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Author Topic: Hi there ! Gary here  (Read 3853 times)
djgaryb11
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« on: October 12, 2008, 05:32:40 PM »
Hi everyone ! This is my first post and I am new here...I just had my PD catheter placed in my body 2 days ago, and while it was painful and sore for the first 2 days, today it is feeling much better.  I will be going into the Dialysis clinic within the next day or so to get the Catheter flushed out and the dressing changed.  I think it will be about 2 weeks before I start doing exchanges, and then I will be using the Baxter Home Choice Machine at home after all my training and everything else progresses as planned.  I have had Chronic Kidney Disease for several years, but just several months ago it got much worse and to the point that i needed to start on dialysis.  I have already been accepted into the Kidney transplant program at my local hospital, and I am officially on the UNOS list now.  Well thats my story in a nutshell so far...thanks for all the info that you all provide on this web site....Gary
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7/2001 Diagnosed with Hypertension and Chronic Kidney Disease
2/2008 Diagnosed with End Stage Renal Disease
4/2008 Surgery to Create Backup A/V Fistula in Left Arm
7/2008 Placed on "UNOS" list for a Kidney Transplant
10/2008 Surgery to place PD Catheter
10/2008 Started CAPD
11/2008 Started on Baxter HomeChoice PD Cycler ( CCPD)
Jess21
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« Reply #1 on: October 12, 2008, 05:34:21 PM »
 :welcomesign; djgaryb11!  I hope you find as much good info on this site as I do! :beer1;


EDITED: Fixed smiley error - okarol/admin
« Last Edit: October 14, 2008, 01:23:50 PM by okarol » Logged
Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
G-Ma
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« Reply #2 on: October 12, 2008, 05:35:58 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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« Reply #3 on: October 12, 2008, 06:07:25 PM »
 :welcomesign; Gary.  Glad to have you with us and I look forward to getting to know you better.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #4 on: October 12, 2008, 07:26:54 PM »
 :welcomesign;
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cookie2008
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« Reply #5 on: October 12, 2008, 08:18:13 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Joe Paul
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« Reply #6 on: October 12, 2008, 11:59:38 PM »
Welcome Gary, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #7 on: October 13, 2008, 04:39:41 AM »
:welcomesign; Gary. Glad you joined us and looking forward to hearing more of your story.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
devon
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« Reply #8 on: October 13, 2008, 05:42:59 AM »
Welcome and let us know what we can do to help.

-Devon
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mikey07840
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« Reply #9 on: October 13, 2008, 05:47:53 AM »
 :welcomesign; I'm also on the Baxter Home Choice... let me know if you have any questions/concerns/complaints/etc.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
napala turki
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Have to plan for living
« Reply #10 on: October 13, 2008, 07:30:17 AM »
Hi,

May I asked the question, What is Baxter Home choice, I think its only available in US. In Malaysia we only has Hemodialysis and CAPD.... :thumbdown;
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monrein
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« Reply #11 on: October 13, 2008, 07:49:06 AM »
In the US and Canada and I would expect also in Australia and New Zealand, some people do hemodialysis at home.  There are different companies that make machines for use at home and Baxter is a big company that makes lots of dialysis equipment and supplies.
Sometimes the home dialysis is done during the night time, long and slow and very good clearances.  The best choice healthwise.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Ang
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« Reply #12 on: October 13, 2008, 06:56:26 PM »
gidday  and :welcomesign;  aboard  gary
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live  life  to  the  full  and you won't  die  wondering
pelagia
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« Reply #13 on: October 13, 2008, 07:10:00 PM »
 :welcomesign; Gary
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
napala turki
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« Reply #14 on: October 13, 2008, 11:01:53 PM »
Quote from: monrein on October 13, 2008, 07:49:06 AM
In the US and Canada and I would expect also in Australia and New Zealand, some people do hemodialysis at home.  There are different companies that make machines for use at home and Baxter is a big company that makes lots of dialysis equipment and supplies.
Sometimes the home dialysis is done during the night time, long and slow and very good clearances.  The best choice healthwise.

Hi Monrein,

Thanks... now I knew  :2thumbsup;. Most of the Dialysis centre in Malaysia which I have seen is Nikkiso from Japan... Malaysia does not has Home Dialysis presently, only CAPD. By suprise not even a Button Hole...  :banghead;
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #15 on: October 14, 2008, 05:01:43 AM »
Welcome to the forum Gary. There are quite a few of us including myself on this site who use the baxter cycler. If you have any problems and need advice just post. Good Luck.
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Ken
boxman55
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« Reply #16 on: October 14, 2008, 03:15:48 PM »
Welcome Gary, glad to have you here

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Run8
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« Reply #17 on: October 14, 2008, 03:32:37 PM »
Hey Gary whats up, glad you could join a great group of people that have many things in common. Nice to meet you.
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paris
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« Reply #18 on: October 16, 2008, 10:36:48 AM »
 :welcomesign; , Gary.  We are very glad you found us and joined this amazing group.  Lots of members do PD and like it.  Hopefully, it will work great for you until you get the call for a new kidney.   Keep us updated on your progress.    :2thumbsup;







Paris,moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Bajanne
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« Reply #19 on: October 17, 2008, 09:44:06 PM »
Welcome to our community, Gary!  We are glad that you decided to join us.  This site will be one of your weapons in the fight against this renal challenge that we face.  Just keep on reading and keep on posting.  You will find that you have a very supportive family here  :grouphug;
Looking forward to hearing from you on your journey.  :flower;



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kellyt
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« Reply #20 on: October 17, 2008, 09:56:51 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jessup
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Gemma - the tucker monster
« Reply #21 on: October 18, 2008, 05:13:46 PM »
 :welcomesign;
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djgaryb11
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« Reply #22 on: December 15, 2008, 01:02:22 AM »
Thanks for the great welcome ! Just to give you all an update, I have been using the Baxter Homechoice Cycler machine for almost a month now, and its working out really well for me.  No problems or issues yet.  I like using the cycler machine much better then doing it the "manual" way, which was 4 times a day. I really enjoy reading everyones posts and comments on this board to ! ....Gary B. :yahoo;
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7/2001 Diagnosed with Hypertension and Chronic Kidney Disease
2/2008 Diagnosed with End Stage Renal Disease
4/2008 Surgery to Create Backup A/V Fistula in Left Arm
7/2008 Placed on "UNOS" list for a Kidney Transplant
10/2008 Surgery to place PD Catheter
10/2008 Started CAPD
11/2008 Started on Baxter HomeChoice PD Cycler ( CCPD)
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