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Author Topic: Otto got the call  (Read 58088 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #75 on: October 14, 2008, 06:30:28 PM »

UPDATE from http://www.caringbridge.org/visit/ottomachado

It is 5pm in MN, and how quickly things continue to change!!! Otto is in surgery- an ultra sound of his abdomen showed bleeding and that the new kidney probably was not getting adequate blood flow- he has received several units of blood since Sat, & today is count was still 7.4. Very tough to understand these MD's and their decision making- hard to be a nurse at times like this. Amy is beside herself with worry- of course they have to talk about the possible problems with putting someone to sleep who has pneumonia, a low hemoglobin, on dialysis---- what more???????????? Not sure how long this will take , the 1 MD said it could be several hours! I will try to keep this as updated as I can- we are not saying too much to the kids, but they are not happy that they can't go see Daddy- they are very lonesome.
Keep on prayin' , Mom
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #76 on: October 14, 2008, 06:30:57 PM »
Otto went into emergency surgery today. Please keep Otto in your prayers as they try to save his new kidney.

 :oops; we were posting at the same time Karol.
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pelagia
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« Reply #77 on: October 14, 2008, 06:41:58 PM »
 :banghead;

we are praying for you Otto and family!

 :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
okarol
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« Reply #78 on: October 14, 2008, 06:44:16 PM »
Quote from: Sluff on October 14, 2008, 06:30:57 PM
Otto went into emergency surgery today. Please keep Otto in your prayers as they try to save his new kidney.

 :oops; we were posting at the same time Karol.

Great minds. All good thoughts headed for Minnesota  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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« Reply #79 on: October 14, 2008, 07:27:23 PM »
 :grouphug;  Otto   :grouphug;
 :grouphug;  Lola and Kids   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #80 on: October 14, 2008, 08:39:42 PM »
My prayers are with you.

Is there any remover of difficulties save God?
Say praise be to God.
He is God. 
All are his servants and all abide by his bidding.
         
                A prayer from the Baha'i Wiritngs
 
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
jbeany
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« Reply #81 on: October 14, 2008, 08:52:20 PM »
Positive thoughts headed your way, Otto.

 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Amanda From OZ
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« Reply #82 on: October 14, 2008, 11:43:04 PM »
i have been following this thread throughout the last few days.

Thinking and praying for you, i know everything will be okay.

Amanda
xxxooo

 :grouphug;
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willieandwinnie
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« Reply #83 on: October 15, 2008, 04:38:57 AM »
I am so heartbroken. Strong thoughts and prayer and many arms around all of you. :grouphug;
« Last Edit: October 15, 2008, 04:41:26 AM by willieandwinnie » Logged
"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #84 on: October 15, 2008, 04:54:22 AM »
There is no way to express the sadness that is in our hearts this morning when we received the new message from CaringBridge.  We are praying for Otto to have the strength he needs to heal quickly.  We are praying for you Amy and your kids and Otto's parents too.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
xtrememoosetrax
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« Reply #85 on: October 15, 2008, 06:04:00 AM »
Heartbreaking news. I'm sending healing thoughts and prayers and love to all. :grouphug; :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
cherpep
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« Reply #86 on: October 15, 2008, 07:08:06 AM »
Millions of hugs are going out to you and your family.  God be with you all.  I truly appreciate you sharing your story with us. 
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okarol
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« Reply #87 on: October 15, 2008, 07:54:28 AM »
The latest info from Otto's caringbridge site:

WEDNESDAY, OCTOBER 15, 2008 12:52 AM, CDT :
Otto is in ICU and is a very sick man, the kidney was encased in blood and cracked in half there for Otto lost the kidney. I am devastated beyond words, because of the pneumonia he had a tough time in surgery the next few hours are critical. Otto is strong and has to pull thru as I'm not done with him yet. Please say prayers.....Amy

WEDNESDAY, OCTOBER 15, 2008 08:19 AM, CDT:

It's the Mom again--- can't believe how therapeutic this is to write & keep others updated. Did not have the chance to do this when Dick was ill and had the 'site'.

They are trying to wean Otto off some of the sedation meds to get him breathing on his own so they hopefully can take him off the ventilator. he still has an irregular, very rapid pulse, which they are giving him meds for.

Amy told the kids this am that the doctors had to remove the kidney- felt she needed to be the one and that they not hear it by accident from someone else.

They are off from school after today till Monday, so hopefully they can come see Dad & then we will do some fun things- like Mall of America- that even sounds good to me-- after I get a nap.

All your messages mean so much to Amy, she was on several times during the night just reading- she gains strength from all of you. Thank you from the bottom of my heart. I wish Otto's Mom could read them, it would help her!!!

Will keep you posted as the day goes on! Mom

 :grouphug; Love to all of you Amy.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Adam_W
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Me with Baron von Fresenius
« Reply #88 on: October 15, 2008, 08:31:18 AM »
That is so unfortunate. I know Otto will pull through. He is in my prayers.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
monrein
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« Reply #89 on: October 15, 2008, 08:54:13 AM »
 :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;



Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #90 on: October 15, 2008, 10:06:07 AM »
Amy and Otto. we will be praying for both of you.   :grouphug; :grouphug; :grouphug;
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thegrammalady
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« Reply #91 on: October 15, 2008, 10:19:33 AM »
i'm at a loss for words. i'll think of something and otto and amy will be in my prayers.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
vandie
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« Reply #92 on: October 15, 2008, 10:22:21 AM »
Amy, you are constantly on my mind.   Love you.
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
highlite36
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« Reply #93 on: October 15, 2008, 10:43:37 AM »
I am praying for you, Otto and Amy.  And for your children as well.  Please keep us all updated! 
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ESRD February 2002
Transplant from living non-related donor November 7, 2002
Lost transplant April 2005
Diagnosed with Heart Failure February 2006
Currently on Peritoneal Dialysis, awaiting to be well enough to FINALLY get placed
on the Transplant List.  :-)  I can't wait!!!!
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« Reply #94 on: October 15, 2008, 11:04:09 AM »
Amy, Otto and family, this is heart-breaking. My prayers are with you all to find strength to get well and get through this.  :grouphug;
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As is your sort of mind, so is your sort of search: you will find what you desire.
okarol
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« Reply #95 on: October 15, 2008, 11:07:38 AM »
If you haven't already posted a message on Otto's caringbridge site but would like to - go to http://www.caringbridge.org/visit/ottomachado and click on guestbook - as I recall you need to sign up - then post your message, click preview to then scroll down to check your message, then save to send it. I know getting through Jenna's medical challenges was a little easier for us knowing that people checked in on us, and sent words of support.

 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #96 on: October 15, 2008, 04:41:08 PM »

I heard from Amy. Otto is stable now - thank GOD.  :thx;

I believe she said a cardiologist will need to see him next.

Hang in there Otto!  :cuddle;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #97 on: October 15, 2008, 04:41:59 PM »
Thanks for the update Karol.
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pelagia
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« Reply #98 on: October 15, 2008, 04:47:23 PM »
Thanks for update and thank goodness that Otto is stable.

 :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kimcanada
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« Reply #99 on: October 15, 2008, 04:54:30 PM »
You are in my thoughts and prayers everyday :cuddle; :grouphug; :cuddle; :grouphug;
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