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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Spouses and Caregivers
I don't know where to start
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Topic: I don't know where to start (Read 3996 times)
willieandwinnie
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I don't know where to start
«
on:
July 19, 2008, 10:15:40 AM »
Hi everyone, I haven't been around much. Our household is falling apart. Len has been in the hospital again with stomach problems, it seems he is on this every 3 weeks schedule with this. Did go to DC for his checkup (10 months) with transplant center and they are hoping that in September when they stop the Valycte that it's going to help this situation. God, I hope so. I got a telephone call from my girlfriends daughter Sunday morning that CJ passed away Saturday from bone cancer (CJ's husband David passed away last fall from MRSA). CJ was by my side when Len was at the worst in 2001. Then to add more to my plate I had another bout with vertigo and our doctor is going to send me to a ears, nose and throat specialist. Something about my tube being too small. I was scared to death driving to the hospital because the world was moving like I was drunk. Doctor has me on some pretty strong meds and they flushed my ears that seem to help some (hurt like hell when they were doing it). Then there is our 15 year old cat (Mouse), she has lost about 6 pounds in just a couple of weeks, wouldn't eat, drink and howled 24/7 and acted like she was whacked out on something. I finally got her to the vet yesterday knowing in my heart that I was probably going to have her put to sleep. Well, the Vet checked her from top to bottom and said she is having thyroid problems. They took labs and injected some vitamins and fluid into her and said they have lab results back Monday. Bought her home and she is acting like a normal cat (sleeping in a box beside me right now). I sat in the Vets office and bawled. I should of taken her sooner, but I have had my hands full with Len and myself, and thank God our Vet knows the story and was very understanding. Why is it that sometimes you just feel like the whole world is crashing down on you. Len was getting really depressed but seems to snap out of it when I got sick. Our riding lawnmower died last weekend and he has been trying to charge battery but it was having none of it so he went to Walmart and bought a new one and we are now back in the lawn mowing business. For the first time in 10 months, he was dressed every single day this week. We had doctors appointment Monday and Walmart, doctors on Wednesday and yesterday and then to the Vet yesterday and he went grocery shopping on Tuesday and Thursday he went to get a haircut. This morning he said he feels emotionally spent, so do I actually. He asked me to please not schedule anything for the coming week. I told him I would try. I got email from Karol and twirl checking on us and get on here this morning and find out that it is going to take me weeks to catch up on all the posts. Slow down you guys, you are making me dizzy with all this reading. It's good to be back you guys, I have missed you. Have a great weekend and try to stay cool.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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Photo is Jenna - after Disneyland - 1988
Re: I don't know where to start
«
Reply #1 on:
July 19, 2008, 10:36:54 AM »
Kathy, I hope things settle down. Please take care of yourself. I am sorry about losing your friend.
You are so nice to welcome all the new members despite having a ton of threads to catch up on. That's what makes you so special. Always thinking of others.
Hang in there my friend. Best wishes to Len and Mouse too.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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Re: I don't know where to start
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Reply #2 on:
July 19, 2008, 10:41:33 AM »
I believe life is just a continuous problem solving event. Glad your back and I hope things run a little smoother.
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rose1999
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Re: I don't know where to start
«
Reply #3 on:
July 19, 2008, 10:56:34 AM »
Good to have you back but what a tme you've had.....sending hugs for you
and Len
and Mouse
xx
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Ohio Buckeye
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Re: I don't know where to start
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Reply #4 on:
July 19, 2008, 11:11:03 AM »
So glad you're back.
Hope things setlte down for you all soon.
You have been through so much.
Take care.
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If I must do this to live, I must strive to live
while I am doing this.
paris
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Re: I don't know where to start
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Reply #5 on:
July 19, 2008, 02:47:58 PM »
You have been missed! You certainly are dealing with too many things. Maybe one day the world will slow down. In the meantime, sending you lots of good thoughts and love
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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Re: I don't know where to start
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Reply #6 on:
July 19, 2008, 03:03:14 PM »
Sending lots of good thoughts and waves of peace your way. Hope Len feels better a lot and keeps on getting dressed and getting moving. You remember to take care of you a lot now.
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
David13
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A meow massages the heart.
Re: I don't know where to start
«
Reply #7 on:
July 19, 2008, 03:14:23 PM »
So sorry to hear about all that you have been going through, but know that you have the strength to keep moving forward. Good thoughts going out to all of you, Mouse included.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
del
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del and willowtreewren meet
Re: I don't know where to start
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Reply #8 on:
July 19, 2008, 03:34:04 PM »
Hope thing calm down for you soon.
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Don't take your organs to heaven. Heaven knows we need them here.
twirl
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Re: I don't know where to start
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Reply #9 on:
July 19, 2008, 03:39:13 PM »
glad you are back
glad to see willieandwinnie
missed you
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: I don't know where to start
«
Reply #10 on:
July 19, 2008, 05:01:02 PM »
I totally understand what you have been going through and the feeling of being overwhelmed. however, we are survivors!! We will make it through valiantly. My caring thoughts and prayers are with you all. So great to have you posting again.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
pelagia
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Re: I don't know where to start
«
Reply #11 on:
July 19, 2008, 06:50:27 PM »
So sorry to hear that it's been so many trials for you lately.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Romona
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Re: I don't know where to start
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Reply #12 on:
July 19, 2008, 07:07:11 PM »
I hope things settle soon.
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ODAT
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Nala - Mom's Cat
Re: I don't know where to start
«
Reply #13 on:
July 22, 2008, 08:22:10 AM »
Praying that you can find solace in each other. Look for the simple beauty in your surroundings. I wish I had a cat - purring should be available on CD! What a unique and cute name for a cat - Mouse. take care
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As is your sort of mind, so is your sort of search: you will find what you desire.
monrein
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Might as well smile
Re: I don't know where to start
«
Reply #14 on:
July 22, 2008, 03:54:15 PM »
W&W. Thank goodness you're back. I was wondering about you and Len, and the menagerie too of course. Sounds like you've been going through far too much and I hope that your household is now entering a new phase of calm. "Excitement" can be quite over-rated. Hugs to you both.
Gail
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
2_DallasCowboys
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Re: I don't know where to start
«
Reply #15 on:
July 24, 2008, 04:37:00 AM »
Dear W&W,
Sorry to see you have had so many problems! I hope this
finds your Len feeling much, much, better- and you, too!
Promise to remember to take care of yourself!
Hugs to all, Mouse and the two "dolls" included!
Anne
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petey
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Re: I don't know where to start
«
Reply #16 on:
July 24, 2008, 04:35:45 PM »
willieandwinnie,
Your house sounds like mine -- when it rains here, it pours! I, too, get the feeling that it's one crisis after another (sometimes, the second crisis comes before the first one's over). My heart just aches for Len -- he's had such a time! But, he's like Marvin; when I get sick, overwhelmed, maxed out, Marvin somehow pulls through and carries us both for a little while (even if he's not really up to it). If nothing else, Len is one tough cookie!
Speaking of tough cookies, you're not so bad yourself! I don't know how you manage to do all you do and still remain sane (but, then, I'm doing it too, and, hell, I don't know how I do it, either
). Around here, I just take one day at the time. What do I HAVE to do today to make it through? You probably do the same. Hang in there, girl!
How's Mouse? Willie and Winnie? The kids and grandkids?
I can't tell you how much I've missed you. I think of you and Len every day.
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willieandwinnie
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Re: I don't know where to start
«
Reply #17 on:
July 25, 2008, 11:26:19 AM »
Hi Everybody, thanks for checking up on us, and petey, your a doll
Len didn't feel well yesterday and today doesn't seem to be going any better. I fixed breakfast, did dishes and then weedeated the whole yard and then cut it. Thank god that is done for another week. It isn't as hot here today as it has been so I just wanted it done before the temperature goes up again tomorrow, along with the thunderstorms.
petey, somedays I get a little tired of being overwhelmed, I'd like a nice couple of weeks to chill. I do what I have to do, but sometimes I'm not real happy about it. I don't think I'm really as tough as I would like everyone to believe. Know what I mean? Thanks for asking about the family. I went to the Vet the other night during a horrible thunderstorm to get Mouse's medicine (her antibiotic) and no sooner pulled out of the parking lot and a tree fell across the highway behind me. Then I had to go to CVS and pick up another prescription for Mouse (have you ever done such a thing?) CVS for a pet? That's where I have to get her thyroid medicine. Sounded strange telling the girl at drive in window "Mouse Feline Amos" The girl was telling me that it is pretty common. First for me. Willie and Winnie are not happy to be sharing so much attention with Mouse, but they are good. Billy has been emptying a Junk yard for a guy that is getting ready to build small sub-division and he has been hauling junk cars to Virginia to a re cycler place. He loads the cars up in the evening and leaves his house about 4am and gets home about 9am. Then he works his normal job. Oh youth. My daughter is the dollbaby of all dollbabies, she can't seem to do enough for everyone. My granddaughter Amanda (17) got a summer intern job with the Government and they are talking about her working part-time when school starts since she will only be going to school for half days. She was so excited to get that first paycheck. Adam is just your typical boy and Hannah has gone to a few Horseback camps already and has another to attend in August. That child loves Horses.
Bet you didn't think I'd be writing a book. I better go catch up on posts or I'll really get behind. We will continue to take one day at a time around here and that's the best we can do.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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Re: I don't know where to start
«
Reply #18 on:
July 25, 2008, 01:31:59 PM »
And do you get a little time to pamper yourself every once in awhile? Someone sent me a little booklet reminding me that you can be a better caregiver if you do something nice for yourself occasionally.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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