36 PM »
 :welcomesign;  lindsay
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live  life  to  the  full  and you won't  die  wondering
G-Ma
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« Reply #14 on: October 24, 2008, 09:30:52 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #15 on: October 25, 2008, 03:41:54 PM »
 :welcomesign; :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
jessup
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Gemma - the tucker monster
« Reply #16 on: October 25, 2008, 09:14:44 PM »
 :cheer: :cheer: :welcomesign; :cheer: :cheer:
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Roxanne610
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I just dont know anymore!!!
« Reply #17 on: October 29, 2008, 12:23:54 PM »
 :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower;

Sending you flowers and prayers....Feel Better..Lindsey stay tuff
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My DAD:
Cirrohsis at 32 from Hepatitis C,,,,50 Liver Failure from Hep C, 52 Liver Transplant, 2000 Lymphoma from Anti Rejection Meds treated and has been fine. 
Present:  Kidney failure from Meds for the liver transplant
Hepatitis C is very very active which is damaging the liver they are worried that he may need a liver transplant to, but until he is strong enough to get the liver biopsy.  And now he is hit with blood infection that he caught in the hospital ( i feel from nurses being not gentle enough with him)....
Started Dialysis Nov 08...Just waiting to see what the miserable Hep C disease is doing to our liver before we can even think about a kidney transplant!!!! :(

Roxanne  :(
My prayers and thoughts are with everyone!!!
Romona
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« Reply #18 on: October 29, 2008, 01:55:38 PM »
 :welcomesign;
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graftgurl
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Does banging your head help one's memory?
« Reply #19 on: October 29, 2008, 04:27:19 PM »
:welcomesign;  Lindsay,
Hope you will share your experiences with us and let us share ours with you, as well. You've come to the right place.
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graftgurl
CKD in fall '03
leg graft July 9 '08 (2 days after my birthday)
began hemodialysis August 21 '08
petrified to apply for transplant b/c of other health issues
Type 1 diabetic for 37 years
single mother of teenage daughter
     who was a 29 week preemie due to Mom's short-term
     kidney failure and resulting in emergency c-section
BRANDY
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« Reply #20 on: December 24, 2008, 08:44:53 PM »
 :welcomesign;Lindsay :grouphug;
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
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