trojan ska
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Posts: 25
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« on: October 07, 2008, 08:29:17 PM » |
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Hi everyone. My name is Scott and I am a 36 year old male Lupus patient who is staring down the next big change/challenge of my life very soon here.
I've had kidney involvement since my mid 20s but my Lupus came back in Jan 07 to finish off the kidneys for good. Despite the Lupus going into a 'quiet' state my kidney's function and capability have deteriorated from then until now.
I currently have a creatinine of 5.0 BUN 49 GFR 15 potassium 4.5 sodium 140 and phosphorus 4.5
I am currently employed in a high stress environment at a nationally leading home builder. As one can imagine; Job security is not looking very good in a performance based sales environment in an industry that has has been doing nothing but downsizing for the last three years.
I still feel that I am very fortunate and blessed despite my illnesses and outlook. I have family that want to help donate so I would like to stave off dialysis so I can explore the possibility of a transplant. Unfortunately I cannot make the donor qualification process work any faster or make my company stop letting people go. I can control what I eat though (not always so easily though) and can think positively as well.
I think I am a lot less active as I have lost 30 lbs and have anemia. (went from 150lbs to 120lbs) I was never a big guy to begin with since I stand 5'8". I feel fairly confident that I can maintain my sodium and potassium within decent levels despite my creatinine.
I hope to meet good people who would like to share their ESRD experience with me as I would like to do more of the same.
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“Just can't live that negative way...make way for the positive day!” -Robert Nesta Marley
creatinine 5.0 GFR 14 potassium 4.2 sodium 140
cellcept 1000mg, prednisone 5mg, aranesp 100 mcg/month, felodipine 5 mg/3 per day, labetelol 200 mg/3 per day
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paris
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« Reply #1 on: October 07, 2008, 08:36:35 PM » |
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Hi Scott, we are very glad you joined us. There is a lot of information here from people who know what you are facing. This is a really good place to find answers and for support. You have a great attitude and I am sure there is much you can share with us. Looking forward to getting to know you.
Paris,moderator
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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monrein
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« Reply #2 on: October 07, 2008, 10:37:43 PM » |
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 Scott. Glad you found us and I hope you'll post often so we can know more about your experiences.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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Mimi
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« Reply #3 on: October 07, 2008, 11:12:35 PM » |
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Hi Scott and welcome to IHD. Come right on in and make yourself at home.
Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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circleNthedrain
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« Reply #4 on: October 07, 2008, 11:46:33 PM » |
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Welcome Scott!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
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Joe Paul
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« Reply #5 on: October 08, 2008, 12:07:37 AM » |
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Welcome Scott, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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cookie2008
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« Reply #6 on: October 08, 2008, 04:45:15 AM » |
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
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Romona
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« Reply #7 on: October 08, 2008, 04:47:38 AM » |
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devon
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« Reply #8 on: October 08, 2008, 06:06:29 AM » |
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Welcome aboard Scott. Glad to have you.
I'm sorry your job is adding to the stress of all this but you seem quite capable of handling it as best you can.
We're here to help in any way we can.
-Devon
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trojan ska
Newbie
Offline
Gender:
Posts: 25
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« Reply #9 on: October 08, 2008, 06:30:29 AM » |
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Thank you everyone. I appreciate the warm response and look forward to asking some questions.
I can only imagine that the wealth of knowledge on this forum far surpasses a 5 minute nephrologist visit where the doctor shuffles you in and out of his office as quckly as they can...
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“Just can't live that negative way...make way for the positive day!” -Robert Nesta Marley
creatinine 5.0 GFR 14 potassium 4.2 sodium 140
cellcept 1000mg, prednisone 5mg, aranesp 100 mcg/month, felodipine 5 mg/3 per day, labetelol 200 mg/3 per day
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willieandwinnie
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« Reply #10 on: October 08, 2008, 06:32:38 AM » |
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Scott. You have landed in the best spot for information and support. Hope we hear lots from you.  |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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xtrememoosetrax
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« Reply #11 on: October 08, 2008, 06:36:13 AM » |
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Scott. Nice intro; I'll be looking forward to hearing more from you.
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boxman55
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« Reply #12 on: October 08, 2008, 04:59:49 PM » |
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Welcome to IHD please keep us posted on how you are doing
Boxman, Moderator
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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twirl
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« Reply #13 on: October 08, 2008, 05:05:36 PM » |
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hello and glad to know you and good luck
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Bajanne
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« Reply #14 on: October 18, 2008, 08:19:15 AM » |
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Welcome to our community! So glad that you found us and decided to join us. This site will be one of your weapons in your battle with this renal challenge. I know it has been mine. [quote author=trojan ska link=topic=10392.msg176882#msg176882 date=1223472629 I can only imagine that the wealth of knowledge on this forum far surpasses a 5 minute nephrologist visit where the doctor shuffles you in and out of his office as quckly as they can... Though we do not and cannot claim to be medical professionals (and we need them), our claim is that we have been there, done that. We have the insight of those who are actually living this experience, and this is what qualifies us to share with others. So keep reading, keep asking, keep posting. You are with family now.  Looking forward hearing from you.  Bajanne, Moderator |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
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pelagia
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« Reply #15 on: October 18, 2008, 01:17:48 PM » |
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Scott!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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