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Author Topic: Chicago to Seattle via Yellowstone with five NxStage treatments  (Read 14836 times)
Bill Peckham
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« on: October 02, 2008, 05:02:36 PM »

And we're finally off. I'm driving back home after an extended stay in the Chicago area. When I drove here in mid-August I did it in 38 hours - driving back I'm planning on taking six or seven nights. I'm dragging a U-haul trailer (I had a hitch put on my Forester for my Birthday) and and enough supplies for five 40 liter treatments.

I'm writing this as we drive towards Madison, WI on I-94. I'm not sure where we'll stop tonight - tomorrow we'll hit the Badlands and sleep near Mt Rushmore. We have reservations at the Shoshone Lodge Saturday and Sunday night. I'm driving with my friend Steve who I've know since I was 7 years old. He lives in FL; flew up to make the drive with me, he and his wife and daughter were on the second half of the boat charter I did in May. Cairny my dog is in the car too of course.

We're driving into a deep orange sunset about 30 miles from Madison right now - I hope that is a good omen for the trip.

Day 2
We just kept driving instead of stopping last night. About 3 in  the morning outside of Mitchel at a ranch access road I pulled off into the darkness to look at the stars. What a sight. I have a double size sun roof which I opened to the night sky. The Milky Way was in full glory. I left the car running and the seat heat on because it was down into the 40s outside. I spent about 20 minutes there looking for shooting stars before pushing on to Rapid City - I was thinking we'd get to the bad lands in time for the sunrise.

I was tracking my gas wondering what the impact of the trailer would be on the 25 MPG that I got on the way here - going through Wisconsin Steve tucked in behind semi trailers getting about 23 MPG (myth busters said trailing trailers improves MPG 10% or more. Going through Minnesota the trucks were few and far between and my mileage dropped to 20 MPG. With a 14 gallon tank I figured I would get gas at 250 mile increments.

After watching stars I was reaching the 250 mile mark with a gas exit in view - when the car died about 3/4 miles from the station - I had run out of gas. 3:30AM. Middle of S Dakota. Dark. No gas. Steve had been sleeping now we were all walking - the two of us and the dog along I-90 in the dark. It was cold. It took us about 45 minutes to walk there and back and then drive back to fill up - I now have a 2.5 gallon gas can in the trailer. The tank took only 12.5 gallons. hmmm   maybe the trailer is effecting the tank's efficiency? - pushing down on the back of the car. I don't know. Would have made it if I had shut down the engine while star gazing.

We pushed on, I was driving. About 5 I thought I saw a truck without its lights on that wasn't there (Steve convinced me that I hadn't seen the Flying Dutchman Semi)- we pulled on to an exit ramp and both slept to dawn.

With the dawn and few minutes of rest we drove the hundred miles left to the Badlands. The only other time I had taken the scenic route through here was with my Dad when I made my first trip out to Washington to go to school. It was a beautiful day today. We pulled over at a majority of the scenic overlooks and had breakfast at the Park lodge. There were a lot of bison and two large Prairie Dog Towns. We ended up on 25 miles of gravel road - some wash boarding before finding pavement and coming into Rapid city - avoiding I-90. It was a great day.

Day 3
Steve is still sawing wood - I've put away last night's treatment which was uneventful - 40L; 8.5 hours - now I am feeling rested and dialyzed. We drove up to Mt Rushmore and the Crazy House monuments (I posted one of the Rushmore pics the Crazy Horse pics are too blurry to be recognizable) last night. Seeing them lit up at night is impressive. Driving there in the dark, moonless night along the hilly and winding roads was made easier by dropping the trailer at the motel. Without the trailer my Forester felt like a Porsche - probably also due to the fact that I have never driven a Porsche. The downside of seeing the monuments at night was that I know we were driving through beautiful country but we should see some of that in a few hours.

The plan is to load up and then drive through a bit of the Black Hills before rejoining I-90 and heading to Devils Tower. From there we'll leave 1-90 in Gillette, WY and head over to the Shoshone Lodge for two nights. I'm looking forward to it.

On Saturday we left Rapid City about 9AM, heading West on I-90. Just past Sturgis we turned off and headed south to Lead before cutting over and then up Spearfish Canyon. A beautiful day in the 70s with the trees at the height of their fall colors it was as pretty a drive as one could imagine. Amazing. I tried something that I'm sure to do again.

Steve held my old Olympus camera out the moon roof and shot about 75 seconds of video. I uploaded the video to Google here(http://video.google.com/videoplay?docid=-5878675879994761509). Turn down the volume because all there is is the wind noise.

At the end of the canyon we rejoined I-90 and headed into Wyoming about seven miles before exiting for Aladdin following a series of roads to the north, into the shadow of Devil's Tower. We didn't stop for more than a picture since by now it was the early afternoon; we had a long drive still to go to our Cabin at the Shoshone Lodge.

When we rejoined I-90 at Moorcroft Steve was driving and I dozed off. After running out of gas the previous day we agreed that we'd fill-up before we reached a quarter tank, this would mean a gas stop in Gillette. When Steve woke me to tell me the fuel light had come on we were around mile marker 90 over 30 miles back.

"The fuel light was the last thing I ever saw" I said waking up.

We needed gas. I've known Steve since I was 7 - we've never been able to learn from each others experiences. If he touched something before jumping back exclaiming how hot it was I would still touch it to see for myself. If we ran out of gas there really wasn't much I could say. As we came up to Exit 88 it indicated gas (with next services 32 miles). We drove up a dirt road to 88 Fuels where it was explained there was no gas - hadn't been for over a year.

All was not loss - at the rest area, back near the road, lived a man named Joe - talk to him the man at the store without gas said. Joe was the rest area attendant, living in a RV adjacent to the official Wyoming highway rest stop. He had 5 gallons of gas to spare which got us on our way.

The rest of the drive was uneventful, but long. We had to cross a pass that was at 9,600 feet which with the trailer in tow we could only climb at about 40MPG. In the end we picked up supplies in Cody and got up to the Shoshone Lodge at about 9:30, getting to bed by 11. No dialysis.

Day 4

We slept in until 11AM - twelve hours of sleep. After getting some food up the road I went on a hike while Steve to a horse back ride for about an hour. I wasn't sure how my dog would react to me being on a horse and I didn't have the heart to leave in the car. It was a nice hike and Steve had a good ride. I have all my equipment for tonight's dialysis treatment unloaded from the car.

We have a nice two bedroom cabin - each bedroom has it's own heat so I'll be able to make my room nice and warm for tonight's run. Tomorrow we'll head into Yellowstone and spend the night in West Yellowstone or maybe push on into Montana.
« Last Edit: October 05, 2008, 04:27:43 PM by Bill Peckham » Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
okarol
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« Reply #1 on: October 02, 2008, 05:04:56 PM »


Too bad you can't stop to see Boxman and Sluff, you're in their neck of the woods!

Have a great trip!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #2 on: October 02, 2008, 05:08:49 PM »

Have a safe trip.  I hope you can unwind, relax, and enjoy the scenery.   Keep us posted.
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G-Ma
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« Reply #3 on: October 02, 2008, 05:14:36 PM »

Sleeping near Mt Rushmore is the best vacation I can imagine...loved it. Hope you enjoy yourself, you need a break.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #4 on: October 02, 2008, 05:16:42 PM »

 :2thumbsup; keep us posted.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Bill Peckham
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« Reply #5 on: October 02, 2008, 05:17:59 PM »

Steve is driving right now and my Sprint internet access is working well (and I guess I can touch type in the dark, who knew) but come the empty lands of the west I think I will be unplugged for three days - that has to be healthy. And the plan is to think about taking many more pictures this trip - I probably shouldn't do a flash shot at this moment.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
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« Reply #6 on: October 02, 2008, 05:26:17 PM »

Bill, you are my idol!

Alene
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« Reply #7 on: October 03, 2008, 08:28:26 AM »

Have a good trip, Bill.
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okarol
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« Reply #8 on: October 03, 2008, 08:41:06 AM »

Where's Bill now?
« Last Edit: October 03, 2008, 08:44:36 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bill Peckham
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« Reply #9 on: October 03, 2008, 03:41:02 PM »

I'm in Rapid City at an Motel 6. The trailer is unhitched from the car - we're going to go see Mt. Rushmore at night under the lights.  Here are some pics to go with the Day Two update up above.
« Last Edit: October 03, 2008, 03:50:00 PM by Bill Peckham » Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Meinuk
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« Reply #10 on: October 03, 2008, 03:57:41 PM »

Thanks for the updates & photos.

Day two and it looks like you are on a classic road trip adventure.  I hope that there is more stargazing and less 3:30 am walks for gas.  (was it wrong for me to laugh out loud when I read that?)


« Last Edit: October 03, 2008, 04:00:03 PM by Meinuk » Logged

Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

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« Reply #11 on: October 03, 2008, 03:59:03 PM »

Thanks for letting us come along on your trip!  Pictures are great.  Mt.Rushmoor at night should be incredible.  Haven't been there since childhood,but it was an amazing thing to see.  Hope you are relaxing and having lots of fun.  You and Steve take care of each other and watch out for those prarie dogs!  
« Last Edit: October 03, 2008, 04:02:35 PM by paris » Logged



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« Reply #12 on: October 03, 2008, 04:34:01 PM »

All sounds good Bill.  Keep posting the photos when you get a chance.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bill Peckham
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« Reply #13 on: October 04, 2008, 06:59:00 AM »

Here is my NxStage setup at the Motel 6 in Rapid City, SD and a blurry photo of Mt Rushmore at night. I should invest in a tripod for these no flash night shots.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
pelagia
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« Reply #14 on: October 04, 2008, 08:34:47 AM »

 :flower;  I've always wanted to see Mt. Rushmore!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #15 on: October 04, 2008, 04:33:35 PM »

We were there last year for July 4th, absolutely incredible...
Logged

Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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« Reply #16 on: October 05, 2008, 04:18:38 AM »

Please tell Bozeman, MT "hi"!  I lived there for 27 years and I am homesick!
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« Reply #17 on: October 05, 2008, 05:35:04 AM »

 :clap;   Love the photos!   I'll bet your dog is loving this trip.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Bill Peckham
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« Reply #18 on: October 05, 2008, 04:36:50 PM »

A couple pics from Spearfish Canyon



Edited: Resized photos - okarol/admin
« Last Edit: October 05, 2008, 06:28:30 PM by okarol » Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
kellyt
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« Reply #19 on: October 05, 2008, 05:30:04 PM »

 :thumbup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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Might as well smile

« Reply #20 on: October 05, 2008, 07:48:45 PM »

Great shot of Cairny.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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Cattitude

« Reply #21 on: October 05, 2008, 08:03:47 PM »

It all sounds like great fun, Bill!
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Bill Peckham
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« Reply #22 on: October 05, 2008, 08:18:59 PM »

Some more pics - my dialysis setup for tonight; our cabin; Steve at Devil's Tower; Steve's room with fire place.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
pelagia
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« Reply #23 on: October 06, 2008, 04:35:52 AM »

looks like fun and the dialysis set up looks completely doable.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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« Reply #24 on: October 06, 2008, 05:25:26 AM »

:yahoo; Bill. I love reading about your journeys. Take care and be safe. Please hug that beautiful Cairny for me.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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