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Author Topic: having enough will left for myself to go on and on!!!!!!!  (Read 3802 times)
licktrician
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« on: October 11, 2008, 09:36:07 PM »
hello my name is Lenny and i started on hemo dialysis in '06 and am doing PD 4x's a day ..I am a 37 year diabetic and am member if the zipper club with carbg x4 with Pad ,copd, arterialsclrosis, diabetic retinopathy, and heart disease and have been rejected for transplant because of to many medical probs.... anger towards this is an understament but also am having alot of self pity also...hope to be talking to peps soon ....dont know how much will i have left for life itself....... :Kit n Stik;
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G-Ma
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« Reply #1 on: October 11, 2008, 09:57:06 PM »
Trust me, it's ok to have a pity party once in awhile...I am/have been there.  There are many people here who know just where you are, so feel free to vent all you want.  This is a great group to be talking to.

 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
napala turki
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Have to plan for living
« Reply #2 on: October 12, 2008, 04:00:38 AM »
Hello Lenny,

Whatever we faced, thats is reality. Be patient with it.... we are the CHOOSEN ONE..... :waving;
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Romona
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« Reply #3 on: October 12, 2008, 07:16:54 AM »
 :welcomesign;
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boxman55
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« Reply #4 on: October 12, 2008, 08:44:32 AM »
Welcome to IHD your conditions no doubt create a load on you. Please hang in there. Stick around here we all have been thru similar things and are willing to help

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
pelagia
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« Reply #5 on: October 12, 2008, 08:54:28 AM »
 :welcomesign;  :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
twirl
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« Reply #6 on: October 12, 2008, 04:05:22 PM »
talking to preps soon?
I am having a very bad day
depression and feeling - what's the point of going on?
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Brightsky69
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« Reply #7 on: October 12, 2008, 04:56:56 PM »
I know how you feel. I am 39 and going on dialysis for the 2nd time. It's difficult and please know that your not alone.  :grouphug;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
flip
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« Reply #8 on: October 12, 2008, 05:28:15 PM »
You know, I've thought about it and I can't come up with any reason to give up. Besides, I have too much fun tormenting everybody on here. It must be the Nepro and kahlua.
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That which does not kill me only makes me stronger - Neitzsche
southyard
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« Reply #9 on: October 12, 2008, 06:01:28 PM »
what is nepro? I know what the kahlua is and love it too  bnut not as much as martinis
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monrein
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Might as well smile
« Reply #10 on: October 12, 2008, 06:04:33 PM »
Nepro is a protein drink for kidney patients.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
flip
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« Reply #11 on: October 12, 2008, 06:35:13 PM »
the best of both worlds....protein and a good buzz. My doctor said both were important.
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That which does not kill me only makes me stronger - Neitzsche
monrein
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Might as well smile
« Reply #12 on: October 12, 2008, 06:59:18 PM »
 :thumbup;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cookie2008
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« Reply #13 on: October 12, 2008, 08:23:13 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
devon
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« Reply #14 on: October 13, 2008, 05:44:20 AM »
Well you found the right place!  People here will totally understand your anger and resentment!  Feel free to Rant, Bro!

-Devon
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mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #15 on: October 13, 2008, 05:46:35 AM »
 :welcomesign;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
devon
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« Reply #16 on: October 13, 2008, 11:20:32 AM »
Nephro?  What can I mix with vodka?  LOL

-Devon
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breezysummerday
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« Reply #17 on: October 13, 2008, 08:40:29 PM »
duh...Diet 7-up!

 :rofl; <---buzzed 

« Last Edit: October 13, 2008, 11:57:20 PM by breezysummerday » Logged
caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
paris
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« Reply #18 on: October 16, 2008, 10:59:49 AM »
Hi Lenny,  We are very glad you joined this group.  You are dealing with so many things.  I hope we can be of some help to you.  This is the best place for support and also for venting, ranting, and complaining.  People here understand what you are going through and will do anything they can to help.  Post often and just dump all the bad stuff here!    That is why we are here! :grouphug;





Paris,moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
rookiegirl
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« Reply #19 on: October 16, 2008, 08:27:25 PM »
Hi Lenny,

 :welcomesign; to IHD.  I'm so glad you joined the group.  I'm 37 too.  We are here to support you anyway we can, so please don't hesitate to come here and talk about what ails you or not.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #20 on: October 17, 2008, 08:20:22 PM »
Welcome to our community, Lenny!  If you read the intro you will see that the founder of this site - Epoman, of blessed memory - intended it exactly for people to be able to rant freely.  In fact, in the early days, it was practically forbidden to sound a cheery note!! (just kidding).  One good thing about ranting and venting here, is that you are completely understood.  Like Olive Garden, here you are family!  :grouphug;
However, the site is not only for ranting.  You will find great information here, and even some fun.  so take advantage of all this site has to offer.  Read as much as you can and post as much as you can.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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