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Author Topic: Transplant Evaluation  (Read 2145 times)
kellyt
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« on: September 25, 2007, 03:12:39 PM »

I received a letter from my referred transplant institute saying that they will be contacting me regarding a transplant evaluation.  This will include testing of my heart, kidneys, gallbladder, stomach, intestines, bladder, teeth, gums, breasts and cervix.  Plus "other examinations may be required".

Would anyone mind telling me what to expect?  Are all these tests done in one day/week/month, etc.  How long does all this generally take?

Anyone have an interesting story to share regarding their evaluation?

Thanks. 


EDITED. MOVED TO PROPER SECTION. okarol/moderator
« Last Edit: September 25, 2007, 03:19:24 PM by okarol » Logged

1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: September 25, 2007, 03:17:18 PM »

Have you seen these other links? http://ihatedialysis.com/forum/index.php?topic=2607.0 and http://ihatedialysis.com/forum/index.php?topic=703.0. There's plenty more in Transplant Stories.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #2 on: September 25, 2007, 03:20:57 PM »

Hi kellyt,
Most of the tests can be ordered by your family doctor. It took me a few months to get mine done because of scheduling. I have said this many times, but here goes. Ask for copies to be mailed directly to you. So many of my tests were misplaced. The transplant cooridinators sometimes lose things. Even things sent to them directly from other health care providers. My eval wasn't bad. Good Luck to you!
Romona
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Jill D.
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« Reply #3 on: September 25, 2007, 06:36:36 PM »

For my first evaluation, I had everything done at the transplant center's hospital over the course of 2 days, including meeting with the transplant doctors, coordinator, social worker and psychologist. I then had a list of other tests that I had done closer to home: pelvic, mammogram, stress test, kidney ultrasound, dental checkup.
For my second evaluation, at Mayo Clinic, all of the above (except dental check) - plus fun colon stuff - were done in 4 days. On the afternoon of the fourth day, I met with my Mayo neph and he had the results of all of the tests on the computer and he was able to tell me that he was recommending me for a transplant. The place is AMAZING!!!!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
jbeany
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« Reply #4 on: September 25, 2007, 08:05:05 PM »

What tests they require depends on your age, other health problems, and gender.  Every center seems to have a different set of requirements too.  Mine, U of Michigan, didn't say anything about dental checkups, but every diabetic has to have yearly EKG testing to check for heart problems.

If your center is like mine, they will schedule you for a very loooong day of tests and meetings.  You will do blood work, get xrays, etc, as well as exams by a neph, a surgeon, and a social worker.  Bring a book - you will spend more time waiting for meetings and appointments than you will actually spend in them.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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