My Time

[pelagia]

I am happy to hear that you are feeling better.  Did you end up going on your trip? How long will you need to stay on the Valcyte?

[willieandwinnie]

waitlisted, I hope you are doing better. Len has been on Valcyte now for over 10 months. He is now on 1 three times a week until September and then he will be off it. He has had labs that came back and said he was positive for CMV and the next set of labs will say negative. It's enough to make you want to  . I hope you got to go on your trip and enjoy yourself some. 

[waitlisted]

Here is a late update on my CMV experience. After my trip I went back to my clinic and that time (mid July) the CMV test was negative. All the tests after that have been negative as well. Now they stopped the testing, but I am still taking Valcyte 450mg per day for now.

How has it been for the others after the CMV infection has been treated and Valcyte stopped? In my home country they told me that normally they would keep testing the CMV virals after stopping the Valcyte to see that it does not come positive again. In my clinic I have been told that they don't normally do CMV test unless I have some symptoms suggesting I might have a new infection.

[okarol]

I am glad you're doing okay. I don't know about the long term treatment for CMV, but I hope you don't have anymore symptoms. Thanks for the update!