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willieandwinnie
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« Reply #25 on: October 09, 2008, 05:07:41 AM » |
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I'm sitting on the edge of my seat. I will keep praying.   |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Sluff
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« Reply #26 on: October 09, 2008, 05:09:18 AM » |
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Here is the latest. http://www.caringbridge.org/visit/ottomachadoOtto just came up and I have a few prayers to ask for.
1. pain to go away, meds not really helping much
2. bleeding to stop, they have had to change dressing as he has not yet clotted.
3. urine output to increase.
4. for out little HERO's family to find comfort in knowing we cherish there gift and can never say thank you enough.
will update as Otto continues to improve which i know he will.
********UPDATE*******
We have been told no flowers, so if you were thinking of doing this Thank you but please save your money and just pray.
Also we are asking for now no phone calls and no visitor's. I know you want to come see Otto but today he's hurting pretty bad and we ask that today please let Otto rest. If you need to get ahold of me call my cell. Thanks everyone...........
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pelagia
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« Reply #27 on: October 09, 2008, 05:38:15 AM » |
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We are praying for Otto and the donor's family and your family Lola.  |
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« Last Edit: October 09, 2008, 09:16:39 AM by pelagia »
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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2_DallasCowboys
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« Reply #28 on: October 09, 2008, 05:47:52 AM » |
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Hi , So sorry I have not been on too much lately! Such wonderful news for Otto and Lola, I sure hope everything goes well!   Anne |
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lola
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« Reply #29 on: October 09, 2008, 08:28:30 AM » |
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THANK YOU GUYS I just came home to sleep for a few  hours. Otto is in alot of pain and it's really hard to watch. His labs have not come down yet but they said it's because the kidney is in shock. Our little hero was only 7 and this was VERY hard on us as we have a 6 & 8 yr old(also a 11 yr old) but he tested at 0% and for someone with a pra of 100% this was better then winning the lottery no IVIG nothing!!!!! Please keep our little Hero and family in your prayers I can't imagine the pain they feel now. |
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willieandwinnie
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« Reply #31 on: October 09, 2008, 09:26:13 AM » |
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lola. Please try to get some rest. I know exactly what you are going through.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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pelagia
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« Reply #32 on: October 09, 2008, 09:31:35 AM » |
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I am sorry to hear that Otto is in so much pain. I hope he starts feeling better really soon |
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« Last Edit: October 09, 2008, 12:03:22 PM by pelagia »
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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monrein
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« Reply #33 on: October 09, 2008, 09:57:25 AM » |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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Beth36
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« Reply #34 on: October 09, 2008, 11:06:36 AM » |
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Bless his heart! I hope he feels better soon...wow what a truly wonderful gift that family shared with yours....
Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
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lola
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« Reply #35 on: October 09, 2008, 06:13:40 PM » |
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Otto's kidney tonight is starting to take baby steps in the wright direction  poor little thing is in shock. Otto is still having major pain, they said it;s muscle spasms in the incision site. Thanks for all the prayers. |
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monrein
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« Reply #36 on: October 09, 2008, 06:15:52 PM » |
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Lola, I have everything crossed. |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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pelagia
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« Reply #37 on: October 09, 2008, 06:46:02 PM » |
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So happy to hear the good news  We sure do want them to get that pain thing under control. Tell Otto we are sending  And for Lola a |
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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harley08
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« Reply #38 on: October 10, 2008, 09:53:03 AM » |
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So happy for Otto and the family for this wonderful gift, and so sorry about the child this gift comes from, my thoughts and prayers are with them and I hope it will help them to know what a wonderful thing they have done by donating. Prayers to all... |
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Joe Paul
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« Reply #39 on: October 10, 2008, 12:28:53 PM » |
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Hoping Otto's kidney continues to improve  |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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rose1999
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« Reply #40 on: October 10, 2008, 01:31:59 PM » |
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Prayers for you and Otto and the donor family. Bless you all |
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lola
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« Reply #41 on: October 10, 2008, 05:45:35 PM » |
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Otto has had another really tough day. He has had the hiccups for over 20hrs and because of them he  all day. He also is getting insulin because his sugars are to high. I talked with the Dr's as Otto has never had this before and they said it's from all the meds and the kidney still not doing everything it's suppose to do, they said it could last any where to a few days to forever. Today someone e-mailed us a picture of our donor as his obit was in the paper and I just bawled. |
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okarol
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« Reply #42 on: October 10, 2008, 06:19:34 PM » |
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Holy cow! I cannot imagine how much that can hurt with hiccuping on top of surgery! Poor guy, I hope he gets better. xoxoxo Awww lola, I know you must have really felt that family's angst. |
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monrein
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« Reply #43 on: October 10, 2008, 06:54:35 PM » |
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Oh Lola. I hope tomorrow is better. |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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Deanne
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« Reply #44 on: October 10, 2008, 06:57:29 PM » |
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I haven't been online much lately, but just checked in and saw this. Many prayers for a fast recovery for Otto and may God bring comfort to the donor's family.
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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kimcanada
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« Reply #45 on: October 10, 2008, 07:17:42 PM » |
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Lola,
Please don't feel so guilty about your sweet donor, you have to remember that you are doing something for the family that they will live with forever, knowing that their sweet child didn't pass in vain, its hard to imagine this now, but it is the truth...
You and your family are in my thoughts and prayers
Kim
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Jess21
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« Reply #46 on: October 11, 2008, 08:02:52 AM » |
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Congrats! I hope the kidney kicks in full gear soon! This gives me hope...that I will eventually get on the list..transplant cordinator called me about a month ago just asking for another blood test...I think I almost needed a heart transplant when I saw her missed call!  I can't even imagine how he felt getting the call! |
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
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jbeany
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« Reply #47 on: October 11, 2008, 10:07:46 AM » |
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Hugs to both of you. Hope things get better for Otto soon.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.  |
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willieandwinnie
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« Reply #48 on: October 11, 2008, 04:17:33 PM » |
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Lola, I too pray that Otto is doing better. My husband also had the hiccups for I believe days and they finally gave him some kind of medication to relieve them. Please know we have you all in our thoughts and prayer. |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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I Hate Dialysis Message Board
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